Hello community! I’m new here and hoping to pick up tips on how best to care for the one you love when they suffer from IPF.
My husband was diagnosed in late 2017 and despite meds, his condition has predictably got worse. He started ambulatory oxygen a couple of months ago which we thought would be a life-changer but he is still struggling massively.
I’m 54 and gave up work in 2020 to be with him all the time. I try to stay upbeat and optimistic for him and make sure he is as comfortable as can be whilst keeping everything running. Some days I feel a bit overwhelmed and what the future holds does keep me awake at night.
Any tips from carers on how to keep going much appreciated - or just sharing experiences would be welcome. Also keen to hear from IPF sufferers on what carers can do to help!
Bit of a longwinded intro, sorry.