Xeralto advice

[Brookiebiceps]

Hi guys, anyone on 10 mg xarelto? My hematologist said after 3months of treatment with 20 mg for my PE's/DVT she may change me to 10 mg once daily as a preventative indefinitely..

[Anna1511]

I am also on 10 m xarelto since march 2020

I thought i could stop it but they havent given me signs of when.

Had 2 dvts one march 2019 and nextaugust 2019

[Brookiebiceps in reply to Anna1511]

Were your clots provoked? Any issues switching to 10 mg? It's all so nerve racking!

[Anon02]

I changed to 10 mg indefinitely as a preventative after 6 months of 20mg following PE in March 2019.

[Brookiebiceps in reply to Anon02]

Anon, how are u doing on the 10 mg? Any issues?

[Peapob]

Hi

I was on 20mg for dvts in legs for the second time and after the 6 months they put me on 10mg indefinitely then I re clotted after a few weeks so now on 20mg for life ..everyone is different go with what's right for you

[Brookiebiceps in reply to Peapob]

Peapob do you have clotting disorder? How are you doing on the 20mg?

[Bloodredroses in reply to Peapob]

My haematologist said if P E ( unexplained clot 20 mg is standard but they base the decision to reduce is based on your levels in blood tests , not something that should be decided oneself . The clothing levels change . My specialist said as it’s a whole year of Covid , so I stayed on 20 mg that she would want to see 2 6 monthly blood tests levels before reducing to 10. It’s a balance and a risk that I follow the experts advise . I do not want a clot in peak or off peak Covid time .

[Hidden]

They left me on xarelto 20mg once a day after I had completed my initial 6 months treatment after I had blood clots back in 2017.

[Brookiebiceps in reply to Hidden]

Your still on it?

[Hidden in reply to Brookiebiceps]

Yes I'm still on it and I feel safe with it like it's a comfort blanket.

[Brookiebiceps in reply to Hidden]

Thank you for responding. I think I msg you. Do you have side effects? Did you have PE or DVT and are you on it indefinitely?

[Suebo2 Moderator]

The decision to reduce the dose comes from a dtudy- Einstein Choice- which gives the clinician a choice. Fir example, if someone had an out of the blue massive PE, one would probably stay on 20mg - unless high bleeding risk. It’s a balance.

If someone just keeps on getting little clots then after full dose of 20mg for a period of time it is reasonable to

Give a smaller dose of an anticoagulation.

You might get another clot you might not, but it is all a balancing risk

[Brookiebiceps]

Thank u.. it's the fear of the u known I guess.. most of us don't wanna be on them but get nervous when we are told to stop. I have only been on xeralto for a month so I have a ways to go.. how are u doing?

[Singmysong]

Hi yes I was also changed after 3 months. It’s because 20mg might be too much . I was anxious at first thinking that I might end up with more dvt .

[Brookiebiceps in reply to Singmysong]

Sing my song.. did u have PE's? How long have you been on xeralto.. any side effects? X

[Pontlottyn]

I had a year on 20 but switched to 10, my choice.no problems. Twice daily of course.

[Brookiebiceps in reply to Pontlottyn]

So you take 10mg twice a day?

[Pontlottyn in reply to Brookiebiceps]

Oops. Memory playing tricks. That's probably a side effect. I had extensive bruising and was as switched to apixaban. I take 2 5mg twice a day

[Bloodredroses]

Hi again , In March , I was scheduled to go onto 10 mg Xarelto from 20 mg , however she said the very best plan for the year was to stay on the 20 mg during the risk of Covid due to its blood clotting propensity. She is a Professor of Haematology ( blood ) Also my Lipid CHOLESTERAL Specialist said the same. Re my 5 mg statins and 20 mg Xarelto . Both are Professors so I have followed their advise . Suggest best for you too . The reductions of blood thinners depends on the results of the blood tests ( in my case 6 monthly )

[Brookiebiceps]

6 blood test monthly?? What test?