Hello Everyone
After chatting with Tony yesterday , I got curious about how many people have kept
their numbers stable. Also for how long. Do you feel that you did anything to influence them being stable? ( If you didnt see Tonys post you should ck. It out. Hes very entertaining , as always )
Have a great day everyone
Rubyxx 😊 😊
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Hi Ruby, i was dxd in 2000, i think FEV1 in 50s then; it went down for a few years, then i kept it at about 41 for about 4 years, then started intensity exercises suggested by a healer in the US (my version was climbing up and down stairs as quick as i could do it) then for another two years it was at 47%.
Now, since reflux has got worse (may be the cause, could be just a step down which can apparently happen) it's around 37-38% even though i do even more exercise, very annoying 
Consultant review coming up in April.
How about you Ruby? 
Hi o2trees
I was dxd at a health fair in 2007 with a fev1 of 68. Then in 2008 I was 67, 20012- 74, 2013-69. Then I had an 12 mm cancer removed by wedge. ( march will be 2 yrs. On that) so my next test I dropped down to 62. Maybe because of the
wedge, don't know. So I'm waiting to get another test done. Plus I have to get a scan . Can't say I do alot of good things I am still doing office cleaning so I'm active. The one job I do go up and down the stairs three times. I keep an eye on my oxygen. My diffusion was 67% on my last test. I don't really get out of breath. Just have one inhaler. Qvar- I taKe one puff before I work.its a childs dosage actually.All in all I feel pretty good. Are you on oxygen?
Rubyxx
Im glad you're feeling good Ruby, hope that continues and that the test and scan are ok :). Stairs are great exercise.
Yes, on ambulatory oxygen when I'm out walking (as opposed to strolling ), have to see about whether i can do without it in the summer - i use 2 lpm currently. Also use it for flying, and when i have exacerbations. Not really breathless at home, other than when ill. But I've always been breathless outside, even before needing oxygen, and even with medication since i have had severe asthma for a long time as well - Im kind of used to it now.
My consultant says that 5% either way (I assume he means either way from the last one) is not significant as it might be the machine. i never understand this, since i was stable for so long, then better for two years after adding in more exercise.
I think he's trying to make me feel better when the reading is worse which it has been the last two years. I might ask to have some new medication and see if things improve on that.
I was diagnosed with copd around 6 years ago with a lung function of 62%. The next one I had after being given proper meds was 73%. Last year it was 66%. Not doing anything differently. x
I am not really able to read my tests and come to a conclusion but I believe I have 39% diffusion capacity....I am not even sure I know what that means. Even after going to rehabilitation I know very little. I did find out that they do not use peak flow and I do not have a way of checking that. All I know is I have severe emphysema/copd and am on oxygen for exertion and supposed to have it for sleep but cannot afford it. I will have to wait until August and I asked for a sleep study any way. I do know that my oxygen drops easily on some days and not on others. When it drops below 88% I get all worried. I also learned that the purpose of the oxygen is in attempt to protect the heart . One thing at a time I will understand the things I need to understand...fev- 1 is a subject I am learning that different areas have different values so it is hard to compare with others, however the test gives a reference range. Well toodles for now.
So you don't know your fev1? Did they give you your results?
Rubyxx 😊
I have the range and results yes the lab report says FEV-1 liters-reference 2.54 pre albuteroll-.88; % reference- 34 ; post albuterol-.94 % ; reference-37 % ; change - 10.
What all of that means is the after albuterol I had a 10% change. Rehab said it indicated a slight amount of asthma component to my illness.
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Waiting anxiously for CT results
result of consultant appointment 
Help with confusing PFT results 
Fit to Fly certificate /test 
Physical Activity & COPD resulting in sickness
