Lung coil implants.: Has anyone thought... - Lung Conditions C...

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Lung coil implants.

Mikefever profile image
18 Replies

Has anyone thought about coil implants ?, or has anyone got anymore information about this subject. I have a FEV 1 of 18%, I am thinking now this is my only chance of a better life.

Happy New year all, please take care. :-)

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Mikefever profile image
Mikefever
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18 Replies
stone-UK profile image
stone-UK

Hi

Type " lung coils " into search button on right of green bar then press enter or yor keyboard. Return/ go / search on other Devizes .

Mikefever profile image
Mikefever in reply tostone-UK

Thanks for yesterday,s info:-)

Puffthemagicdragon profile image
Puffthemagicdragon

I've been watching Google on the subject for a few years now. Hopefully they will be available on the NHS in the not too distant future. I, for one, would like it done.

Mikefever profile image
Mikefever in reply toPuffthemagicdragon

Thanks Puffthemagicdragon, :-)

I believe that a middle age man in his fifties had them implanted on nhs this year 2014 for emphysema , article was in dailymail this year. Its only for emphysema not bronchitis. Type it into google search you can find article hospital and consultant perfotming it.

Mikefever profile image
Mikefever in reply to

Thanks ponkmonster. :-)

Puffthemagicdragon profile image
Puffthemagicdragon

There was a chap on The One Show who had it done recently. It was done at The Royal Brompton and there were trials for 50 people. The programme on Iplayer has passed now so it's not viewable.

Mikefever profile image
Mikefever

Many thanks fibberti. :-)

stillmovin profile image
stillmovin

mw77 if you can get to see a consultant at the Royal Brompton Hospital in London you would get more information. I don't know about lung coils but will be keeping my ears open and the people who have replied to you already have helful comments. I just know the Royal Brompton seems to be one of the leading hospitals for dealing with COPD and that could the best place to start. I do wish you a much healthier and happier 2015, best wishes, stillmovin1 xx

Mikefever profile image
Mikefever in reply tostillmovin

Thanks stillmovin 1best wishes for 2015 xx

FarmerD profile image
FarmerD

Hello MW,I have an appointment with Dr. Shah,the consultant doing trials, in February.Valves have been mentioned as i,m Not fit enough for lung reduction,my Fev is 19%.I,ve just had another appointment brought forward to January22nd so should find out a bit more then.Will let you know what is said.Regards D.

Mikefever profile image
Mikefever in reply toFarmerD

Thanks Farmer D, you know all the time I have been on this wonderful site your FEV1 is the closest to mine (18%).At times it is really scary, at the moment I feel that I am deteriorating to fast . Best of luck with your appointment. I hope all goes well.

Has I say I am pining my hopes on these lung coils.

Please keep me informed. Mike:-)

FarmerD profile image
FarmerD in reply toMikefever

Hi Mike,the last lung function test I had which was at my first appointment after referral to the BROMPTON my Fev had gone up 1%,,this might be just a different machine but I,lol take it as an improvement.Also having been put back on aminophyline which did nothing first time round I found a great improvement so don,t give up hope things change all the time.Good health for 2015 and beyond,regards D. PS Do you live in Wales?If so you might be my brother lol :D

Mikefever profile image
Mikefever in reply toFarmerD

Thanks Farmer D, no I do not live in Wales.:-)

seyre profile image
seyre

I saw a consultant at wythenshawe hospital about 4 years ago. My lung were not fit enough for lung reduction and coils were not mentioned. He agreed to admit me for suitability for a transplant, eventually I went on the list in October 2012. I had a false call in 2013 but all went ahead in January 2014. I have just had the best Christmas in years,last Christmas I was in a wheelchair. To anyone who gets the opportunity go for it,there are no guarantees but as my consultant said to me "there is only one guarantee in life and that's we are going to die". Very true. Good luck to all, take whatever is offered but keep as fit as you can V.i.p. Happy new year. Sue

Mikefever profile image
Mikefever in reply toseyre

Thanks Sue. Sorry I must be thick ,did you have a transplant? :-)

seyre profile image
seyre

Hi, yes I did have a transplant double lung. Sorry didn't explain very well. Sue

Mikefever profile image
Mikefever in reply toseyre

Thanks for clearing that up for me. I think your very brave , keep the good work up .

Mike. Sue keep in touch. :-)

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