constant pain so depressed

[Tracey39]

Hi my name is Tracey. I am 39 years old, and i have chronic oeseoarthritis. HELP. I feel so alone in pain. My family are sick of hearing me moane, as am I. Dont know where to turn.

[Holdingbacktheyears]

Hi Tracey,

Please go to your Doctor and tell him exactly what you have written in this post my heart goes out to you ❤️

I know just how you are feeling as I am sure others in our group do and our illness causes us the despair you have described as welll as the pain. I just wish we could all meet up and have a chat as I am sure talking things through with others who understand us would help immensely.

YOU ARE NOT ALONE

Please keep in touch you have loads of friends in this group who are there for you xxx

[Tracey39 in reply to Holdingbacktheyears]

Thank you so much xx

[Tracey39 in reply to Holdingbacktheyears]

Thanks luv truly from my heart I don't get on this site much but when I can I will pop my hellos of course 😘💋

[ITYFIALMCTT]

That's a miserable state of affairs for you. Has your GP suggested a referral to a Pain Clinic where they might be able to modify your pain management routine and make some useful referrals?

[Tracey39 in reply to ITYFIALMCTT]

Been there waiting on my individual assessment

[JaneyBella]

I think the suggestion of a pain clinic is a good one. I work at a private hospital ( although now being made redundant!) and there are pain specialists as there are in the NHS. You need help in living with this awful situation and at your age especially you need a long term plan. Take someone with you to the GP and get them to back you up and be assertive. Good luck!

[Tracey39 in reply to JaneyBella]

How do I get one swear to god i need one i really dont know what to do every timei go he looks as if he cant help me is that true xx

[Tracey39]

I thank'you all for the support. I didn't realise that there is support out there. My cry has been heard. I have been to the pain clinic and awaiting my face to face needs assessment but can't come quick enough have been on the list for months because i am nhs i will wait forever

[JDQuinn75]

Tracey you're not alone when it comes to osteoarthritis. I have had it since my late 30s as well. It's hell some days with the way the pain is in my hands, knees and shoulders. Mine also is in my spine both upper and lower of my spine. I'll probably be wheelchair bound before I'm 50 the way mine is acting in my spine. Bit osteoarthritis and RA runs in my family on both sides. Hope you feel better soon sweetie.

[Tracey39 in reply to JDQuinn75]

I will be to i fell out a window when i was 30 and am reaping the rewards

[JDQuinn75 in reply to Tracey39]

Tracey it takes awhile to find what works to help ease the pain some. I'll take hot showers some days and someone on here recommended to me to use wheat bags. I bout 3 off of Amazon. I use them on my feet , knees and shoulders as well. I use a heating pad for my spine it help too but only for a short while. Mine started getting aggressive back in 2015. That's when I ended up going to a rheumatologist. That was June of 2015 when they told me mine was osteo. I find cold damp rainy days make mine worse as well as winter temps. It you have it in your feet like I do ware your slippers as much as you can it help me a lot I have both with soft bottoms as well as hard bottom moccasin slippers. My soft sole slippers I ware around the house. Rule of thumb too keep a pair of slippers in your car too in the back seat. I do and I'm glad I do for the days my feet are the worst and I need to switch shoes. I ware my slippers while I do my errands, like going to the post office or grocery store. Don't hesitate to keep your feet happy when they hurt. If you're a flip flip person get a pair of skechers flip flops they have good support for the feet they're very comfortable on my arthritic feet. Hope these tips help you take care.,

[Tracey39 in reply to JDQuinn75]

O LORD watch chance have I. \\i am riddled had a lot of accidents per say in my life

[JDQuinn75 in reply to Tracey39]

Well I guess you need to avoid the accidents. If you're that way. We all can be clumsy from time to timeive done it myself when I loose my footing going dow my stairs. Or when Newbie get under foot as well " my pug" . I've side down the stairs carding him not than once . So you see you're not the only one.

[Hidden]

Hi Tracey. My name is Margie.

I am sorry you feel so alone. I understand, I too often feel this way. I have osteoarthritis of the spine and the pain is often crippling.

I hope you have a good experience with the pain clinic and you get the help you need. Unfortunately I did not and came away in tears.

Can I suggest you speak to your GP about how you are feeling they may suggest something to help lift your mood.

I find heat helps me, in particular a hot bath, a hot water bottle or having the electric blanket on helps a great deal. I also use some heat lotion and something called MSM which can give some relief.

You are not alone x

[Hidden]

Hi Tracey. As others have mentioned, you are not alone.

I have Severe Osteoarthritis, diagnosed March last year, started in my neck & shoulders, now in my arms & hands, also feels like it's in my back, knees & feet now, just waiting to see my GP later this month.

Understand how your feeling, the pain can be agony. I use a hot water bottle when the pain gets too uncomfortable, I can't use wheat bags, as I found the weight of them too heavy especially on my shoulders or around my neck. I tend to do gentle stretching exercises when i can just about manage the pain.

Also understand about family. With my family it's taken them awhile, to understand (not all, but some) Osteoarthritis & how it effects different people. My twin sister didn't know that there was more than one arthritis, she used to just think, 'Oh it can't be that bad, it's only an ache'. Until she watched a tv programme about arthritis, that's when she realised. Then she started asking me questions & looking it up online. She's a bit more knowledgeable about it now, bless her. 😃

I know it's easy to say, but try not to get to stressful, rest when your body tells you too, take it easy.

No matter what family & friends think or say, supportive or not, unless they have the same condition & symptoms, they don't how you feel. We Do...... 😉

Chin up & Take care.

Ruth x

[Tracey39 in reply to Hidden]

Thank you, I am choked to know people have been so nice and you all have your own piece of shit pie. My family, I believe in my own head that they don't believe how much pain i am in. I am literally crying out for help. My cleaning and general duties like; even doing my hair sometimes is a task on its own, my hair is so long i cant even deal with it no more. xxxx

[Tracey39]

I from the heart thank you all for your words of support. Don't feel all that alone any more.

[Hidden in reply to Tracey39]

Just thought I'd check in on you Tracey, to see how your doing.

Hope your feeling a tadge better?

Ruth 😊

[Tracey39 in reply to Hidden]

Hi Ruthytootie my spirit is better but my pain remains unfortunately I'm on nhs waiting list for my one to one not much can be done until I meet my team I've been waiting months xxx hoping all is well your way and thanks for your reply xxxx

[Hidden]

Your never feel alone on here. I also pop onto the NRAS forum (press My Communities at the top of screen, for list of other communities), there's plenty of people on there who also very helpful & informative. Sometimes very serious & sometimes quite funny post, ones which which will perk up your day.

Ruth x

[Sky-dancer]

Hi Tracey39 No you are definitely not alone.. I was told I had osteoarthritis in the hips when I had just had my first child at 25.. At 36 I was finally properly diagnosed after it was found in upper and lower spine and neck too. Now I'm 51 and it's found it's way to my shoulders, knees and wrists and fingers, etc.. I also have Joint hypermobility syndrome. I black out with 'pain syncope' with no warning and suddenly collapse to the floor unconscious which causes more injuries from time to time.. So, quite used to being in constant pain at different levels..

I use a 'tens' machine which is helpful and as others have said, heat pads, creams and wheat bags are very useful.. I still get out with the dog when I can as it helps to keep circulation going.. Yes, it's painful but I also have varicose veins possibly due to JHS so it's important for me to keep moving..

My family don't fully understand, they don't believe how much pain I'm in or don't want to.. I think they just don't want to think of me hurting so much.. My youngest son just says I'm having a lazy day but realistically, he still wants his mum to be able to cook his dinner and do his washing while he's at work.. But then, without that I'd have nothing so it's fine with me, for now..

I hope you have good result from the pain management team, if not, see your GP again anyway.. You need something..

[uplockman]

Currently sitting in Doctors office waiting to see foot Dr to get toenails trimmed. I get this done every 10 weeks per Medicare. So many diabetics miss out on this benefit.

[ngrantham147]

Look into pulsed electromagnetic therapy. In essence I bought a machine to use on both myself and my cat as this was recommended to me by my cat physiotherapist (don't laugh) as she suffers from arthritis. I was so impressed with how she appeared to be responding to treatment and seeing an increase in her mobility, I decided to see if it would helped with my daily back/hip issues. It definitely does works by reducing pain. I

Furthermore, I also recently torn a cartilage in my knee and have knee cap problem. Upon speaking to the orthopaedic surgeon, last week , he said confirmed that these machine help with pain management amongst other things.

[Tracey39 in reply to ngrantham147]

Well if you're cat likes it lololol you have made me laugh 😂 thank you 😊 but really sorry your a pain patient xx