Hi,
Anyone aware of this condition - I’m anticipating to be diagnosed as having it.
Read some content via Dr Google but would welcome any insight from those in the know/with experience of it.
Any guidance much appreciated.
Thanks.
Hi,
Anyone aware of this condition - I’m anticipating to be diagnosed as having it.
Read some content via Dr Google but would welcome any insight from those in the know/with experience of it.
Any guidance much appreciated.
Thanks.
Yes I have antiphosphlipid and have had for many years. My history is 5 miscarriages 5 pulmonary embolisums a stroke and various other problem with my lungs. There is a great page on healthunlocked it goes by the name Hughes syndrome the other name for aps . You are welcome to private message me if you have specific questions and I will try to help it I'm not a doctor. What lead you to bring tested for aps
take care
Hi. I’ve had APS for 18 years. May I suggest the website for APS Support UK as being very good for information on this condition. There is also a site on here (healthunlocked) called Sticky Blood which is an old name for the condition but arises because of our blood clotting so easily.
It’s a complex condition which is not fully understood. The major problem is that our blood clots very easily so we usually are given anticoagulation such as warfarin. But it can cause many more minor symptoms too.
One of my friends has Hughes syndrome and only found out after she kept having miscarriages and when she got given injections of heparin she was fine and has just had a baby.
Being diagnosed with it isn't the end of the world as once they give you your treatment you will be absolutely fine.
Best of luck to you!
It is important to know that if you DO have APS, you cannot have the newer anticoagulants. Fingers crossed that you are clear today!!
Please Suebo2 , why can't you have the newer anticoagulants , I was diagnosed in March and still learning, is warfarin the only thing we can take ? Thx
I have antiphosphlipid and lupus. Just been rediagnosed after no treatment for the past 27 years. History of miscarriages, eventually with daily heparin injections I had 2 successful pregnancies. Had 2 dvt's at 18 years old. Doctors now want to put me on warfarin for life. I'm having a battery of blood tests and referrals done at the moment. Interested to see there is a site with information, as never really had any information orginally. Would be good to keep in touch with someone with a similar story.