Thank you to everyone in our little online Asthma Village <3

[Borncross]

I find that asthma has defined the way I do everything and I wonder that we all have very similar, but also very different experiences of this journey. Different lives all bound together by one uniting force.

I have had many trials and tribulations with doctors and nurses and hospitals and always tried very hard to hide my asthma from the muggles because they never understand. So well sometimes, I even forget myself and do very silly things... Like sleeping in feathers!!! Didn't notice why it was oh sooooo comfy! But felt lucky that the gasping for breath woke me up 😂 I know it's not really funny, but I have to laugh at these things because I'm still here to do so... I think it strengthens the muscles anyway.

I figured other people may do as me and forget that there's more to this than medicine and it is a vicious cycle with patterns and frequencies. There are also proper techniques for these newfangled inhalers that aren't as effective, I think, as the spinhaler... Who owns the blue prints to these things??? Should they not be the property of asthmatics by rights? How can someone else own them instead?

I have struggled, as I read many others do, and it's caused me to read and rationalise information and equally assess my own symptoms and realise how I can change matters to suit these ailments and try (desperately) to be comfortable. I find all these conundrums consuming my mind, time, actions likes and dislikes. It can be very overwhelming at times. I have yet to find anyone who can cope to be with me and my heart goes out to anyone else who feels like a Jumbly too; bobbing about in the sea lost in a sieve... A sea of dust and mites and trees and grass and cats and dogs and pollen and cosmetics and cleaners and aerosols and fumes and pollution and so on and so on and so on.

I get the impression we are all being sold a little bit short on the information front. I know people are more vocal when distressed, but I've often been in tears praying for all you guys when I read posts. <3 We can do this! That Asthma guy isn't going away. Like a ghost, or a cross to bear, we will carry him... He's just too out of breath to walk himself you see. We fear he will take us anytime he feels, we become consumed by him. He confuses and muddles us, panics us and twists us. We chase our own tale. Maybe we need to stop. Take deep breath (as they say... ha ha yeah right.) Get him by the scruff of the neck and look him right in the eyes. Really suss him out. Exorcise him, for he's within us, part of us, but not who we wish to be. Excercise ourself and never cave into the fear (it's so difficult) and for the exercising of the breath; play a wind instrument, whistle and sing your hearts out!

FYI: I am back on the Intal (don't believe them if they say it doesn't exist anymore!!) I kept myself afloat with yogic breathing for about two years because of a very unforgivable professional's misinformation. Relying on 'The Blue One' is a risky road to tread.

Meds wise check the BNF, British National Formulary, for uses, side effects and dosages... Make appointments with Asthma nurses, not GPS (IMHO).

Look for the patterns and triggers and tweak life. Find calm, spread peace. We are not here long.

Thank you all for your comforting advice and openNess. This forum has got me through some really rough nights and days.

I wish everyone well and bless us all and our cotton socks. <3 :* <3

P. S: Anyone else feel guilty? So many other guilt factors too, but I don't think they make inhalers biodegradable... And I saw a poster about recycling them back to the pharmacy, but I've kept everyone of mine ever... Yeah weird I know, I figured I'd think of a way to make use of them... 30 years on I am still pondering, so I am well open to suggestions...

XOXOXOXOX