Grey, grey and more grey I love a September when the sun still has some warmth and the colours begin to turn and the bountiful orchArds around where I live come into being but the last few days find my mood falling.
Not many more days for us before we fly off hopefully to some sun in California . Will be slightly on edge when we are away with my husband's health but the break will do us both good. In general he seems not too bad apart from the harrowing coughing and sputum production.... The lack of sleep doesn't help either of us I had hope that the taking of Azithromycin would have helped but we both feel that the cough has worsened while he has been on these. We now seem to have been forgotten by the NHS chest clinic but upon my return I intend to contact them for,an appointment and to see how I can go about getting a referral to the aspergillosis clinic in Manchester . In the meantime I hope to see some sun.
Marion x
Lung transplant clinic appointment 
Had to cancel my Lung function tests
When the drugs don’t work
Sats low during flight + CFTR variant unknown significance
