Stem cell therapy

[COwithAMN]

I seem to recall a set of posts a year or two ago where someone with AMN had decided to try stem cell therapy. I fancy it was with a company call CellTex celltexbank.com.

Does anyone recall this, and, better yet, did any of our US members trek down to Houston to try it?

The reason I ask now I that I was with a friend today who has Parkinson's, and a friend of his, who is a medic in Texas is trying to interest him in trying it. My friend is here in London, UK, so it would be a major investment in time and money, apart from the potential risks.

Bets wishes

Chris

[Djp1989]

I don't think there's any risks with that type of stem cell treatment. I think it's worth it, if it's possible financially. Interested to see how well it treats AMN sufferers.

[SongStream in reply to Djp1989]

I believe that it won’t reverse existing symptoms but will stop the progression.

[Djp1989 in reply to SongStream]

The company said 85% of MS patients had improvement in symptoms. I’ll be a test dummy for everyone 😉

[Tim76]

I remember the conversation but I thought someone was thinking about going to somewhere in south or Central America to get the procedure. I didn’t think it was legal in the US at the time.

[Djp1989 in reply to Tim76]

I contacted that company. I believe the procedure is done out of the US. Wondering on cost.

[Tim76 in reply to Tim76]

nature.com/articles/nature....

[Tim76 in reply to Tim76]

I guess they we’re doing the treatment in Texas for a while but have since had to send patients to Mexico

[deengo]

I, along with a friend who also has AMN went to Mexico to have stem cell therapy down. My own experience was great, for 3 months. I could walk better, I would forget my cane in another room at times because I just walked out, comparing videos pre-stem and post-stem there was a significant improvement in my gait and walking speed, I could bend over to dry my feet instead of sitting down, there were many positive things and no negative until about 3 months later. Everything went away and I was back to pre-stem. So my theory is if I had it done every 3 months I'd be good to go.

[Coslet in reply to deengo]

Do you mind sharing what the cost was associated with the therapy?

[deengo in reply to Coslet]

It was $5500us in Tijuana.

[Djp1989 in reply to deengo]

Wow!

[Djp1989 in reply to deengo]

How involved was the treatment? My impression was that in Mexico and South America they offer more than in the US and it ends up costing around $30k if you get a full stem cell treatment. I think there is something to the treatment for sure. There should be more research into that for the future in treating this disease.

[deengo in reply to Djp1989]

It was very simple. A stimulator type solution and then the stem cells are introduced intravenously. I have a female fb friend who is a carrier with symptoms. She lives in Mexico and had the procedure done in cancun for only $1500us. I'm going to follow up with her and see how it went.

[Djp1989]

Any updates from anyone regarding stem cell treatment?

[3WheelWonder in reply to Djp1989]

cellmedicine.com/

Book: Stem Cell Therapy: A Rising Tide: How Stem Cells Are Disrupting Medicine and Transforming Lives

I didn't have any changes but met many in Panama that I've stayed connected with has been a game changer.

It is 100% worth a try

[Djp1989]

Was the stem cell treatment HSC or MSC kind? Seems like there so many different options now. Not sure why this isn't being researched more. I've had the disease for almost 10 years and it seems like we're at a standstill. I guess I'll keep being proactive, eating healthy, exercising and wait.

[Djp1989 in reply to Djp1989]

So no one on here got stem cell recently?

[3WheelWonder]

did you check out the website in the thread? They are the gold, standard, flat out.

youtu.be/uUCJo1j0S9s(Not working as expected?)