LAM

[Nexca123]

Hi I am new to this, anyone out there with LAM

[Hidden]

Welcome to you. I think there are a couple. Type LAM and also lymphangioleiomyomatosis in the search box and posts will come up. There was a nice woman called Fran who used to post regularly but I think she left so her posts will appear as “Hidden”

[Nexca123 in reply to Hidden]

Thank you so much

[cofdrop-UK]

Hi Nexca and a very warm welcome to you. I have a different condition to you - Bronchiectasis but was involved in Patient Priorities - Bronchiectasis. ERS had already completed a Patient Priorities - LAM. I will pop the link up and if you haven’t seen it yet, then I hope you find it useful.

europeanlunginfo.org/lam

Look forward to your involvement with your new dodgy lung friends.

Love cx

[Nexca123 in reply to cofdrop-UK]

Hey thanks so much

[cofdrop-UK in reply to Nexca123]

You’re welcome.

Cx

[Hidden]

Welcome Nexca

I don't have LAM, perhaps you have already accessed BLFs pages on LAM.

Here is the link in case you have not: blf.org.uk/support-for-you/...

You may find this link helpful also: thelamfoundation.org/

Very best wishes to you.

[Hacienda]

Hi Sue, It's Me , Welcome to our great Forum, you have already been welcomed by some of us here, katinka (Zebra) will be along soon , She has LAM. A lot more Welcomes will be here during the rest of the day & Tomorrow no Doubt. Relax, enjoy all of us Warriors here Men & Woman, But Us Girls Rule Ha Ha . From around the Globe, everyone is Amazing. Love n Hugs. Carolina. XXX

[skischool]

Welcome,i have just spoken to Fran who Hidden mentioned in her reply to you and she is going to send me a useful link for you,as soon as i recieve it i will pass it on.

Best wishes Ski's and Scruff's

[Nexca123 in reply to skischool]

Thanks xxx

[skischool in reply to Nexca123]

From Fran:

They are general links for respiratory diseases, like the BFL, if she contacts them maybe there is one for LAM:

fenaer.es/

lovexair.com/

x

p.s i sent you these because your profile said you where living in Spain but there is also a very good LAM forum on facebook Fran advises.

[Nexca123]

Thanks

[Nexca123]

Thank you so much I am new to this so just looking around

[twolungs]

Hi, I realise this post is a bit old. I have Lam. There is a UK charity called Lam Action and an active private facebook group called Lam Talk. Hope this helps.