Advice

[Sco2016]

My mum has bronchiectasis and its recently been found she has psuedomonas infection. Does anyone know the correct treatment and prognosis. Also I am just recovering from pneumonia does this make me susceptible to catching g this from my mum?

[Hidden]

You mum could got it of you but ad not worry if both on antibiotics

Droxycline are usaly recconend and steriodes depends how bad she is.

[Hidden in reply to Hidden]

Sorry Jeff but both those statements are completely wrong

[Hidden in reply to Hidden]

Don't think are wrong ... Pseudomonas aeruginosa is an uncommon cause of community-acquired pneumonia (CAP), but a common cause of hospital-acquired pneumonia.

[Hidden in reply to Hidden]

Sco2016 doesn't have pseudomonas so she can't have infected her mum. It's usually hospital-acquired, you're right there.

And the only oral antibiotic to which pseudomonas is sensitive is ciprofloxacin, not doxycycline.

[Hidden in reply to Hidden]

He was saying that her Mum was capable of infecting her.

[Hidden in reply to Hidden]

Oh, I read "you mum could got it of you" as meaning the reverse

[Hidden in reply to Hidden]

Dear Jeff. This is not the same as the pseudomonas that colonises our lungs. It congregates in the atmosphere in hospitals much like MRSA.People who are very poorly can get a pneumonia from it. It can even get into the gut of those immune suppressed and vulnerable.Pneumonia can start from a miriad of different bugs. Please stop giving people the idea that the pseudomonas and other bugs which colonise the damaged lungs of people with bronchiectasis is capable of being passed to others. We have enough problems to contend with and saying things like that is very offensive and based on a wrong premise.

[Sco2016 in reply to Hidden]

Sorry I'm ignorant to all this. Are you saying psuedomonas in people with something like bronchiectasis is different to same bug in healthy people.

[Hidden in reply to Sco2016]

Healthy people can have walking pneumonia and the give us pneumonia

Hows and wheres is all

Confusing

[Hidden in reply to Sco2016]

healthy people rarely become infected with pseudomonas. It attacks people who are compromised or damaged. This is how it colonises damaged lungs. It is in the atmosphere. It is not generally a person to person infection.

[Billiejean_2]

Best treatment for Pseudomonas is a month's nebulised Colomycin , plus oral Ciproxin. Some doctors just prescribe Ciproxin but having the nebulised antibiotic as well would increase the chances of snuffing it out. It's a bacterial infection that's in her lungs and not something that's transmitted from person to person.

[Hidden in reply to Billiejean_2]

I thought pseudomonas Is the one that causes pneumonia.

[Billiejean_2 in reply to Hidden]

No Jeff, it's a pesky little bug that moves in on damaged lungs and is very hard to evict. Pneumonia can of course be bacterial or viral but apart from looking similar written down, Pseudomonas and Pneumonia are totally different.

[O2Trees in reply to Hidden]

Why on earth would you think that Jeff? Truly a little knowledge can be a very dangerous thing.

[Hidden in reply to O2Trees]

Hi O2Trees Is very simple none cf bronchitissais is real name is chronic lung sepsis and or bronchial sepsis but doctors dont like to use sepsis as stricks fear in people also like i shown mrs mummy yesterday in pm that pneumonia is life threatening complication of Pseudomonas and is contagions.

As to how do i know well my lung doctor told me i wontt survive other spell of pneumiona and i also have bronchitissais and its real name is chronic lung sepsis like my lung doctor as said

[Hidden in reply to Billiejean_2]

well said Billiejean. So many people do not know the difference.

[Hidden]

Hello, You cannot catch pseudomonas from your Mum. It is one of the bugs which colonises the lungs of bronchiectasis patients. We usually take ciproxin if it gets out of hand and gives us an exacerbation. There are numerous others which can get in there and we can't infect people with those either.

The bigger danger is you giving any cold or virus you have to your Mum. There is a lot of misnformation flying about regarding people with colonising pseudomonas and the possibility of them infecting well people. My consultant has told me that research has shown that it does not. I am 63 I have had pseudo colonisation since 1986. I have never infected my children, husband or later boyfriends after I divorced him. Nor have I ever infected my friends. Anybody who peddles this nonsense is not only wrong but insensitive and cruel. I hope that puts your mind at rest.

[Sco2016 in reply to Hidden]

Thank you so much for clarifying that for me Stillstanding

[Hidden in reply to Hidden]

Well said SS. As far as I'm concerned you are the expert on bronchiestsis. You should be having had it for so long. x

[Hidden]

Hello again, how are you doing now? You had atypical pneumonia, right?

From what I've read, the standard treatment for eradication of newly-acquired pseudomonas now seems to be IV colomycin plus ciprofloxacin, as Billiejean_2 has said. Once colonised with it - meaning it's permanently resident in the lungs - it can often be effectively suppressed with a combination of nebulised colomycin and 3 x week azithromycin. This is what I've been on for years now and have been mainly well. You may read that prognosis isn't good for those colonised with it - and obviously it's best if it can be eradicated - but it totally depends on the individual. What's your mum's lung function like? Mine is good and I am careful to do daily physio properly and get a lot of exercise, so as to get as much stuff out of my lungs as possible.

[Sco2016 in reply to Hidden]

Thanks hannah. Im Contacting mums consultant tomorrow to get her an early appointment. Any advice is welcome.

[Sco2016]

I'm on the mend but it's a long slow recovery. I took ill on holiday and was admitted to hospital with community acquired pneumonia. Thought I was a gunner. Thanks for asking

[Sco2016 in reply to Sco2016]

Gonner not gunner

[O2Trees in reply to Sco2016]

Haha! shoot those pesky bacteria dead. Predictative text, dontcha love it

[Hidden in reply to Sco2016]

Hi Sco did you know you can amend your post? Click on the little down arrow underneath, click edit, amend then click edit response and it reposts with your changes in. x

[Hidden in reply to Sco2016]

community aquired pneumonia is a bummer. I had that in Jan 2015. Ihope that you feel better soon. Be kind to yourself whilst you get your strength back.x

[Hidden]

brit-thoracic.org.uk/docume... Don't read all of this, I just want to refer you to page 44 (of 64) where there's a blue table at the top (fig 4 - Eradication algorithm for Pseudomonas aeruginosa in adults) showing a suggested programme for the eradication of pseudomonas. This document is dated 2010 but is still the current "best practice" reference guide for non-cf bronchiectasis and is widely referred to by the European Bronchiectasis Registry bronchiectasis.eu/

Basically it says your dr can choose to start at step 1, ie twice-daily ciprofloxacin 750mg for 2 weeks, but if that doesn't work then step 2 is 2 weeks IVs followed by 4 weeks ciprofloxacin AND 3 months nebulised colistin. From what I've read, if bronchiectasis is anything other than mild, the tendency now is to go straight to step 2.

I hope I'm not bombarding you too much but wanted you and your mum to have all the information before you talk to the consultant.

[Jancon]

I have suffered from pseudomonas three times in 3 years. It is not contagious but colonised in the lungs. I am under a super Lung Specialist and after the first time ( when I was under a difference Specialist and hospitalised for 3 weeks. long story) I received IV therapy 3 times daily at home for 2 weeks. It does make you feel really poorly - but with determination you can overcome this. Twice-daily ciprofloxacin 750mg is best to keep in as a rescue pack when you first get an exhab together with your steroids and if this is not good enough seek further help. Always try to obtain a sputum test initially to prove that you have pseudomonas.

regards JanC

[peege]

Hello, lots of information for you regarding your mum.

I only want to say to you welcome to this wonderful British Lung Foundation forum and please look after yourself. Pneumonia can take weeks if not months to get completely well from. Whilst you're recovering from it you'll be quite vulnerable to any bug that's going. I will always take extra things to boost my immune system when it's taken a battering. I personally take: Vit C 1000mg at least twice daily, zinc, Vit D3, a good multi vit&mineral. After antibiotics I take a good probiotic capsule (not those expensive sweet drinks) for at least a couple of months to get my system back to fighting form.

If you can, have the pneumonia jab & flu jab. I had pneumonia 5 times in 18 months but only once since the jab in 2013 (like the flu jab if can't cover every stain of pneu, only the most prevalent stains.

All the best to you and do take care. Peege

[Sco2016 in reply to peege]

Thank you Peege. Its good to know we can talk and I'll take your advice.