one step forward 3 back : I have hardly... - Atrial Fibrillati...

Atrial Fibrillation Support

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one step forward 3 back

Anxious37 profile image
12 Replies

I have hardly had a Palpation or flutter for 3 days . But today had a good few of them . So frustrating as I thought I had got it under control frustrating. O well grateful for the 3 day break

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Anxious37 profile image
Anxious37
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12 Replies
BobD profile image
BobDVolunteer

You really need to come to terms with your condition as it is for life. These things will happen and anxiety just exacerbates them.

Anxious37 profile image
Anxious37 in reply toBobD

I am coming to terms with it my anxiety is not as bad as it has been . I do realise this is for life but still want a some quality of life . I am going into my second month of AF so it’s early days and have learned so much so far and will continue to learn and cope with these symptoms .

TracyAdmin profile image
TracyAdminPartner in reply toAnxious37

If you feel you would like to contact or speak to a member of our Patient Services Team for help or advice, please do not hesitate to contact:

UK and International: heartrhythmalliance.org/afa...

Kind regards

TracyAdmin

Ewloe profile image
Ewloe

you have af. It’s not going away. Your not in charge of it. You can’t control it.

Good news is you can manage it. Learn to live with it and enjoy life with it. It might not be your friend but accepting it’s there to stay is a big help. Leave it alone and don’t concentrate on it. Good luck

wilsond profile image
wilsond

You will come to terms with living with the beast. It can be tamed but not completely. I see it as an annoying nuisance! I'm currently AF free but quite aware that its lurking about.

Auriculaire profile image
Auriculaire in reply towilsond

Annoying nuisance definitely. Worrying about it just adds to the annoyance. My afib episodes have got more frequent though thankfully not longer but they are a lot less symptomatic than they used to be despite no improvement in the heart rate.

JOY2THEWORLD49 profile image
JOY2THEWORLD49

Hi

Stop the anxiousness and enjoy not thinking about when you might have the next bout.

AF plays on anxiety.

Forget it to get passed it.

celebrated every day you are free.

When I was 40s I had palpations. I was stressed. I moved on and they disappeared.

My AF came with a stroke and thyroid cancer.

No palpations or pain or quivers with my persistent AF. And only a CCB controlled my rapid H/R Day.

cheri JOY. 76. (NZ)

Anxious37 profile image
Anxious37 in reply toJOY2THEWORLD49

I have had palpitations for over five years have coped with them ok ., but this is different. We are all different and get through these things at our own pace

DawnTX profile image
DawnTX in reply toAnxious37

what you said is true about us all being different. What we are trying to tell you here is it is what it is and if you dwell on it and every little feeling you get, you will get more anxious and depressed. It’s not gonna help anything. Sometimes it needs the explanation being done in the right way. We all need to get over longer it takes the harder it is on you. Anxiety needs to be managed. If we are being a little harsh on you, it’s to help you so don’t be angry when we are all telling you the truth. None of us like having it for the most part now I feel normal most of the time and it’s a good feeling. I guess you need to handle it the way you want to just realize there is no cure, but you can get peace with it and not let it control your life like it is right now. I have a pacemaker sometimes I still can get palpitations. It could go on for a week. Usually it means I’m coming down with a cold.

DawnTX profile image
DawnTX

unfortunately you will learn a fib controls us. There is a lot of hit nd miss, especially in the beginning. I have a pacemaker. I still get I can feel them the difference is they no longer our damaging. There is no cure. I know that is blunt, but it’s true. I can eat and trigger or eat too much and by the time I get to the car if we had gone out to eat, I am feeling it. It is going to take time it’s a big learning curve. You’re anxiety is one of your biggest enemies. You might want to try meditation and you should talk to your doctor about it if you have not already. My EP is the one that picked up on mine being so bad. There was nothing wrong with my pacemaker, etc. it was

sdweller profile image
sdweller

I don't know your particular situation, but most of us... even people without afib, occasionally get palpitations... this is normal, even though it can be annoying. Hopefully you've looked into what cause them, what phyisical and dietary things you can do to minimize them? There are many triggers for palpitations/ectopics!

Ppiman profile image
Ppiman

There's no way to control these random arrhythmias - they just happen. Indeed, everyone gets at least some of them. I get thousands on some days, I should think, as well as AF about every 10-14 days.

Yes, there must be a cause, but it is likely impossible to find out what it is. Genetic, most likely. Some become focused on finding a "trigger" but what evidence there is suggests that the vast majority will not succeed; many think taking a daily magnesium taurate tablet or similar will stop the arrhythmia; but the evidence is against that, too.

I think the only realistic ways forward are either to find a way to live with them by accepting that they will cause no long-term harm, or to try to stop them medically with tablets or surgically with ablation, neither of which have especially high chances of success.

Steve

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