My first ct scan showed subtile ground glass after 3 months because the symptoms were still there i have repeatd the ct .this thime a hrct high resolution. This one was normal no ground glass....
‘Ground glass’ is a way to describe a pattern that shows on High Resolution scans. Not literally ground glass. Odd that it is there in one scan and then disappears. It is strange that RBH cannot help. They are the country’s experts on rare lung disease.
I had an HRCT: a radiologist looked at it “no evidence of small airways disease”. I tentatively asked for a second opinion from another radiologist. And there it was.... it is not the first CT scan in my case that was wrongly interpreted. My consultant was happy to ask for a second (“or third”, he said) opinion. Rare diseases are notoriously difficult to diagnose.
Which is why "Please ensure no Doctors are named here. If you wish to share Doctors' names please use the message facility. Thanks" was inserted into the post.
Papworth Hospital (near Cambridge) have a lung defence team approach where there are consultants from various disciplines (specialists in cancers/ lymphomas/ COPD/ asthma/ bronchiectasis/ immunology/ pathology/ radiology /cardiology that will review difficult cases in a team meeting once every week. They identified through the team meeting review my relatively uncommon malt lung lymphoma then, once that had been successfully treated but infections and mucus remained still evident, identified bronchiectasis.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.