Brain MRI: Had an MRI today, with the contrast... - AMN EASIER

AMN EASIER

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Brain MRI

monkeybus profile image
9 Replies

Had an MRI today, with the contrast infusion.

See my lesions at the bottom?

I've actually got three lesions but I can only post one image, I'll post another pic in the next post.

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monkeybus profile image
monkeybus
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9 Replies
StevenSims profile image
StevenSims

Hi Monkey,

I've got a lesion on my brain and it's been stable for the last 2 years and as long as the contrast doesn't show you are ok? I've got my MRI next Wednesday, I have them every 6 months to keep a check on it? Hoping it will still be stable?

If it gets active it will be a fight to prove that a transplant will improve symptoms?

All the best

monkeybus profile image
monkeybus in reply to StevenSims

Yeah, Steven. No change. Not that concerned about my brain. Used to be, but it's spasticity and fatigue. That's my battle and I'm taking it on.

I'd like to see other people's brain scans. We can compare.

StevenSims profile image
StevenSims in reply to monkeybus

My lesion is in the centre of my brain in the splenium of the corpus callossum, this is typical where it starts in boys with ALD

carrier profile image
carrier

I have numerous lesions, over 25

carrier profile image
carrier

I have numerous lesions, over 25

monkeybus profile image
monkeybus in reply to carrier

25, that beats me hands down.

Blacksheep profile image
Blacksheep

So, do lesions mean cerebral ALD or are they just part of AMN? Curious as I sit in the waiting room while my 23 year old son gets his first MRI.

monkeybus profile image
monkeybus

Minor lesions are normal and part of having AMN. There is always some brain involvement.

Hello Blacksheep. Best of luck to your boy.

bluesweets profile image
bluesweets

I have lesions also over the past 7 years they have not changed. Last December I was diagnose with diabetes also. Just wandering if any carriers out there also have diabetes

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