Is IPF hereditary?

[edwina-84]

Hi All

My mum was diagnosed with IPF at the age of 61. We then discovered that my grandma, who passed away in her mid-60’s also had IPF. Mums obviously worried about me and my sister but I’m not sure if 1.it can be tested for 2. If it’s hereditary and 3. Is it worth worrying about if there’s no cure or understanding as to what causes it? Interested to know if anybody has any info/opinion on this?

Anyone who does have a loved one with IPF, my 💜 is with you

[Caspiana]

Hello edwina-84 .

I don't have IPF but I know someone who does. In some cases, people who have IPF don't run the risk of passing it down to their children. This is known as sporadic IPF.

However, there are some genes that have been identified with IPF running in families. But as of yet, the genetics of IPF are not well understood. What is known is that people who have first degree relatives with IPF run a much higher risk of having it themselves.

I am not sure if there is any way of testing if you have the gene. My knowledge on the matter is limited. I would encourage you to talk with your doctor about it. I understand your mum's worry.

Sending best wishes,

Cas xx 😃

P.S. I honestly think the best place to raise these questions would be with a health care professional. It will help you and your mum put your minds at ease.

I have health issues that could be inherited by my children. I didn't realize I had them until my children were teenagers. I do worry they may inherit my conditions, but I don't dwell on it. As there is nothing I can do about it. I try not to worry about things beyond my control. I find in the end it is just exhausting and rather futile.