Extending my stay: Hello Friends ๐ŸŒป I... - Lung Conditions C...

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Extending my stay

โ€ข26 Replies

Hello Friends ๐ŸŒป

I thought I would stay until the 27th.

I am enjoying the mild weather and the sunshine is cheering me up.

Iโ€™m not hiding my head in the ground but I think the 24h test will wait another week. I need the prospect of a myeloma like a kick in the head so got to enjoy the present..

And look at that cheeky cat taking her side of the bed while I am away๐Ÿ˜ƒ

Sleep tight!!

Fran x

26 Replies
โ€ข

Is well away cats defo know best places.

Hope all go's well WHEN back

โ€ข in reply to

She certainly does ๐Ÿ˜ƒ

Thanks Jeff fingers crossed ๐Ÿคž๐Ÿคž๐Ÿคž

Lindy-loo1949 profile image
Lindy-loo1949

Enjoy your stay in and soak up the warmth. It will make you feel better and a "diagnosis" can wait. Not much is going to change in a week or so. Relax and have some wine and a cheese plate.

โ€ข in reply toLindy-loo1949

Thank you Lindy, Iโ€™ll take you up on the wine and cheese!! ๐Ÿ˜Š

Yes I agree relaxing and de stressing is perhaps best than when ur feeling stronger minded u can deal with the test (I know exactly how ur feeling fran )xxx I'm not coping well with this 3 day assessment for double lung transplant I'm so scared so have decided I'm not in the right frame of mind to make such a huge decision I'm getting myself built back up physically and mentally then going to face that challenge xxxwhich the team said is quite normal xxx

โ€ข in reply to

Yes when you stop going, you can feel very tired, well thatโ€™s what my body is saying right now ๐Ÿ˜Š

I understand you Mel, it is a big decision to make.

All I can tell you is that some of the ladies in the Lammies group who have had a double lung transplant said it changed their lives and they never looked back. They are still on Sirolimus afterwards because it doesnโ€™t alter our genetics but their quality of life has improved. In the States they do them until 70 years old. I couldnโ€™t believe it.

It would be good to exchange with LAM patients who have had the op if you havenโ€™t already so you can feel reassured. In any case the team should provide with support.

I met another LAM patient on this site the other day so there are 3 of us so far. I will look for her name in the discussions and DM it to you.

Take good care xx

Fran

โ€ข in reply to

Thanx fran xxx is she from England??

โ€ข in reply to

I think so.

Caspiana profile image
Caspiana

Hello Hidden .

That sounds like the perfect plan. Have a lovely time. xx ๐Ÿˆ๐Ÿ’•

โ€ข in reply toCaspiana

Thank you Caspiana ๐Ÿฆ‹

breatheeasy1 profile image
breatheeasy1

Hi Fran

Definitely stay on where it's warm ๐ŸŒž! Give yourself a week to strengthen your body and soul and we're all with you for when you're back. Thinking of you ๐ŸŒป

โ€ข in reply tobreatheeasy1

Thank you so much. You are very kind xx

sassy59 profile image
sassy59

You have fun Fran and enjoy every moment.

What a snoozy cat. Xxxxx

โ€ข in reply tosassy59

Thank you Carole xx I am missing her that little cheeky devil ๐ŸŒท

hopetorun profile image
hopetorun

Lovely cat! Enjoy yourself thats what it is all about. Best wishes. X

โ€ข in reply tohopetorun

Thanks hope!! ๐Ÿ˜ป

Kitten-kat23 profile image
Kitten-kat23

She's gorgeous. Good luck with the tests.

โ€ข in reply toKitten-kat23

๐Ÿ˜ฝ๐Ÿ˜ฝ๐Ÿ˜ฝ

Billiejean_2 profile image
Billiejean_2

A great idea Fran and let's face it, just what any doctor with any sense would prescribe. You do know it's going to get very crowded down there as we all move out there for our virtual weeks in the sun :)

โ€ข in reply toBilliejean_2

Thanks Billiejean xx

๐Ÿ˜ƒ๐Ÿ˜ƒYou donโ€™t want to come down today, the wind is raging, trees are down, car is waltzing!! Lucky it was calm this weekend.

skischool profile image
skischool

Happy enjoy what sunshine you can grasp but check out your moggy,i fear she has been over doing the medications observed on the bed side table lol.i told you i was a nosy Mancunian.ha ha.................love skis and scruffy xx

โ€ข in reply toskischool

Thank you Skischool I will..

Bionic eyesight^^ You are just as cheeky as Aria!! No more pictures for you xx

Magpuss profile image
Magpuss

Mild weather and sunshine......that's worth staying for! Puss doing what cats do best and looking sooo comfy.........

โ€ข in reply toMagpuss

Actually today the wind was strong and cold but you could feel the warm sunshine..Puss sleeping like a baby on a pillow!!

mellyme profile image
mellyme

I think some of us are enjoying your trip more than you are. Thanks. :)

โ€ข in reply tomellyme

You are kind thank you mellyme

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