Aminophylline : I have just been given... - Asthma Community ...

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Aminophylline

Joycies profile image
8 Replies

I have just been given aminophylline 200mg twice a day, I was wondering what other people have been prescribed. Thank you

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Joycies
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8 Replies
Kelshaw2011 profile image
Kelshaw2011

Hi was on on phyllocontin 450mg twice daily but my levels were always too low so got changed to uniphyllin 500mg twice a day now along with plenty of other tablets inhalers and nebulisers havin mepolizumab injections from monday aswell not much makes any diferenceto my brittlw asthma but everyone is diferent hope it helps u

X

Joycies profile image
Joycies in reply to Kelshaw2011

Thanks, I didn’t know about dosage , at first I was getting headaches but not now. they want me to take Xolair now as well but I know very little about that , which bothers me some also

Kelshaw2011 profile image
Kelshaw2011 in reply to Joycies

Yes i found i got headaches wen i was first on it but does ease i have amiophylin infusions every 6-8 weeks in hospital aswell but they stop tablets whilst am on it i have heard about side effects from the injections but i am at the end now amd will tru anutging that they offer me

Joycies profile image
Joycies in reply to Kelshaw2011

Many thanks for the information, now I am off to find out about Xolair.

EmmaF91 profile image
EmmaF91Community Ambassador

I was on uniphyllin and have tried slo-phyllin. At the right levels it really helped me, unfortunately my body liked to go from untherapeutic to toxic very quickly, so stayed at a low dose til I came off in Sept due to a fast heart rate. Starting to miss it now the weathers changed so it was definitely doing something! It was my favourite drug when I started on it... the first time in years when I could ‘forget’ that I have asthma!

My advice is to avoid having excessive amounts of caffeine as that can increase the likelyhood of toxicity. Good luck x

in reply to EmmaF91

@EmmaF91 hi what were the signs and symptoms that it was going toxic?

EmmaF91 profile image
EmmaF91Community Ambassador in reply to

Tachycardia, palpitations, high BP, nausea/vomiting, restlessness, tremors, cramps, sweating, dizziness, headache, confusion, insomnia (seizures/heart arrhythmia if too toxic)

I never got too toxic (ie seizure level) but with all those side effects I felt really cruddy. Hope that helps you keep an eye out

@EmmaF91 thank you so much for letting me know I am about to have my aminophylline increased as the levels are low and was very unsure of the signs to show it is getting to a high potential toxic level.

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