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Empheysema

Ruskin2000 profile image
12 Replies

Hi everyone.I am new to this site,I am 48 years old was diagnosed with mild empheysema last January.Chest xray normal spirometer normal found it on ct scan.Was not even told I had it till got home saw it on report.I have had recently a very saw chest feels very inflamed and mucos in back of throat no cough the pain is awful and heavy have to put heat on it at night so sore.I dont now if this is a chest infection or not .I live in spain and doctor doesnt seem interested ive had this pain for 2 months my last spirometer test in august this year read FEV98percent FEV1 is 101 percent DLCO 84 percent RV 148 percent TLC 121 percecent RV TLC together122 percent.When I was diagnosed lung specialist said it was nothing yet im suffering with the feeling of massive inflamation in my chest for the last month I am worried any suggestions please would be welcome sorry for long message

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Ruskin2000
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12 Replies
mrsmummy profile image
mrsmummy

From your figures your COPD seems very mild and should not be causing you any problems at all unless you have some infection. If you are experiencing pain then the only person who can help is your doctor and I can only suggest that you go back and explain just how you are feeling. Good luck. :)

Ruskin2000 profile image
Ruskin2000 in reply tomrsmummy

Thankyou I will do that

SquirrelsHolt profile image
SquirrelsHolt

Hello and welcome Ruskin2000

Ruskin2000 profile image
Ruskin2000 in reply toSquirrelsHolt

Hello

Pentreath profile image
PentreathVolunteer

Welcome to this friendly site. Hope your GP will be able to help you get over this problem.

madametobacco49 profile image
madametobacco49

Get to another dr and don't mess around--I have emphysema--Stats worse than yours and I don't have pain like that--you have something going on--maybe not serious but discomfort is something you shouldn't be living with all the time--what on earth is up with your dr? Good Luck--Mmet

Stumpy55 profile image
Stumpy55

Hello Ruskin 2000, I can well understand your concerns and it's easy to say don't worry because we all do. It's a shame your not getting more support. I have very severe copd with emphaseama and know how scary it makes me feel especially when I'm gasping for breath. I suggest you speak to someone with the knowledge of your illness, clearly your doctor is far from supportive. Sorry for your stress, take care ✋️😊

Ruskin2000 profile image
Ruskin2000 in reply toStumpy55

Thankyou

lKeith profile image
lKeith

Ruskin2000,

Would suggest an email to the support wing of BLF who will understand the readings that you have shown. In the UK if you feel you have an infection you would have "standby" antibiotics and steroids, but always you would consult your G.P

IKeith

Ruskin2000 profile image
Ruskin2000 in reply tolKeith

Thanks I have no cough no fever so dont think its an infection unless you can get one without a cough not sure

Hayley_ profile image
Hayley_

I’m sure in Spain you could just speak to a pharmacist and tell them your problem and if they think it’s a chest infection they will give you antibiotics. When I went to Spain a few years ago for 3 months I got a bladder infection and i was told just to go to the chemist for the antibiotics, which I did, I didn’t need to see a doctor. But maybe it has changed since I last went. But it is always good to go see your doctor if you are worried. And don’t take no for an answer, they do seem especially laid back in Spain. Good luck 😉

seyre profile image
seyre

Try to find somewhere that provides pulmonary re hab. This is great for strengthening the lungs and then look into transplant. I had transplant 3 years ago when I was wheelchair bound with emphysema

It was the best thing that ever happened to me and I know live a full and active life. Keeping strong is the first most important thing you can do. Good luck. Susie q

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