Xolair journey - rash resolved - Asthma Community ...

Asthma Community Forum

22,474 members24,860 posts

Xolair journey - rash resolved

Mogget profile image
9 Replies

I just thought I’d post about my experience with Xolair in case it helps anyone else (now or anyone searching at a later date), as it caused a rare reaction that got resolved kind of by chance, meaning I can now use Xolair again.

I had my first injection last year and within a couple of hours my ears went hot and tingly. The next day I developed a very itchy rash on my ears, head, neck and chest area. This was deemed to be a reaction to the Xolair and that it wasn’t safe for me to continue, and that the Xolair would be stopped. The rash died down along with the Xolair leaving my body over the next few weeks.

I was then referred to the allergy clinic to see if there was anything that team could do to treat the underlying allergies causing my asthma, and tackle things that way. The consultant wondered if I had any photos of the rash, which luckily I did.

Long story short, he identified the rash as a malasezzia flare-up. Malasezzia is something a lot of humans have on their skin but it’s not something that normally flares. It was decided to treat the malasezzia (topical creams and oral tablets) and then try me on Xolair again to see if the rash would return with the malasezzia gone. Well it all worked successfully and I’m now back on Xolair.

The Xolair had caused this malasezzia flare-up via an unknown mechanism, and apparently there’s nothing in medical literature about this interaction.

So I thought I’d post about this as although it’s a rare thing to have happened, my story might help someone else as my asthma team weren’t aware of this interaction.

Written by
Mogget profile image
Mogget
To view profiles and participate in discussions please or .
Read more about...
9 Replies
mylungshateme profile image
mylungshateme

Wow that's really helpful thanks, and that's the sort of thing that would happen to me as I'm on waiting list for biologics it's worth knowing! 🙂

Mogget profile image
Mogget in reply tomylungshateme

I have everything crossed you get to start soon 🤞

mylungshateme profile image
mylungshateme in reply toMogget

I really hope so too I'm at the point where I think I'm gonna have to give up working as just really struggling. 😬 but then what happens when you cant work due to breathing as it's not a disability or is it? Think I'll have to speak to respiratory team again Monday. 🥴

Mogget profile image
Mogget in reply tomylungshateme

Yes do speak with your team and underline how much you’re struggling! Especially if you’re at the point where it’s impacting badly on your work and daily life. Asthma can be classed as a disability. I don’t know what the process is or anything but I know it can be.

mylungshateme profile image
mylungshateme in reply toMogget

Thanks and people think asthma just a puff of the blue when out for a run!! Lol. I cant wait to feel normal again or maybe I'm hoping for to much. Lol.

Mogget profile image
Mogget in reply tomylungshateme

Yes so many misconceptions 🙈

angievere profile image
angievere

Thank you for sharing. Best wishes.

Claire-Rose profile image
Claire-Rose

Thanks for that it’s really helpful I am starting xolair next month and have sensitive skin so at least now if anything happens I can mention this

Mogget profile image
Mogget in reply toClaire-Rose

Fingers crossed it does wonders for you!

Not what you're looking for?

You may also like...

Xolair reaction - rash / hives

Hi all, I had my first Xolair injection 3 weeks ago and since then I’ve had an itchy rash around my...
Mogget profile image

XOLAIR Treatment?

Hiya everyone, I just got out of hospital yday after being in for a week. they thought i had swine...

Xolair and UTI’s

Good morning everyone, hope someone can throw some light on this. I had my third Xolair injection...
B_price16 profile image

Xolair! Excellent News!

So I am still on Xolair, which I was started on due to severe CSU because of my MCAS - started in...
floating_ profile image

Xolair injection unsuccessful

Hi all :) I have just completed my 16 week trial of the xolair injection, and unfortunately it...

Moderation team

See all
Homely2 profile image
Homely2Administrator
Lysistrata profile image
LysistrataAdministrator
ALUK_Nurses profile image
ALUK_NursesAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.