In Limbo......

[KateMoss]

Hello,

I have had a real rubbishy time recently with my asthma, three admissions since October, HDU, IV Mag and amino, the usual works etc.

I came home last Wednesday but have not really picked up ( the ward got me home with PTS plus O2 on board....) I have home nebs, O2, use s/c ventolin etc. Am maxed out on my s/c, nebs and steroids but my nights are really rubbish, not helped by zonking out mid afternoon ( avoided that today with a large cappuccino mid afternoon) I am really struggling but don't feel bad enough for IVs yet.... don't want to go back in . I feel in limbo, waiting for cons to call me for some advice.

I will be sensible and if not well will get to A&E......

Just fed up of lack of sleep, lack of sensible breathing ......

Any ideas please? I am being good and doing nothing and I don't have anyone else to worry about at the mo.... just fed up of my stubborn lungs (Brittle type one and two... just to be awkward!)

Thanks

Kate

x

[yaf_user681_2584]

Hey,

Sorry you've had such a rubbish time recently

Can't really suggest anything as you seem to be doing as much as you can do already, but just to say I know how you feel as I often find myself in a similar situation ... Just waiting for all the meds to finally kick in, or for lungs to give in and end up back in. The only thing I do is to get an emergency appointment in clinic with my cons, not that he can usually suggest much else at home but sometimes reassurance can help, so hopefully when your cons phones you back they can suggest something!

Sorry this hasn't been very helpful :s

B x

[Hidden]

Hi Kate,

Sorry you've had such q rubbish time recently and you're struggling, I can totally.empathize.

As boring and miserable as it is sofa surfing does rule when you're like this. Yes it sucks, its tedious and you want to scream from frustration.....but it works eventually

I just try to distract myself with programmes I love, q good book or some top tunes, easier said than done when you just want to feel better I know but you will get there.

Hugs xxxx

[KateMoss]

Hello all,

still here and still at home.

Had call from Cons and also Resp team keeping an eye on me at home which is good.

Not much I can add at home really as on top whack of nebs, s/c, pred, also take theophylline too.....

I am sleeping when I can, helped by O2 at home, nebbing still quite a bit.

Just want to feel a bit normal again but getting a bit frustrated and impatient with my body.

Will see how I am over the weekend. Hopefully all the rest will help and I will pick up a bit more.

Just ignoring the body clock.........and hibernating in small doses

Kate ....... crawls back to breathe and hibernate

xxx