Breathlessness?

[LesleyAnne]

Does anyone with bronchiectasis get breathless even when they don't have an infection? If so what do you take for it?

[Hidden]

Yes, I get breathless really easily and wheeze and cough most of the time. My FEV is on average 30. I have azithromycin three times a week (which doesn't seem to make any difference) but other than that nothing. Sorry. Maybe your GP could suggest something.

[LesleyAnne]

Hi, thanks for your reply. What is FEV?

[Hidden in reply to LesleyAnne]

it's my peak flow (FEV might be the wrong term) which measures peak expulsion.

[LesleyAnne]

Yes, I'm on 500mg Azithromycin, Seretide 500 and Salbutamol. But just can't seem to get this breathlessness under control.

[pollyjj]

Good idea from KAT22 go see the doc if you are worried about it the more you stress the worse it will get.

Hope you get it sorted soon.

polly xx

[LesleyAnne in reply to pollyjj]

Thanks Polly x

[cofdrop-UK]

I do get breathless, even without an infection (not that I'm very often without an infection these days) but I do have asthma also, but when I was younger before the asthma yes I did get breathless. I would up the inhaler or neb and do more physio.

patient.co.uk/health/Asthma...

Sprometry will give you your FEV1 (Forced Expirary Volume the amount you can exhale in 1 second) This can be given to you as a percentage, meaning if your FEV 1 was 50%, then that would be 50% of what would be considered normal for your age, sex etc.

Things like sex, age, weight etc are taken into account to give you an accurate reading.

love cx

[LesleyAnne in reply to cofdrop-UK]

Ah yes I do have spirometry tests, however, I must ask next time what the results are. They usually just tell me their ok! I too have asthma but this breathlessness is becoming a real pain. Finishing sentences are not possible and walking and talking is a no no and I notice I am taking an involuntary breath every now and again. I am going to the GP tomorrow.

L A x

[cofdrop-UK in reply to LesleyAnne]

I'm sorry to hear you cannot finish your sentences because of sob. That sounds like it needs sorting for sure. Good luck at the GPs. My consultant felt my asthma was as problematic as my bronch last week and upped my steroid inhaler. You sound similar.

Good luck LA

love cx

[alanjudy]

I get breathless without an infection and currently it is terrible with my exacerbation. I've been told to 10 minutes of exercise 3 times a day. By exercise they don't mean joining my daughter in her 5km runs just anything.

Judith

[LesleyAnne in reply to alanjudy]

Hi Judith, I have never been told this but I am going to take your advice on board. I hope your symptoms ease soon. X

[TEDTHEBEAR]

I do in fact today, has been very bad. for some reason. I take Azithromycin, symbicort, Spiriva and salbutamol. I have found it has improved since taking Spiriva though, may be worth chatting to your GP and trying that as it helped me a lot. The Azithromycin has cut down the amount of infections I have greatly.

xxxxxx

[LesleyAnne in reply to TEDTHEBEAR]

Hi, thanks for the advice I will do that at my appointment tomorrow. X

[Dusanda21]

Hy Everybody.

Does everyone heard about the salt cave before...? They doing salt therapies for people with different breathing problems. The first session is free. I have been recently with my friend who has asthma. She has 6 session so far, she is really pleased with the result. I think it's worth for a go.

[LesleyAnne in reply to Dusanda21]

Yes I've heard of it but nothing like it up here in the Highlands.

[Dusanda21 in reply to LesleyAnne]

They are selling salt pipes. Maybe you can have a look on the website and order one. I have one I'm using it when I have cold or sinus pain. It's pretty good. It wasn't expensive, something around £30. But you can use it for several years. Hope it will help Take care!

[Hollyhockhattie]

I get breathless too without exertion.. however and touch wood, carbocysteine, prednisalone and spiriva are keeping it under control.

[LesleyAnne in reply to Hollyhockhattie]

Definitely speaking to my GP. Thanks x

[LesleyAnne]

Hi All, I saw GP today. I have another infection, lungs making lots of noise and last night I started with the chills and sweats. So disappointing but there we go. Just need to find out what it is this time. Have to use blue inhaler through spacer, can use up to 40 puffs (10 into spacer at one time).

L A x

[Steph57 in reply to LesleyAnne]

Hey L. A a couple of years ago I was given a spacer and when I was really poorly to use ventolin as much I wanted it wouldn't do me any harm such a difference from when I first taking it years ago when told not to take it too much. Hope you get better quick. Xx

[LesleyAnne in reply to Steph57]

Thanks Steph x

[Steph57 in reply to LesleyAnne]

Your welcome L A. Xx

[Jake364]

Hello I don't have bronchiectasis. But I do have asthma and get wheezy and breathless just take your meds then you will be fine

[dafadil]

Yes I have had bronchiectasis for about 30 years, had always worked and,not sure if kept quite well. I have retired and just recently have been having tests as a x-ray showed something elseand am waiting for more tests.i use so many puffers but dosnt seem to help.i am new on here not sure if I am doing it correctly.

[LesleyAnne in reply to dafadil]

Thanks for your reply. Good luck with your tests. Let us know how you get on.

[dafadil in reply to LesleyAnne]

Still going through a lot more tests ,the Bronchoscopy was quite scary. will let you know any more. good to here from you .

[LesleyAnne in reply to dafadil]

Well done for going through that, not pleasant but over with now. Very best of luck and let us know what your results are. I'm going into hospital on Monday for a couple of weeks am struggling a bit at the moment. I will look out for your message when I get home. Keep well.

L A x

[dafadil in reply to LesleyAnne]

Hope all goes well for you although I am not sure why you have to go in . I am still very worried waiting to see my Chest Specalist.Take care speak soon.

[LesleyAnne in reply to dafadil]

I am going into Highland Rheumatology Unit. My joints are very painful at the moment so I am going in for 2 weeks for a medication review and Physio treatments. Good luck with your appointment, be prepared and write down all the questions you want answers to. Keep in touch.

L A x

[dafadil in reply to LesleyAnne]

Why do we have to suffer , physio is very hard work, my youngest Son has been having it for months with a illness.iI do hope you get on well and yes I shall ask questions on Wednesday. all the best for Monday. xx

[LesleyAnne]

Hi, I've never been shown this but am going to try it. Thanks.

[LesleyAnne]

Seeing my GP next week so will mention this. Thanks for the great advice.

[LesleyAnne]

OMG you are going through the mill. Have had all my heart tests and scans and everything was ok. Blood pressure still a bit high though. Hope you get on ok with your investigations. Let me know. Going into hospital on Monday for a fortnight, am struggling a bit just now. I'll look out for your messages when I get back home. All the best.

L A x