I have had ankylosing spondylitis (AS) for well over 35 years and after having rods attached to my spine when I was 18 have managed to lead a relatively active life etc...
After many years of restricting itself to my spine below my shoulders, the AS is now becoming more prevalent in my neck, and I am now on Humira injections to keep it down. Despite a lot less pain, I am still getting a few 'odd' symptoms, and its one of these I am asking about...
Over the last couple of years I have had a few minor instances of nearly blacking out. Early on i put it down to colds, general unfitness, etc. However the last couple of times I have noticed it has occurred then my neck is extended / bent forward - although not massivly - i.e. not sitting properly in a chair (slumped).
So last night I was sitting in bed, drinking tea when it suddenly felt as if I had a black bag put over my head, and i was aware that I was falling into unconsciousness , and it gave me a panic attack as it felt as if i was dying. I know this sounds melodramatic, but its genuinely how it felt at the time.
Has anyone else had issues like this associated with their necks or do you think this could be something else?
Any thoughts or comments welcome.