I am on supplementary oxygen and ambulatory oxygen ( liquid oxygen) . The liquid oxygen lasts approximately a week but is very hit and miss, I had a delivery last Friday and my husband checked the lights on Tuesday ( 4 days ) and we had 5 lights on , which means still full or almost full.
However on Wednesday, ( the next day ) he went to fill up with oxygen and we had no lights on , I know it evaporates but it has not even lasted a week! The thing was it was now after 6pm and Air Liquide closes at 5pm . I managed to contact the emergency team , who told me I needed to call before 5pm (point taken ) and they have arranged a delivery for today at some point.
It meant that if I needed to get up in the night, I would need to wake my husband to turn the concentrator up and then down as needed. I would have also had to re-arrange any medical appointments for that day, as I could not get there without oxygen.
The lady at Air Liquid has told me to mention it to the technician, this has happened before, but the technician just says well that’s the one we have picked up from the depot. The bottom line is it must have been half full when it was delivered.
We are now going to check twice a day now , once in the morning, then again just before 5pm . Any one else experienced this ?
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Beachballs
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Beachballs i have never used liquid o2 but I do know that some times it can be very erratic in its storage and delivery but for emergency use overnight don't forget that you have a very large back up cylinder for your concentrator that could provide at least 18hrs of o2 at a reasonable flow that you could use which would also be very quiet for overnight use.Hope Air Liquide in combination with your oxygen prescriber can resolve your issue swiftly.
Yes that’s right , but it is big and heavy and I can’t drag it to the Toilet as I do get up in the night ! so ambulatory works for me in that respect. Also if I have any appointments like blood tests or X-ray, I need it to get there. Hope you are ok , and am looking forward to the next race meeting !!!!😀👍
If you could ask your supplier for a 50 ft loose length of tubing like i use on my concentrator and just swap it over to the cylinder that would do the trick in the short term,but it is a devil to control and tangles up for fun as i know to my peril lolHave you considered asking for a small POC like the Inogen g3 for ambulatory needs,they go up to about 5 ltrs max on puldse setting and at about 4.5 kilos in weight not to bad to carry over the shoulder in the bag provided and easy to pop into a shopping trolley at the supermarket and can also be recharged in the car if required,
Anyways good luck with however you manage to resolve the situation and i hope they can just make your current set up fit for purpose.
Yes , I did ask for an Imogen right at the start of all this , but was put off it by the nurse . I am thinking along those lines again and definitely will look into it , did not know you could charge it in the car , so that would be perfect. Can we get Imogen on the NHS , or will I have to purchase it myself ?
A lot depends on your particular trust and the contract they have with thier suppliers.Mine didnt so i purchased a second hand one and then added additional batterys but a lot of trusts do supply both the g2 which comes with a trolley and the g3 which you carry over your shoulder.🙂
We have been down that route Mike with the long length of tubing and found that the concentrator would not work on 1lt just the high numbers and ended up with the machine being changed 4 times over the bank holiday weekend , before a senior technician came out and told us that’s what the problem was , so we have 15ft tubing now . Still waiting for Air liquid to come today, but I suspect we will be last on the list, but that’s ok . Thanks for replying, hope today is a good day ! 🍷x
Thankfully i have the knowledge and the know how to SAFELY tweak the flow rate to compensate for any loss of pressure and although my prescriber can't officially sanction that i am more often than not left to my own devices with regard to all of my oxygen requirements and that suits me fine,i would never do anything reckless to endanger my own life and i am well aware of the symptons if i am getting it wrong.
Knowledge is power as they say !! It is still trial and error with me although I have come a long way . Thanks for all your suggestions, you have been a great help and given me options which I will look at . Have a lovely afternoon and the sun has just come out!! ⛱x
Hi Beachballs. Like Mike, I have never had liquid o2 but he gave you good information about other methods of delivery. I was given a 'home fill' when i started using o2, which I must say has been very dependable and easy to monitor usage. It's a concentrator with a condenser on top, which fills your small o2 bottles, The smaller, litre bottle, is easily carried in shopping bag over shoulder and the larger, one & half litre, I use around the house and through the night, if needed. I guess it depends on your provider which ones they provide but Mike has given you some alternatives to think about. Best of luck with your refills xxx😊
Thanks for your reply. The oxygen man came late afternoon and declared it faulty as it had been leaking and he was going to report this.I have a nurses visit booked for next week, so will discuss suggestions with her then. Thanks again and have a lovely day. X🌷
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