Feeling down

[Margie2553]

After a better day yesterday feeling a bit down wake up and copd pops straight in my head and stays there i can only escape it when asleep

[Hidden]

Felt the same waking up this morning

[Margie2553 in reply to Hidden]

Hard to get it out of your head isn't it hope i do eventually and you as well xx

[Hidden]

Hi Margie, I know that feeling. Having been moved into the stage 3 group 10 days ago, its completely turned our plans upside down and I'm finding it very hard to think about anything else. It's hard to stay positive but somehow you must. Keep well x

[SquirrelsHolt in reply to Hidden]

Hi there Hidden and you are totally right! Every day I expect this "cloud"above me to be lifted but it never is. That's because as much as I would want it to be so very different, its always going to be the same and telling me I have severe COPD. I've read articles from people all across the world and they all eventually have to accept their conditions.We will all get there- some get there quicker than others and I can find no easy way either! Its about acceptance and changing the little things in your life so that you can move forward. Obviously our medications,diet and exercise play a vital role but so does our mental health and wellbeing. Forums such as this are vital in my eyes,so I can relate to others,such as yourselves,and ask questions which get answers that are true.

I wish I could wake up tomorrow and my life be back 12 Years but then do I really want that? That would take me back to a time when I rented a damp ridden property,was very Ill most days and my son thinking his Mum may not live much longer! No,upon reflection, I will stick with my life right now thank you, because as long as I avoid any infections etc etc,its a lifestyle that has hope for a future.

[Hidden in reply to SquirrelsHolt]

Hi SquirrelsHolt

Thanks for your reply, which reflects how I feel. I'm still learning about COPD, just starting to understand my symptoms, working out which things are Copd related and which are not, but I will get there. I'm determined to get to grips with this, eat well, stay as fit as possible, and avoid infections and irritants and get my symptoms under control. I've learnt more about copd since joining this forum than I have while being treated by the NHS! Keep well and keep smiling x

[Badbessie]

I think we all have these days. I am normally very positive and try to think of ways to improve my situation. I exercise have a good diet and take my medications religiously. Though exercise I have built up my confidence to do more. Most of it is learning how to manage Copd and set a pace that allows me a good quality of life. Perhaps pulmonary rehabilitation or counseling could lift your mood.

[Margie2553]

I'm not worried about my condition the only symptom is breathless Ness but not to bad i do all my own housework out all the time it's the future that bothers me I'm supposed Stage 3 but can't work out how i don't have any other symptoms

[Nottobad]

Hi Maggie I am clinically stage 2 but my symptoms are stage 3. I get breathless doing anything. But try not to let it stop me from doing things. Have you been referred to PR that will help you with your breathing.. I am at the moment attending a follow up course at my local gym doing cardio exercise. All though I am breathless all the way through it I really enjoy it. I also suffer from arthritis. But do every thing slowly. Take care. The more you worry about things the more depressed you will get. Just take one day at a time. Take care xx

[Caspiana]

Hello Margie2553 .

I know what you mean. I was diagnosed with Rheumatoid Arthritis eight years ago. I woke up everyday thinking about it. It caused pain in almost every joint I had. That got controlled by drugs and then I got Sjogren's Syndrome. Another diagnosis that kept me awake. Three years ago almost I was told I have Obliterative Bronchiolitis a manifestation of the autoimmune diseases I already had. But this third and the worst of them didn't keep me awake anymore. I had sadly sort of resigned myself to the fact I had all these illnesses. And then suddenly sometimes (like yesterday) it hits me and I feel hopeless and alone. I know it's inevitable to feel down about it . We all do. And occasionally I envy people I see walking along who look like they have no illness. People jogging in particular make me sad.

I understand. I hope you are having an okay day. Sending you a hug.

Cas xx 🌿🌸🌿

[Hidden]

Hi Margie I totally get how you are feeling. When I do I come in here and read all the positive uplifting posts from others who are much worse than me! I end up thinking thank goodness my health is much better than most of the others and if they can remain so cheerful then so can I.

I also think as we age it's natural for most of us to pick up illnesses and I am very grateful not to have any of the biggest ones such as the C word or heart problems which are life threatening. Or the poor souls in here who are very severe, have IPF or bronchiectasis or something worse.

I look at my younger sister crippled by osteoarthritis and my eldest who suffers greatly from anxiety and agoraphobia and think how life limiting their conditions are.

I end up with 'So I have moderate copd and it's a pain but I can get out and about without too much problem and I wouldn't swap with anyone else for the world. I then feel lucky rather than miserable to have so much of my health still left.

[Margie2553 in reply to Hidden]

I'm coping with other things diabetes kidney failure gout

[lenney007]

Me too i think about it every day the worst thing is how you going to be when we wake up & not knowing whats going to happen you are not alone!

[Margie2553 in reply to lenney007]

first thing in the morning is my worst time I'm scared to get up on my own

[madametobacco49 in reply to Margie2553]

I cry every morning--it seems like as soon as I realize what has happened and the life I must now accept I get sad--then I get on with it.....everyday is new and different but not so much fun anymore MmeT

[Clamdigger]

I take medical weed it helps me with pain and the feeling down about my lungs. I wake up in the middle of the night thinking about the next CT scan find out if I have cancer or not. So I do a bit more weed and I go back to sleep. Plus I took up learning French so I use that when my mind is racing over all this..... Find something even if it is reading a book watch a movie. I know it is hard but come up with something you might like to do if your mind starts to race it helps me at times.....

[madametobacco49]

oh those thoughts in the darkness--talk about alone!!! Im sure grateful for the sharing on here because sometimes I think IM abig baby for feeling like I do--What I wouldn't give for time to go backwards--Hugs MmeT