LAM

I've been diagnosed with LAM..thought I had asthma for years if it wasn't for a bad spell of bronchitis and pleurisy I would never had that scanner showing all those cysts in my lungs..Well apart from a bunch of tests I don't know what the future holds.

Take care you guys out there xxx

[Ergendl]

Dear HappyLondon. What an awful shock for you. I had to look the condition up as I had not come across it before and found the site thelamfoundation.org/what-i... . Hoping that it progresses slowly for you. All the best, M.

[Hidden in reply to Ergendl]

Thank you :)))

[Sherry44]

I too had to look up the meaning of LAM. I am really sorry that you have this illness, and can only wish you all the best. Take care of yourself.

Best wishes

Ann

[Hidden in reply to Sherry44]

Thank you :)))

[duffer]

Hi checkout Justine Laymond on Google. I knew her when she was really bad with LAM. She is a life expert on LAM.

good luck

Joe x

[Hidden in reply to duffer]

Thanks Joe I'll do that! :))

[Offcut]

Now they have found it at least they can now look at ways to slow it down at the very least. It seems a little similar in effect, Fibrosis which is scaring in the lungs. Be positive. Which not the easiest thing to do but it will help.

BE Well

[Hidden in reply to Offcut]

Thank you Offcut, yes I keep my chin up^^

[pucageorgie]

Well, at least you have a formal diagnosis and there's no more guesswork. Make sure you send your diagnosis to the doctor here who fobbed you off!

[Hidden in reply to pucageorgie]

Haha i won't bother but I warned the GP.. I think but they are waiting for further tests.. Will let you know :))

[mskpjb]

You certainly seem to have a positive attitude Happylondon which is great. You`ve come to the right place for support or advice. When I was first put onto oxygen the help I was given was tremendous. There are some very valuable members here. Take care and stay positive, Sheila xx

[Hidden in reply to mskpjb]

Thank you Sheila I will., well we've got to.. :))

[bwp91]

So sorry to hear this but you aren't alone. There's a LAM support group - just google that. They only have three groups that meet including a particularly large one in the midlands where I live as this is rather a centre for the treatment of the disease. But, if one of these suit you, there is support in other ways via the website. Hope this helps you.

[Hidden in reply to bwp91]

Thank you for the info. I will look into it :)))

[sassy59]

I had to look it up too and wish you the very best. Sending hugs. xxxxxxx

[Hidden in reply to sassy59]

Thank you Sassy. You're kind :)))