in 2009 I had a very bad chest infection, after antibiotics it still did not clear. Later I was sent to see a chest specialist. The specialist hummed and hawed as to a diagnosis and recommended further tests. He added a line to the letter to my GP stating that 'he did not understand the significance of the aspergillus antibodies in my blood'. Now I have been diagnosed with Severe COPD in 2014, again I was tested for aspergillus, and guess what.....I still have these antibodies.
Having spoken to the BLF nurse, she recommended that I get in touch with the National Aspergillus Centre in Manchester, which I did, they have told me to get a GP referral. I asked for the referral but my GP said it has to go before a committee for approval (I live in Scotland).
Anyone else have restrictions put on them by Committee's? Has anyone had resting for Aspergillus?
Annieosb
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Annieosb
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Well that sounds like a nightmare! I can't give you any advise but I wonder if the helpline can advise - You can call the helpline on 03000 030 555 Lines are open Monday to Friday from 9am to 5pm. The very best of luck TAD xxx
Thanks Tad it was the helpline that said I should be retested for aspergillus. Now just waiting to see the GP again tomorrow, to see if tere is a way around it apart from me having to fund it. So much for working all my life and working for years for NHS.
About five years ago I was getting numerous chest infections etc went to gp's and then eventually referred to hospital where astma was diagnosed, during this time I had a skin prick test carried out and aspergilloses was seen as something I was allergic to but no more was said by the consultant so I thought nothing of it.
Last year it all came to a head awful chest infections, coughing up blood extreme chest pain and worrying trips to the x-ray department only then referred to hospital where I have been diagnosed with allergic bronchpulmonary aspergilloses and bronchiectasis, I am only saying all this to make you persevere with your referral as I think if someone had picked up on my tests earlier my symptoms might have been caught before I had to go through so much I'll health.
Hi Modola, What a terrible situation for you. Glad you have a diagnosis but what a journey. Even the so called experts really have not a clue sometimes and sadly my faith in doctors is going down the pan.
Yes I am keeping at it as I have never had the classic symptoms of COPD. However, I am now in touch with the National Aspergillosis Centre in Manchester where I hope to learn more of my condition.
Hi Annieosb, I understand your feelings towards the doctors it can be a very lonely experience when you don't get any answers and your just left in limbo with conflicting opinions - i wish you all the very best and I hope you get more joy with the Aspergillosis Centre.
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Banging my head against a brick wall. Grrrrrr
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