Haveing looked into my dad’s so called lung cancer nodule I surspect is mesothelioma BUT as he as Alzheimer’s Dementia oncologist are trying to pull fast one with NONE clinical diagnosis of asbestos mesothelioma.
Thought I would share pathway my dad is at CLEARLY as my dad’s son and carer palative treatments can be as hard for family members to watch profess WITH out injustice of patients LIKE my dad who are either not recognised or who are too sick and are therefore never referred to secondary care.
Makes me feel my dad’s life is worthless ANOYING like a toothach.
Guess that’s why am doing post SO lung cancer mesothelioma national audit will see my post AS it’s far from perfect the injustices lack of recognition.
Here is current pathway AND as anything changed.
The symptoms of lung cancer and mesothelioma are relatively non-specific, as a result of which referral routes are many and varied. Of those diagnosed with lung cancer or mesothelioma, no more than half are referred directly from primary care to the lung cancer specialist team with suspicion of the disease.
Rapid referral guidelines are available and specialist rapid access clinics have been set up in virtually all trusts in England and Wales to diagnose and treat patients. Management of patients with lung cancer and mesothelioma is now almost entirely carried out by specialist multi-disciplinary teams (MDTs) with lung cancer and mesothelioma being managed by the same specialist clinical groups.
Establishing a tissue diagnosis for both lung cancer and mesothelioma can be difficult and often requires invasive investigation. Thus there will always be a proportion of patients in whom the diagnosis is established on clinical and/or radiological grounds only. Furthermore, there are a small proportion of patients who are either not recognised or who are too sick and are therefore never referred to secondary care. Because of the specialist nature of surgery and chemo-radiotherapy, a high proportion of these patients are managed by more than one trust. This poses problems with completeness of data unless all clinical teams involved in the care pathway are collecting the appropriate data.
Hi Jeff as you suspect the figures probably don't add up in many medical areas, due to some not being treated and others being on two different health authorities. Plus I guess on occassions doubt about diagnosis and this thing of dotors placing priority on one illness specifically in patients, i.e mental health issues overridding physical It's all very complex but well done to you for highlighting this matter and trying to get things changed. Some people with mental health issues never get to see a specialist. Keep up the good work, take care and enjoy your day, the sun is here hope it is with you too.
Hi Katie think you hit it on the nail with multiple conditions MIGHT even know more than blf when it comes to mesothelioma.
Sure my dad as other conditions but becouse he’s sick don’t mean things should be left to slide.
After all that’s that’s how abuses start in my opinion.
Really upsets me this business AFTER all he only worked there so he save / pay for he’s marriege to my mum.
Am sure he never wanted positing or any of SAD thing is he thinks he’s ok.
It’s me who as to see is mesothelioma being catergrised as lung nodule under observation.
Well that’s the HOLE justifies doing nothing on 📝 paper work note’s
Clearly I have had lung nodule’s and my dad’s is nothing like any of mine was SO when other agencies see lung nodule under observation they think this nothing really up with him.
Also these other agencies are not up all night with my dad NOT becouse he can’t sleep becouse he can’t becouse of all toxins in he’s blood make it impossible.
Was at AE with my dad over leg Edema and blister’s and the took some blood AND as soon as it hit tube turned into black sticky mess.
That’s other thing am not happy about AS am sure he should be on anti blood clot pills.
Anyway NONE of them are going to get away with it.
Why should my dad be denied the recordnition or even a chance at treatment instead is just £&@£ on from a great height in favour of a cooperation.
You are right Jeff, it is a case of justifying none treatment . The health service constitution says they should take into account the carers needs not just the patients in cases of dementia. You need your dads suffering to be reduced if at all possible. Not only that you need peace of mind that the best is being done for him, if it was their parent they would react the same about what seems like poor care. Your dad is oblivious to his health problems but you are not so it is your emotional health that is suffering from watching your dads care or lack of it. Sorry it is so hard for you, can only support you can't change what's happening or the stress it is causing you, wish I could.
It Is hard to take the no in between for everyone not just when it is your loved one.And I am sure many illness deaths are manipulated to put it in your words as they don't take into account deaths from other circumstances. i.e my husband died from pancreatic cancer but I know different the prognosis or outcome would have been the same, but it manipulates the figures. It is very difficult when you say no to a treatment and end up with no help at all. It's sad that we have to side with the doctor no matter what if you want all treatments tried. As for mental health patients they often loose out as they can't understand thier illness and trust the doctors wholeheartedly. I hate saying these things but you and I both know such things happen, been there got the teeshirt as they say. I agree with you on occassions it feels like they are insulting our intelligence I have to ignore them or I would be at a solicitors sueing for poor health care or incorrect diagnosis. Oh well another day gone have a nice evening and remember you dad is not suffering you are from knowing. Best Wishes.
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