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NSIP - Non-Specific Interstitial Pneumonia

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9 years ago•8 Replies

Just got diagnosed with Non-Specific Interstitial Pneumonia (Cellular & Fibrotic), confusion has set in already. Nobody seem's to know about this condition in my area...

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8 Replies

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9 years ago

Could be asbestos caused that BUT trying to pin doc's down is task inits self UNLESS you have worked in what medical

Profession like to term high risk occupation and for a life time.

Greer9 years ago

So has my husband just been diagnosed with it. We would also be grateful to hear from others who have experience of handling this disease.

markl66 in reply to Greer9 years ago

Although I was diagnosed with IPF I have noticed that my consultant also called it

Usual Interstitial Pneumonitis on a letter to a 3rd party once. This sounds very similar to your condition. Very confusing all round

Greer in reply to markl669 years ago

My husband seems at least at the moment not to be getting any worse. I gather that the initial diagnosis (idiopathic pulmonary fibrosis) is more serious than NSIP) and that it is better NOT to treat the NSIP unless it progresses because the treatment is unpleasant. Does anyone know what sort of treatment that might be?

9 years ago

Hi, I emailed the BLF and they say telephone the helpline, will be doing that on monday, thanks.

Northernfi9 years ago

Hi. My husband was diagnosed with IPF originally, then told it was NSIP. We joined a local IPF support group and it is very helpful. One month we have a talk usually by a health professional and every second is a social event, so we are getting to know people in similar situations. The BLF have some useful information they can give you too.

Greer9 years ago

Does anyone know of support groups for bronchiectasis? I just want to learn what I can for myself. (I have bronchiectasis and my husband NSIP). I was diagnosed with bronchiectasis January 2015 and have just come down with another chest infection for which my GP gave me clarithromycin 500 mg for a week. It is making me feel AWFUL but if it does the trick I will be grateful. Scary to have this condition and find it hard to throw off infections. Has anyone tried Chinese herbal medicine?