MRI/MRS Brain Scans: HI, I had scans in March and... - AMN EASIER

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MRI/MRS Brain Scans

StevenSims profile image
7 Replies

HI, I had scans in March and I was told the is a chemical change on one side of my brain but they were unsure what it is? I just had another scan on the 1st of Oct but on this occasion with Gadolinium enhancement and I just had the results that there is only minimal changes and no significant sign of deterioration or active disease. What a relief!

Has anyone had similar scan results?

Also has anyone with AMN been using Lorenzo's Oil?

Thanks

Steve

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StevenSims
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7 Replies
COwithAMN profile image
COwithAMNAdministratorAMN EASIERVolunteer

That's good news, Stephen re your scans.

As for Lorenzo's Oil, I was on it for about 5 years in the '90s (yes, that long ago!). I did the whole thing - L. Oil, plus cooking with Glycerine Trioleate (GTO) and a zero fat diet. We now know that unfortunately L. Oil doesn't work. It may reduce VCLFA in the blood but that is insufficient to prevent the progress of the diease.

Best wishes

Chris

StevenSims profile image
StevenSims in reply to COwithAMN

Hi Chris, Thanks for the information, hope all is well

Thanks again

Steve

Cherie profile image
Cherie

Good news Steve

StevenSims profile image
StevenSims in reply to Cherie

Yes it feels like a weight has been lifted!

Thanks

ddwoodham profile image
ddwoodham

Thats really good news Steve

GeoffMahy profile image
GeoffMahyVolunteer

Pleased to hear the good news about the scan.

I agree with Chris Ogden about Lorenzo's oil. I have never tried it but know someone who has taken it for over 20 years with no apparent benefit. I won't name the lady here though some of you may guess whom I am referring to . I believe she has finally decided to stop but I will check.

Geoff

danni1000b profile image
danni1000b

Good news Steve.

Danielle

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