Hi all, I'm Jay and I am new to this site. I was diagnosed with CFS over 10 years ago and Fibromyalgia over 2 years ago. I have changed my career and lifestyle to ensure I can work full-time. I was always proud of the fact that I never had time off because of my conditions. I always thought I managed them well. Over the past 4 months things have deteriorated immensely for me and I am currently signed off work because of the pain and not coping.
The pains became unbearable and I was anxious, stressed, depressed, brain fog, unsteady on my feet at times and not sleeping. I now struggle with constipation, take codeine (60mg 4 times a day, 1000mg paracetamol 4 times a day, lactulose, Doxycycline 90mg, have low iron and low folic acid. My BP is generally 96/65. I have stiff joints, swollen knuckles, headaches and when I do nothing for days I start to feel better, then when I start to add small activity into my day I am exhausted and in pain. I have very low self-esteem and confidence and hurt myself as I feel so low. I see an health trainer which helps and gives me the opportunity to talk about things.
I have previously had cameras up and down. I had a full hysterectomy in Feb this year due to ongoing issues and cysts on my ovaries. I have had cysts in my breasts and had one of these drained. I have previously had multiple operations to drain and remove abscesses. I am a 45 years old female who use to love sports and being active and it upsets me that I can no longer do this.
I see my doctor regularly.
Anyone to talk to or any advice would be appreciated. Thank you.