Hey everyone , just had my first mepo injection, thought I’d share how I’m feeling and see if anyone can share their stories.
Had it last week and been feeling much much better already with my breathing, which for the first time in years is amazing , the flip side to that is I’m feeling quite tired and sick , and a lack of energy - do you think that this my body adjusting to the mepo??
Yay! Don't have side effects- just huge relief I can breathe.
My fatigue is worse too, I had my first one on Friday the 13th of October. I had a 4 day migraine which started 5 days after that was VERY different to my normal (vestibular) migraines. My ENO is still high (it went from 90 at the injection to 130 a week later to 94 a week after that) but hopefully it will start coming down soon!
I'm on my 6th injection of mepo and the body reaction had been quite dramatic. My side effects are mainly headaches and left lung discomfort. I see my consultant on Monday so it will be interesting to see eosinophils results.
Hi! I've had 6 of these MEPOLIZUMAB injections now. Altho the bloods showed the eosinophils are hugely reduced, I have NO physical improvement from my difficult asthma. I'm finding this very upsetting as hopes were high for some improvement. I've had no headaches but EXTREME fatigue. I'm literally WIPED OUT for 2 wks after each injection. I'm now starting to slowly reduce the highly toxic Mycofenalate which has previously been used to attempt to control the eosinophils with steroid dose too, but already the bloods show the esophils are jumping again, but hopefully will stay within reasonable acceptable levels.
Can anyone cheer me up?? My quality of life is vv poor & im very isolated as I'm rarely well enough to get out & do anything that I enjoy now. I'm 55.
How bad are you? Do you get out for your shopping if so do you drive, can you leave your house? What I'm getting is, may be you need to balance your life differently. So for example, cut out things you can get by without like only iron what you absolutely have to. Get groceries delivered. Order in ready meals like oak house meals backed up buy fresh fruit from elsewhere. Sounds extravagant but there is no waste and Tesco for example deliver free if your order is over a certain amount and you pay £6 every three months on their plan. Now put in place wee outings just for you instead of the necessities of life. If such a plan is too daunting then you have to consider depression as a cause and get that treated. Think little and often, schedule in rest or just stop for coffee more often. Be kind to yourself. Ask for help sometimes. Hope that all helps. X
What is it? I’ve heard of epo, but not this.
Is Pred Stopped / Rationed once you’re on Biologicals (Xolair / Mepo)?
Walking the tightrope
Anyone on Mepiluzamab had awful side effects ? 
Mepo injection 
