I just very suddenly started to feel very down earlier this evening and its getting worse. This is not like me at all. Like anyone else I can get fed up for half an hour and manage to get myself out of it. People come to me to cheer them up and tell me I am a tonic!! I think I feel isolated because my friends have lots of problems and usually come to me and I am not use to feeling so useless. My best friends lost their daughter just before Christmas and I would usually talk to them in extreme situations but obviously cannot at the moment. I am not yet fully diagnosed except for Asthma and copd. I am waiting to see a consultant about bronchiectasis, but have been waiting so long that my cough is so improved as has the breathlessness thanks to medication that I think he'll think I am exaggerating or something. Also I coughed up blood last night for the third time. It wasn't a great lot but the most I have coughed up so far. I phoned my GP who said she would arrange another chest x-ray but unless there was something on it she would not change my appointment to urgent. I have also a month to wait until I see a dietician. This is after having practically no appetite for over a year and getting by on toast and cheese. I want to eat but I just can't. I forced some soup down the other day. I am now staggering quite a bit when I move about, am sleeping during the day most days and feel so exhausted that I am in tears. I feel like I am fading away. Sorry to sound melodramatic. Again that is not my way, in fact I am always getting into trouble for understating things. I just don't see how much more my body can take. I am also having seizures, but I don't really mention it much to the doctor unless she asks me, which is my fault I suppose. I am so sorry everyone for lumbering you with my troubles when you have your own which are probably far worse than mine. Thanks for reading, and I will probably be back to my normal self after a sleep. Bless you all and I really wish you better health and lots of fun. xx
Hi everyone, I don't really have a qu... - Lung Conditions C...
Hi everyone, I don't really have a question. For some unknown reason I feel really down tonight and don't really have anyone to talk to.
Oh Huggs, you need some big hugs. Have a big hug from me. It is terrible to feel so low, I do as well sometimes. I have to force myself to eat mainly because this fatigue takes my appetite away. I cook for my family then I'm so tired I don't fancy it. You should tell your friends you are feeling so low. I'm like you support all those around me but just can't ask for help for yourself or couldn't until recently. I was amazed at the response. Try it. Please tell your Doctor how you are feeling and about the seizures. No way are you lumbering anyone. A problem shared is a problem halved. Please take care and keep me informed how you are feeling. xx
Thank you so much for caring Suzy. Thanks also for the hug. I'm in tears again now. I feel so daft!!
well huggs that's us all daft and in tears,you want no how many times ive cryed ,but as your not eatin proper be careful with your stagerin ,as you could have a bad fall,and try to eat a lttle more,and write all this down for your doctor,you live alone so extra care is needed,its not easy on your own I no that myself,keep chattin if it makes you feel any better,xxxmembers will understand and reply,helps to pass the time ,xxxday or night,
Thank you twiceshy3 for caring and understanding. In fact all who have replied have shown me compassion, understanding and caring. Thank you all. The problem with me not eating is that I don't think the doctors etc believe me because I was overweight before and I have only lost half a stone in a year. Now, that I am seriously indignant about.!!!
some doctors believe what thay want to .its up to you to make them listen to your concerns,good luck,xxx
Oh sweatheart dont apologise for how you feel !! You arent well and need some help yourself. .First of all ring dr,s in morning and tell him or her exactly what you have told us tonight. ! If you not strong enough get someone to ring them for you. .Wright your symptims down and take it with you ...i allways do that otherwise i fkrget something. . Respiratory disease is an exhausting illness and affects all aspects of your life. Things build up and before you know where you are you are in that black hole. .We all need help at times and there is no shame in asking for it. People will be pleased to hhelp you. I hope things improve ffor you. Good luck. ....now ring docs first thing. !!!! Nite n bless. Sue. Xxx
Hi hugs, don't want to get on your case, but yes, definitely tell all to the dr. Living with any chronic disease is hard. We can't be 'up', all the time. Even well people have their down times. I have bad times and like you, it is not the side of me that people ever see. I am usually the joker, and the strong one. You have a lot on your mind with your medical investigations, and that must be a worry. Sometimes when we are in limbo, we cope better with diagnosis, as we know 'where we are going'. Wish I could say something to help you immediately, but you know we are always here if you need someone to talk to. I do hope you feel better in the morning, but you still need to be straight with your Drs. Take care.
Thank you 6161 and don't worry you are not getting on my case at all! You are quite right that I should be telling the doctor more. Its just that there are a few serious things going on and I was trying to get them sorted out first. You made a good point about being in limbo. Like most people I hate it. I would much rather know the truth even if it was the worst news possible, because then you can deal with it properly and be pro-active and do things. You and everyone who has replied has helped me, Truly you all have, and I know I can come on anytime and get help. I hope I can help some of you one day. Keep well and take care and lots of hugs from me to everyone. xx
Awe huggs please don't apologise - it's the best thing for you to offload to your friends - goodness knows most of us need to do it sometimes and I am sure you would be one of the first to be there to support us.
So sorry hun you are feeling so horrid. It really isn't surprising. Agree your doctor needs to know about the seizures and feel you should ask for an appointment, or at least a telephone consultation tomorrow.
Hope you feel in a better space soon hun.
Sending you lots of virtual hugs.
With love
cx
Thanks cofdrop for your caring and understanding. I know everyone has gone through this many times. Its just that I am so use to coping and not being useless. I am sure after a nights sleep I will feel better and to be honest I already feel a good bit happier because of all you caring people. Hugs from me to you all as well.xx
Huggs Cariad, we have all if we,re honest, been close to where you are right now, feeling like we,re coming to the end, especially at the end of winter, wiped out & thinking we,ll never get to the end of another day, or even want to, but, then spring comes, we slowly start recovering, we find ourselves laughing about something silly on the TV or here or that a friend said,
There is no shame in feeling like this, after all when you consider just how sick many here are, well, the fact that many come & put jokes up, just goes to show how we get by, you,ve struggled for a long time eh? before pouring that out, & now it,s out, you can make a list of the things that scare you most, the things you want answers to & either take it to your doc or, post it, & then just let them worry for a while, in the mean time, I recommend you click the humor section, & trawl through the jokes till you find one that tickles your funny bone,
Be gentle with yourself, you are allowed to cry, scream & rant, you have every reason to do so when ever you have the breath to spare 
& although you may feel it sometimes, you are not alone,
Be an angel & ring the helpline in morning, the staff will be of enormous help,
Take care
Karen xxx
Thanks Karen (I'm not going to call you a silly witch!). You have given me a lot of good advice and I will struggle through this just like everybody else. We have no choice after all other than to take advice from the health people and other sufferers. Thank you for understanding and I realise that there are an awful lot of people worse off than me and that makes me feel even guiltier. As I have said above you have all made me feel better by responding to my needs at this moment, and in the morning I will be my usual self I hope. Lots of hugs all round, xxx
Lots of hugs for ((((((((huggs)))))))).
The prescription for the day, and all other days is loads of hugs to everybody. A hug goes a long way. I don't think we hug enough so lets change all that! See I'm feeling more positive already. xxx
Hi Huggs
So sorry that you are feeling down. It sounds as if your respiratory problems are now more under control than they were a couple of months ago That is one positive. There are problems with your diet . Could you try to eat other things that you really like so as to provide a bit of variety and if you don't already , take a good multivitamin. You are seeing a dietician in a month .Again another positive step .
You mentioned in a previous post that you suffer from epilepsy. Is this normally well controlled ? As you mention here that you are having seizures. You really need to discuss this with your doctor.
I know how you feel about always appearing strong and being the one to cheer others up. However you are obviously a very intelligent person with a great deal of self awareness. You have probably overcome many problems in the past and will do so again.
I really hope that you feel better in the morning and if not please phone the helpline as others have suggested.
As you can see many people on the site want to give you support .
Best wishes Coastal .
Thanks Coastal for replying and your kind words, as well as your very good advice. You are right in that I have overcome many things in the past and will do again. I had not too bad a nights sleep, considering I had a cat on my chest! I intend phoning the BLF nurses. Thanks again for your support.xx
Oh sweetie that's a lot to carry by yourself. I am sending you the biggest hug with lots of love. Have a good nights sleep and I hope you feel better in the morning.. Please make an appointment to see your doctor she needs to know about your seizures also my mother in law was given food supplement prescribed by the doctor. Try the helpline tomorrow click on the red balloon for some advise about the blood you are coughing up. Please let me know how you are feeling in the morning sleep well TAD xxxxxxx
Hi TAD. Thanks for your giant hug and words of support which are very much appreciated. I intend phoning the BLF nurses in a little while. I had a reasonable sleep, considering my cat slept on my chest all night. He has started doing that recently. I wonder if its because he knows there's something wrong, as animals are so sensitive to our bodies and moods. I feel a bit better this morning so please don't worry. I am waiting to hear from our local hospital when I have to go up for an x-ray. hugs and xx
I am so pleased to hear that you feel a bit better. This flipping weather isn't helping! Don't forget we are all here for you. No need to feel on your own. Have you been offered a pulmonary rehab course and/or is there a breathe easy group in your area? Take good care, TAD xx
Hi Tad, Thanks for getting back to me. I have been offered a pulmonary rehab course. The trouble is that I live on an island with limited resources. In fact I was at physio due to neck problems when he mentioned his colleague ran these courses. On my next neck visit I saw the copd physio as well!! He basically just talked about my breathing and gave me leaflets and a book. He said there were no courses on at the moment but said I was top of the list when the next one started. I can't wait! That's one of the drawbacks of living on a beautiful island, is that there are not the staff that would be available at a larger hospital. To be honest, I was surprised that they even did a copd clinic here. He said it lasts 8 weeks and told me all about it, and the various experts that would come and we could ask questions. He said it shouldn't be too long as they are just waiting for a respiratory nurse. There is one, but she is doing something else! They have their own rules here! I have also had a chest x-ray today but don't know when I'll here about that. Gosh, I do rabbit on, even when I'm writing!! A great big hug to you Tad for caring. xx
I hope your desert island inspires you. Do you paint, draw, take photos, or perhaps, you just write. I would be tempted to write about the island. How this girl decided to move to it. which sunset attracted her to it. OOOOOh! What a novel can come out if this!!!!
Hi helingmic ha ha ha. Its not exactly what you would call a desert island. In fact its wet and windy much of the time. Even then its beautiful. When the sun is out I think its the most beautiful place on earth. I am lucky in that I have a sea view (I've always adored the sea) and can look out on the stormiest days and just marvel at what I see. Its actually a bit warmer here because we grow palm trees, but it doesn't feel like it. I would love to paint or draw but I am the worst at that in the world. I do take photos a lot and a do a bit of writing, nothing like a novel though. We have had writers over the years living here and had a few celebrities (well known) who either visit or have holiday homes here. I really don't know if any novels have come which are based here. I will tell you though, that there is no need for anyone here to watch the soaps!! Apart from railway crashes (we don't have a railway, and multiple murders, the soaps don't get a look in!!! Its true. There are absolutely beautiful sunsets here and I am grateful that I have had a few published in our local news rag. I think you should write that novel helinmic and if you need local detail you could always ask me. How about it?
Bless you Huggs. You sound like a great person who everyone comes to when they have a problem. People probably forget sometimes that you have your needs as well. Never apologise for coming on here when you are feeling down. You give some very good advice to others here and I think you are a very good person.. What a burdon you are carrying at the moment. No wonder you feel so down. I would be on the floor by now with all that. Wishing you all the best and come back anytime you need to sweetheart. xx
Oh my goodness you really sound fed up. Maybe its time to tell your friends just how you feel for a change and let them assist you. I know what you mean though I have recently come out after lung surgery and as I am a widow and live alone I have had to rely on my girls and grandsons to do shopping etc and it does get me down when I have been absolutely dependant on myself and also been there for them. They do say that this is their way of thanking me for everything they do but it doesn't make me feel any better. Its weird Ive had a really bad year but should be feeling great now as health a bit better, Ive managed to finally stop smoking,(well at least for last 6 weeks), put a little bit of the 4stone I lost back on and so should be feeling on top of the world but like you say I could sleep for England and still don't have much energy.
Oh sorry hun this was supposed to make you feel better not me having a moan lol.
Ok things to do to make you feel better.
1st tell Doctor all your symptons don't be fobbed off tell her everything and tell her how down you feel. There might be something they can give you to help you over this little hiccup.
2nd If air pollution better tomorrow get yourself dressed up go for a little walk even if is to the end of the road and back.
3rd Try and find 1 thing an hour to be grateful for. no matter how small it may feel but it really does make you feel a lot better.
please please accept hugs and kisses and hope you feel better really soon
xxxxxxxxxxxxx
Patxxxxxxxxxx
Hi Nanny, You sound as if you have had a really horrible time. Don't feel bad about your family helping you when you need it as I am sure you have done loads for them ( as well as bringing them up)! over the years. I am feeling a bit better this morning and will phone the BLF nurses in a little while. I am grateful that you took the time to reply and send you hugs and kisses xxx I hope you keep better.
Evening.
I'm the same with the depression it just comes like wave over you when you least expect it, but tomorrow is another day. Never worry about having a good old moan or cry makes you feel better. If you cant eat why not ask the doctor for Ensure drinks like milkshakes that's what I have I've never been above 7st in my life.
Kim xxx
Thanks Kim. I have already tried the milkshakes which I liked but stopped taking them when I read that people who produce a lot of mucous should avoid dairy products. I even asked in our local pharmacy about alternatives but they had nothing. I am just trying to hang on until I see the dietician and hope that she can work some miracles! I have tried soup, yoghurt etc at different times. A couple of times I have managed scrambled egg. Thanks again Kim and I hope you keep well. xx
My dietician told me to put powered milk in everything I can, he said it's sneeky calories does work.
Kim xxx
Hi, just to say, there are fruity reinforced drinks, non dairy called Fortisips (fortified, not reinforced doh) xx
Thanks peeg. Its certainly worth a try. You know I live on an island and resources (or the variety) of produce are limited to say the least. Do you know if chemists stock them or supermarkets. If not I'll look on line. You take care now, and just to let you know the sun was shining on my island today --- in between the rain! Take carexx
Chemists for sure although they may be prescription too.
Your poor body must be worn out. I do hope you can slowly build yourself up.
How about a little lightly scrambled egg with the toast or some tasty ready made soups from M&S - if you have one.
Glad the sun shone for you today, it certainly lifts the spirits xx
A huge ((((HUG)))) from me too. And some info and advice. Not everybody realises that depression is often associated with COPD. The BLF do a leaflet - blf.org.uk/Page/Coping-with... and the NICE organisation also have help and advice available and free to download - nice.org.uk/nicemedia/pdf/C...
It's not unusual to feel as you are feeling and your poor diet will not be helping. Many with COPD do not eat well, running out of breath and being unable to finish meals, burning lots more calories because everything takes more energy. Just another month to see the dietician and that could make a big difference for you. So try to stay positive but also talk to your GP about your feelings. You can ring the BLF and chat with one of the nurses first if that will make it easier. They can advise on the best way to approach your GP to get the help. I wish you luck, and I wish you peace. xx
Hi Huggs. I'm sorry your feeling so down. You sound so like me a year ago, I had to talk to you.
I've always been the one family and friends comes to when they needed help. I've aIways been able to be strong for others, but when for the first time in my life, I needed to be strong for myself, it just wasn't there. I was already on 40 mg of citalopram and it stopped working.
I couldn't show anyone how I was feeling. I'd lost my lovely partner to lung cancer just 3 weeks before being diagnosed with COPD. It was so quick and a terrible shock to us all. It struck home to me when you said ' you feel your fading away. ' I felt like that and at one point, started to calmly give in to it. I'd gotten so weak, I couldn't get out of bed for 3 days. I lost 2 stone in weight and was dizzy and exhausted. It was an awful place to be. I'd hit rock bottom and I knew if I didn't ask for help, I'd had it. Somhow, I managed to force myself to have one more go at fighting to get better.
I managed to express how I felt to the Dr and he finally realised I was in a really bad way mentally and from then on, he was very supportive. He sent me to councelling, kept trying different antidepressants until one finally worked. It's been a long slog, but I know now that I should have got help much sooner. So please don't let yourself get any lower, get help now.
One of the times I went to the docter he looked at me and said. " Things will get better." and at the time, I didn't believe him, but they have and they will for you too.
I didn't want to let my family know how low I felt and how scared I was. But I confided in my cousin. She was fantastic, (and still is.)
So, I agree with nannypat, pick one of your closest friends or a family member and confide in them. You'll probably be surprised how supportive they will be. I hope you feel a bit stronger in the morning, we'll be here for you in the mean time. xx
Thank you so much for caring enough to reply and your advice. I am so sorry that you have had such a terrible time you and as you have found out things do improve, and, we all find our own ways to cope and adjust. `I will be phoning the BLF nurses in a little while. (Once I have thanked everyone). Sending you hugs and xx
A big huggy from me,as well! What a horrible time you're having,I think everyone has been there at different times,some more than others,do remember you are not alone!
It is important to be very clear about how you're feeling to your Doctor,& you must discuss your seizures,as they can be controlled,& it's urgent,that your Doc.knows about them.
You have been given wonderful advice,& support,from so many.
Do let us know how you go,& make sure you see that dietician,the brain needs food,liquid or otherwise,we can't function properly without the right nutrients!
Lots of love & good wishes to you,Wendells xxx
Thanks, Wendells for replying and for your good advice as well as the big hug. You are right in that I have been given wonderful support, advice and kindness from so many. It was Coastal who pointed out that my symptoms have improved in the past couple of months and I will be seeing the dietician in a month, so its just a matter of digging in and keeping going. I just wish there was something I could do now instead of waiting on appointments! I guess we all feel like that! I will continue to try and eat and tempt my taste buds. Hope you are keeping better and sending you hugs and xxx
Oh bless you huggs.. we are here for you anytime theres always someone on here to help or just simply to give you a computer "cuddle" love Judith xxxxxx
Thank you Judith, it means a lot to me and just to let you know I am feeling a bit better this morning. I don't usually get down so I don't suppose it will be for long. I have sent you some cyberhugs and xx so hope you have got them ok!
Bless you Huggs. I am so glad you feel a bit better after a night's sleep and trust you will feel even more so after your chat with the BLF nurse. I've not been with these special people (who all understand what you've been going through) for long but since joining this group, I have received so much support and we are all here for you too. A million hugs for you and take good care. Fleur x
Thanks fleur24 for taking the time to reply. I do feel a bit better today, but still at the stage where I could burst into tears at nothing! I'm sure you know what I mean. Have just been at the hospital for a chest x-ray so have not had a change to phone the BFL nurses yet. I am going to do it within the next half an hour. Thanks for caring and I also send you lots of hugs and xxx
Hi Huggs,
Never say sorry for saying just what you feel. We all get down now and again, we all need that shoulder to cry on. I don't think anyone on this site will think any the less of you or think your silly, I don't normally write on here but I read what people say most days, if I think they need help then I put my ore in so to speak. It shows just how people regard your friendship and spring to your assistance by the number of replys that you have received. I do hope that this reply and the others has lifted your spirits. Chin up Huggs your needed on here.. God bless you always
Best regards
Keith
Thank you Everest for your kind words of support and comfort. I am relatively new to this site and am absolutely blown away by everyone who has taken the time to reply. You and everyone else has lifted my spirits. I'm not quite there yet, but I think by tomorrow I'll be back to my normal self. I think I had been putting on a face (as we all do) for so long that out of the blue I suddenly couldn't do that. Just needed a bit of time. Also my friends daughter died just before Christmas and we were close. I have been so occupied supporting my friends is that I haven't given myself time to grieve properly. Bless you Keith and I hope you keep well. hugs from me. xx
So sorry to hear that you are feeling so bad but not really surprised. Coping with chronic illness is exhausting and depressing and the miracle is that so many people cope as well as they do. It's good to hear your breathlessness has improved and hopefully your X-ray won't show any further damage. What could you do to raise your mood ? Play some music, watch a favourite DVD, eat some chocolate ? How is your cat today ? Still sitting on the laptop ? I hope this mood passes soon. K.
Hi Argana, Yes I still have a battle with my cat trying to get on my laptop. He just doesn't try to get onto it by any means possible but if I am on other websites like you tube for example he actually sits and watches it. He recently parked himself on my head and jumped onto the keyboard which caused the screen to rotate!
Thank you so much for caring enough to reply and I am sure I will be back to normal by tomorrow. I have spent a lot of time talking on the phone today to friends and they knew by my voice I was a bit down. They were great and one rushed round with a big bunch of flowers. Of course I immediately burst into tears! I've been watching a lot of murders lately so that probably hasn't helped my mood! Now I am going to find some comedies to watch. Thanks again. hugs over the miles. xx
Hi hugs, glad you are a tiny bit better today. This will make you laugh, I read your profile and you say you live on an island. When you just said to argana that, you have been watching a lot of murders, I thought you must be on that island where they made Bergerac. Haha
Hee hee hee You made me laugh out loud, so thanks for that. I decided to give murders a miss tonight in case they were contributing to my general downward swing. I watched Birds of a Feather instead. I really love the banter that goes on between the three of them. Thanks 6161 xx
Dear hugs,
Big hugs for you and congratulations on sharing your loneliness.We all get through this and it's not nice.
My solution to this, I take myself off the computer and cease all activity. I lie down on the bed and listen to either relaxing music or a "Have a good night sleep" CD by John Selby. I see on his website that he has created an uplifting CD too. his voice is soft and suave, but just right, not melodramatic.
I use it when I wake up during the night, set it on my timer for 40 minutes and sure enough, I'm asleep after 40 minutes or before! Sleep is of great comfort. Highly recommended!
Hi, helinmic. Thanks for replying and for your advice. I have spent a lot of time sleeping too, but I don't mean to. Its this illness that makes you sleep. As soon as I sit or lie down on the couch and watch the tv or read I fall asleep. In fact I have not long woken up and thought it was tomorrow! Bless you and I hope you keep well. I will look up John Selby's music. hugs to you.
Hi Huggs
Sorry to hear you are feeling low. I think we all have days like that but they do pass. Like you I have always been the one people turn to when they need help but I'm useless at asking for help for myself as I don't like to bother people with my problems. Remember there are always lots of nice people on here that you can turn to.
Take care Kind regards
Hi Huggs, here are lots of hugs specially for you, hope they help. I too have been feeling very low lately and I think it has been a long wet depressing winter. Now the light nights are in does that not help?. Spring is just round the corner and once you get your illnesses sorted out I am sure you will feel lots better. Your Doc may supply you with some mild antidepressant's, if so take them as they do help. Don't worry about apologising that's what we are all here for, as you can see by all the replies you have had. There are some wonderful people on here. Anyway you have probably been in touch with Doc by now and hope it has helped. Take care God bless. Cheryl
Hi poppyval, Thanks so much for taking the time to reply and support me. This website is so full of lovely caring people and am blown away by the response I have had. I truly hope that you feel better soon. You are right in saying that once I get all my illness's gets sorted out I will feel better. Bless you and take care. xx
Big hugs for you try and tell your doctor how you feel he is there to help you rest as much as possible eat little and often sleep whenever you can keep posting on this site they are all lovely people and only too willing to listen and try and help. Chin up my dear I know it's difficult but remember we are here to try and help
HI Meike, Thanks for replying and for your support and advice. I am sleeping an awful lot, but I don't mean to! This illness just makes you exhausted. I am feeling more positive and not so tense now. Every single person who has replied to me has been lovely and I am deeply appreciative of this. Thanks again for caring and I hope you keep well. xx
Morning Huggs, Really feel for you, you must go to your GP write all down before you go, could be the lack of proper nourishment that could be making you feel so low, Coughing up blood you really do need to tell him, and the referral to a dietician is urgently needed, You really are not lumbering people with your troubles, we all help support each other here , don't we, Also with you being so very tired will not be helping any, Please look after you and go and see your GP. xxx
Hi Junespoon, Thanks for taking the time to reply and for caring. I am more like my normal myself again. I telephoned my GP about the blood and she arranged a chest x-ray for yesterday afternoon. She is on holiday this coming week so goodness knows if I will here anything about it though. Today I have received an appointment for the dietician on 14th April so that's not so long away. I do feel that if I could get proper nourishment in me then I would come on a lot better. That's over a year without eating properly so its bound to take its toll. I hope you keep well and take care. xxx
If you have a fb acct I'm under smile smiley. Please include a message so I know who you are. You can contact me anytime
Hi again! I have just found out what fb acct is! Its a face book account. I don't have one and don't feel the need or desire to get one. Thanks again for getting in touch anyway. Keep well, xx
I fully understand how you feel, i have spent the last 10 years, firstly with severe HepC and went thru all the treatment for that. I left my work, home and friends and had to move to my brothers where i eventually got council flat to do my treatment, 2 years after i get all clear for hepC i am still not right go to doctor and get told i have copd and nothing really can be done except give up smoking which i had done already because i literally couldnt breathe let alone smoke, and it just seems to get worse. I used to be a very active physically strong guy and now i get puffed out and feel exhausted just carrying the shopping in! I also feel crap about being a moaner when so many people are worse off! they dont seem to look at the situation in a holistic manner! I also have spondylosis so cant get around as well and get a lot of pain, so sleeping is tough sometimes! When you are being told that its all progressive and it will only get worse over time , it is very difficult to keep up your spirits because there doesnt appear to be an end to it! i have it in my neck and lower spine. Its really down to making the most of each day, but i fully get the feeling of fading away and not really any use to the world in fact often made to feel a burden! I just wanted you to know your not alone! All thre best!
HI Soothsayer, I am so glad that you have responded. However, I am so very sorry that you are feeling so very low. I am assuming that you have read all the lovely supportive replies that I have received and that they apply to you as well. They really do. You hare having a terrible time and I do understand fully what you are going through. You absolutely must get help for your copd. I am not sure if I have understood your statement correctly. Have you been diagnosed with copd or do you think you have copd.? I was only recently diagnosed myself and realise that there is a lot that can be done. If you haven't been at the doctors then you should go and you will get medication which will definitely help. There is also Pulmonary Rehabilitation Clinics available as well as physio. It is important also that you maintain a healthy diet. ( I can't say too much about that because I have no appetite at the moment) It might also be worth getting in touch with a social worker to see if they can offer any help. If I were you right now, I would click onto the red balloon and talk directly to a respiratory nurse. If they are busy they will take your number and call you back. They are a mine of information and advice and will talk as long as you need to. With what you have to cope with you are perfectly entitled to have a good moan now and again!! So don't go beating yourself up about that. Please , please get some help. I am feeling better than I was when I posted the question and you will too. However, you must get some treatment. Let us know how you get on and remember all the lovely, warm and kindly advice I was given applies to you just as much to me. You take care and maybe try and do something you enjoy. Sorry, if I am sounding really bossy! I know I can be. Hope you feel better soon, and we will all have good spells and bad spells. You will get there. Bless you and please get the medical help you need. Thank you also, for thinking of me when you are so down yourself. Sending you hugs and xx
Hi Soothsayer, I'm sorry you're feeling so low (and Huggs, I'm so very pleased you're on the up and some lovely msgs of warmth & comfort here. It's amazing when you reach out ..... ).
I've been thinking about feeling grim and then not publicly having a moan because so many people are suffering more. I too think that very often.
The thing is here, people are so generous & supportive regardless of their personal levels of suffering.
We share here, share the load and in some small way things even out a bit. I am terrible for reaching out & asking for help because A, people are far worse than me & B, I don't want to appear a useless, moaning, hyperchondriac wimp! Pride before a fall though.
I'm moderate, with deteriorating asthma. My vibrant busy life is over, I felt useless to humanity, my work for the preceding years was in improving the lives of others. If it weren't for the fact that I've 3 children who lost their father 3 years ago ...... the key I find, is teaching myself acceptance. 18 months ago I was suicidal.
I found this site just over a year ago, it's been a lifeline. I've learnt here how to improve along with getting meds right, PR and extra Vits to support my immune system.
There are others finding this site every day at the beginning of their journey of lung ill health and there is much you and I can do to support them and prevent them getting worse. What goes around comes around.
I've also learnt that guilt hurts no-one but oneself.
This site is diverse in the different levels, diseases, no one is judging. Not once have I felt judged for 'not being ill or suffering enough'.
I've waffled enough. When it seems the light at the end of the tunnel has gone out do as Huggs did. Reach out and the glimmer grows.
argeed there peeg, I reached out,got good advice, so ive put the wardrobe there,looking better now, rest and brew time,then start again,xxx had a accident with wallpapering but ive learned which way is which now,id hung it the wrong way,never mind,xxx
Doh, who's a Wally then Twice?
Oh peeg, I am so sorry you felt so low that you were suicidal. You write very eloquently and wisely about all our situations. You always give good advice and are obviously very caring. I know what you mean when you say you felt useless because your work was caring or improving things for others. Well, you are still doing that, just in a different way. You have adapted and will have your down spells like us all. Just because you have been dispensing advice longer than some does not mean that you don't have needs. You do. We all do. If you feel low then please don't suffer in silence. Just come on here and waffle as much as you like. I am glad to have found a fellow waffle!! Keep well and bless you. Sending you hugs.xx
Hi, thank you very much - you're the one we're cheering up here though 
there's a shining light at the end of my tunnel now though. Not long after finding this site etc I was infection free for 7 whole months. It was such a relief I can't tell you. A taste of a near normal way of life.
Bless you too Huggs, I'm so glad you posted you woes and are now lifted a bit. What a lot of lovely replies you have, says a lot about you I think.
Night night, sleep well tonight. I'm sharing my kingsize tonight - with a very small person. We spent the afternoon in Kew a Gardens. .... or Gard Kewens as she calls it!
Nighty night to you to Peeg. I am delighted that you have been infection free for seven months. Imagine that! I'm glad that you enjoyed your afternoon at Kew Gardens, and, the very special small person enjoyed it too. Keep well and have loads of fun. I am going to try and get my hair done tomorrow. I've been trying for months to no avail, but I will just keep trying. I am so glad you have a shining light at the end of your tunnel. When I think back to how I was even 6 months ago I have improved. I just need to get my appetite back, but am seeing a dietician on Monday so maybe she will come up with some answers. I have had great difficulty typing this as my cat, Felix is all over the keyboard and smashing his little head against the screen. I must enquire to see if there are any courses on basic computing for cats as they seem to love laptops so much! Sleep well xx
What a fabulous bunch of people they are on here huggs.
They never cease to amaze me with their support, love and affection. I only wish that I had discovered it earlier, it's so nice being able to discuss our problems with people that understand our fears.
Allan.
Hi Allan, you are so right. Its such a fantastic feeling that there is so much support, understanding, advice, caring and warmth out there. I hope you keep well and I'm sending you some hugs. xx
so sorry to hear of your woes. I feel very depressed when I cough up blood. the first time it happened was in the night and about a tablespoonful, which looks a lot in a handkerchief! the shock was awful. the gp sent me for a ct scan and bronchoscopy and diagnosis was bronchiectasis. Hope you get a full investigation, then you know your best course.
Hi Lyd12,
Thanks for getting in touch. I am still coughing up blood now and again. My GP thinks it is bronchiectasis as well, but do not see the consultant until the end of the month. I had an appointment at the end of May, but cancelled it because I did not want to take an infection into the patient transport or the hospital. I thought given the reasons for the cancellation I would get fitted in quickly, but no I was put back to the bottom of the queue! I did not think that was fair. My GP said last week, that I should have gone, and that my health is just as important as anyone elses. It seems I can't do right for doing wrong! I also keep getting infection after infection which isn't helping either. Hope you are feeling better and thank you so much for caring. I am not nearly as depressed as I was, although I have my moments. Take care, and bless you. sending you lots of hugs, from Huggs xxx
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