I have bronchiectasis and even when I have not got an infection I often have pain. I take painkillers but have no other medication.

[Lyd12]

has anyone found something that helps with pain, I occasionally cough up blood.

[TEDTHEBEAR]

People with bronc often have chest pain even when theres no infection. I do and I take co codamol for it. I think after time your body gets immune to painkillers though. Do you not have any inhalers or any other meds at all for it ? as the inhalers help.

[Lyd12]

thanks for help. I will ask doctor for inhaler. I was diagnosed about six years ago after a sudden first bleed. I had a bronchoscopy and two ct scans. got some breathing exercises from the physio after asking would that help, and then no follow up from consultant, just gp when I have infections.

[peege in reply to Lyd12]

Hi Lyd12, I think you given them 6 years off so now it's your turn. Go back and tell them enoughs enough and you'd now like some help and support with your disease.

I don't have bronch myself but I do know that the service you've had so far just isn't good enough.

Wishing you all the very best. You could always ring the BLF helpline, they are very very good at advising what to expect from your medics. Your life in their hands

Good luck, let us know how you get on.

[Hidden]

Hi, As well as Spiriva inhaler, Seretide 250 inhaler, and Salbutomol inhaler, I have 4 mucodyne capsules, this makes sputum more runny so it is easier to cough up. This might help with chest pain.

[cofdrop-UK]

Hi Lyd

Feel you should definitely ask you GP to refer you back to a respiratory consultant especially one with a special interest in cf/bronchiectasis. It doesn't sound to me as if your bronch is being well managed and you should be monitored by a consultant in any event with bronch.

Good luck

cx

[Offcut]

Now is the time to be firm with your GP. Insist on further tests or a consultant appointment. I take co-codamol 30 and I am getting used to them. But I cannot get stronger!

[Lyd12]

I am very touched by everyone's interest and concern for my problems. thanks so much. It is isolating when those around you cannot understand how you feel. I am 80 now and more tests are not too welcome! I did not feel the consultant I saw was interested. she said "don't look so worried, it's only Bronchiectasis".

[cofdrop-UK]

I wouldn't like to have seen that particular consultant either - how patronising to trivialise bronchiectasis rather than being proactive - probably much easier than doing her job.

Not good enough for you sweetheart - you deserve better. Let us know the name of a city you have access to and someone will probably be able to recommend a good respiratory consultant with a special interest in cf/bronchiectasis, then you can ask your GP to refer you to that particular specialist.

Love cx

[Lyd12 in reply to cofdrop-UK]

I live near Hitchin so Stevenage or Welwyn Garden city are near.

[cofdrop-UK in reply to Lyd12]

Your best option, although perhaps not the easiest would without doubt be

London (West)

Royal Brompton Hospital

Cystic Fibrosis Unit

Sydney Street, London SW3 6NP

020 7352 8121

Professor Diana Bilton

Dr Nicholas

Dr Khin Gyi

Dr Andrew Jones

Excellent specialist thoracic centre, especially as far as you are concerned with non cf bronchiectasis.

They do have a cystic fibrosis centre at QE Welwyn Garden, but when you click on the consultants the ones they show have special interests in sleep, asthma, etc., but take a look for yourself sweet

nhs.uk/Services/hospitals/S...

Please let us know how you get on. Good luck.

love cx

[Claudine]

Really think you should be on some meds. Insist someone is pro-active with you. Physios can be very helpful re helping to get the mucus up - that's the most important part of bronchiectasis otherwise it collects and can become compacted. PAINKILLERS ARE NOT GOOD ENOUGH!