As some of you may remember I am intolerant to so many drugs,
including many abs. Also colonised with HI and prior to going on
nebbed Tobramycin (and that isn't without probs, although the SOB is
spasmodic and not as dramatic as the nebbed colomycin which ended
in 5*) started with an infection 5-7 days following every course of high
lingthy dose of abs, which the spec was sensitive to. With every course
of abs I have hurrendous stomach pain and have to go to the loo 5 or 6
times with the runs. Sorry to be graphic.
When I first tried Azith a long time ago, shortly after taking 1 tablet I
had excrutiating stomach cramps and the rest. Tried on a few
occasions and it was always the same.
After having the nebbed Tobra I asked my con if he thought as the GI
had improved a little with not having a direct hit with abs should I try
Azith again. He wanted me to try them but 1 twice a week - to try and
control my asthma better as he stated he had never examined me but
what I had a wheeze. Isn't that amazing for such a busy man who
must listen to hundreds of chests to know that - he wasn't looking at
his notes.
Anyway I have had 6 in all. After the first one I had no effects at all
and thought it a miracle, maybe I could have them after all. The next
day it all kicked off. Thought it might settle so battled on. Well now it
is just awful. I have reflux and heartburn pretty much all the time and
some of the time pains and runs and stomach ache. Thing is my chest
and sob did improve. Isn't it a b*****. When my matron came last
week she noted my temp was up and asked if I wanted her to take a
sample. My gunk is just my usual crap pale green and I said no 'cos
my chest felt ok. Temp went down. Tuesday temp went up again and
my chest doesn't feel great. It has been spiking from low grade high to
normal. Gunk not bad colour. I am really not sure if the temp are due
to the GI probs. I feel as though the whole of my GI tract is
inflammed.
Decided not to take my Azith today and concerned chest will now kick
off and I will have to go back on abs. Concerned because I don't feel
my GI can tolerate abs in it's present state.
Doesn't this stuff always happen when you have commitments. My
sister's birthday tomorrow and we are going for a meal (oh the
thought), with the little one and then sis, my daughter and I are going
to see Alfie Boe in the open air. Next week we have a spa day with a
stay over in the hotel and on the Tuesday The Railway Children at the
railway museum in York. Worried I will miss out again!
Next week I have to see the GI dietician, who was going to liaise with
another gi dietician and a respiratory dietician - so see what she comes
up with. After that I am to collect my needles and shrynges for my
next bout of Tobra which starts a week Sunday. I will speak to the
nurses whilst there.
So what to do if lungs kick off and I have to take oral abs. I guess I
will have no choice. Feel between a rock and a hard place.
Sorry to ramble on. Any ideas welcome but if not it is just good to get
it out to folks who understand what I am talking about. It's a lonely
place sometimes.
cx
Any ideas please
Any ideas? 
Any ideas welcome..
Any ideas?
