Morning nausea after pulmonary embolism

[Luggs]

Hi everyone, so 6 weeks ago I was diagnosed with unprovoked PE, I have multiple small clots, I’ve been prescribed 20 milligrams rivaroxaban the only side affects I seem to be getting is morning nausea so the doctor has prescribed me something to ease the side affect, what I’d like to know is could the embolism itself make you feel bad in the mornings ie been laying down all night? as I do remember feeling sick in the morning when I had the embolism but it hadn’t been diagnosed

Thanks

[BasThur]

You should be getting tested for your INR level as you are a new comer to your medical condition,.

[Luggs in reply to BasThur]

Hi thanks for that, I did attend the coagulant clinic a few weeks back and they didn’t mention that or do any tests, my next appointment is in June but maybe I should contact them sooner and to be honest I didn’t even know what INR meant

[mestala in reply to Luggs]

You're not telling me that your not having regular inr tests after your PE's.I had multiple PE's where I was 5mins from death,was in ICU for 8 days.When I eventually got out of hospital another 6 days after that,I had inr tests every week for months.This did happen whilst living abroad,I am now back in uk....even so,I usually have monthly checks,and if my reading is outside my target of between 2-3,I have to go back the following week until I'm back on target,then it's back to the monthly.

[Luggs in reply to mestala]

Hi Mestala, I just phoned my GP and he told me you only need to check your INR if your taking warfarin not Rivaroxiban , but as I’ve said I have appointment in June and will mention it to coagulation nurse, thanks for your reply

[Motty in reply to Luggs]

Hi I’ve been taking Rivaroxaban for three years and only get a check up once a year . Weight and blood tests

[Suebo2 Moderator]

Not likely to be the rivaroxaban. And Could be linked to your PE. Just take it day by day and I hope that the antiemetics help. Take care.

[daisyd]

Morning if you look at the leaflet that comes with the medication it mentions nausea, you must take this medication with food

Inr is not needed as it is only used with warfarin,

Hope you feel better soon

[SpeedyH]

Hi there. INR testing is not relevant when you take the new anti coagulants, it is only important for the older Warfarin. However, with the new drugs, you should have a blood test at your doctors every 6 months to check your liver and kidney function plus it’s a good idea to check for anaemia as that can be a side effect too. Doctor might not offer a blood test so write it in your diary!

Rivaroxaban made me feel sick too. If that is your only side effect you might want to persevere along with the antisickness medication. It might get better in time and after 6 months your dose of Rivaroxaban will be reduced too. If it becomes a problem you could ask to change to Apixaban which is a similar drug which some people find more tolerable. Good luck.

[Luggs in reply to SpeedyH]

Thanks speedy that’s much appreciated 👍🏻

[Suebo2 Moderator in reply to SpeedyH]

Dose of rivaroxaban should NOT be reduced. ONLY fir those with very little risk of another PE. If this PE came out of the blue then high risk of another if not on full

Anticoagulation

[SpeedyH in reply to Suebo2]

Hi Sue. I think you are incorrect on this. NICE guidance states that adults should take 15mg twice daily for the first 3 weeks, followed by 20mg once daily after that, and then after 6 months of treatment the dose should be reduced to 10mg ongoing. Luggs is currently in the first 6 months and taking 20mg and understandably looking forward to it reducing to 10mg. It is easy to be confused by the dosing as all the anticoagulants meds are different. 🙂

[mestala]

OK

[Luggs]

Thanks everyone for your advice, what I’d like to do is change the time I takes my tablet from the morning to the evening, anyone done this and what’s the procedure I’m taking 20mg rivaroxiban

[Luggs]

Hi everyone again🙋‍♂️so it’s been 6 weeks since I was diagnosed with PE, what I’m getting now is an irregular heart beat when I’m standing upright settles when I sit down, I know the heart and lungs take a battering and they need time to heal but it’s odd this has come on now, I’m hoping it will settle, has anyone else had this?

[Tish29]

Hi, I was prescribed Rivaroxaban almost 5 years ago, and my consultant advised me to use at least 3 pillows and not to lay flat.

[Luggs in reply to Tish29]

Hi Tish, I use one of those wedge pillows now and things are much better