Re: nucala biologic injection - Asthma Community ...

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Re: nucala biologic injection

coral12 profile image

Hi .not been on for awhile.i went to hosp for checkup after having covid a month ago in which I got infection in left lung .3weeks of steriods and 2weeks of antibiotics later x-ray show in fiction no different .going to do a CT scan .IV been unstable asthma for years .consultant wants to put me on nucala injections it's a biologic every 4weeks I fit the cryteria.im on relvar Ellipta high dose .tiotropium high dose an ventolin .and lots of courses of steriod tabs .just wondered if anyone is on the injections

14 Replies

Hi Coral, I started Nucala injections February 2021 and they have improved my asthma massively. Before I couldn’t laugh or walk a few minutes before becoming breathless and coughing. I get them delivered and kept in my fridge and inject myself every 28 days. No side effects. I hope you get positive benefits too.

coral12 profile image
coral12 in reply to Karate109

That's for the reply. I hope it makes a big difference also .glad it worked for you

Yes I did a research trial of the injection 6mths in total. My peak flow went from 150/170 to 200/220 . No longer on it and slowly reversing my peak flow downwards.😔

hoven profile image
hoven in reply to Gwen30

Gwen why did you stop it?

Gwen30 profile image
Gwen30 in reply to hoven

The research trial ended I have EA asthma

coral12 profile image
coral12 in reply to Gwen30

Why don't docs put u on it permanently if it helped

My views are exactly like Karate 109. The miracle drug for me insofar as asthma is concerned. Hope that helps

coral12 profile image
coral12 in reply to Josephone

I hope it will be for me .at least some improvement

I started Nucala nearly a year ago, initially muscle weakness which they said would be the steroids I occasionally took over the years. stopped it for a while and the weakness went away. started it again a few weeks later and it was even worse. weakness in my legs which is still there. I have now stopped it. I think if it suits you it is worth taking. I wish it had suited me! good luck

Wow. I didn’t even know that could happen. I am right now in a chest infection and at the end of all my meds and it actually still hurts. But I don’t think it’s Covid. Do you cough up blood when you have a chest infection?

Usually cough up blood if it's phuemonia

Hi coral12, Yes I'm on Nucala too. I've just done my 24th injection. It's so easy at home every 4 weeks and have them delivered.

For me, absolutely no side effects but I feel 100% better. Before July 2020 when I started my life was non stop steroids and antibiotics. Now I continue using my fostair inhaler as usual but that's all.

I have a 6 month consultation via a video call from the London hospital who treats me.

Good luck and hope it helps you too.

coral12 profile image
coral12 in reply to janet65

Thank you for reasurance .glad it worked for u .hope it works for me .have u ad any infections since of IV read

janet65 profile image
janet65 in reply to coral12

No I've been perfectly well since I started the injections. I had whooping cough aged 4 and that's when my asthma started. I'm now 71...that was a lot of years of really bad health.

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