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Blood thinners, breathlessness and dull ache in left breast

Nantoone profile image
13 Replies

Ever since I have been on edoxoban 60mg I have found that I am really breathless. Prior to my ablation in July I was on 30mg and I seemed fine. The EP Nurses say that 30 is not enough to protect me from a stroke so need to be on 60. Could it be the ablation or the meds that is causing this? Or is it just part of life for me now? I am just exhausted for most parts of the day. Went to the theatre yesterday for the afternoon matinee and fell asleep for ten minutes in the first half. Couldn’t even stay out to visit a restaurant for dinner afterwards. Couldn’t wait to get home to my bed. I also have a constant dull ache in middle to right side of my left breast. If I ask the Gp they say it is muscular skeletal. I’m not doing anything to warrant muscular pain. Can I use ibuprofen gel on the breast for pain relief. Has anyone else experienced this?

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Nantoone
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13 Replies
jeanjeannie50 profile image
jeanjeannie50

There is something called costochondritis and when I had it I was convinced that I was having a heart attack and dialled 999. Paramedics came, it was two ladies. One put her hand on my chest and traced the area where the pain was. I was amazed at how she knew exactly where to press. Then she explained that she'd been off work with costochondritis a few weeks previously so knew all about it.

Costochondritis is inflammation where your ribs join the bone in the middle of your chest (breastbone). It can cause sharp chest pain, especially when moving .

Now take note, I'm no doctor and I would want to be told to my face by a medical practitioner that this was what I had. Chest pain needs to be taken seriously.

I'm afraid I cant put any links on here as it's against the AFib Association's rules but you can Google it and see if that fits with what you're experiencing

Jean

jeanjeannie50 profile image
jeanjeannie50

PS I would also ask to try another anticoagulant if the one you're taking now is causing you to feel tired. Though Edoxoban is a very popular one.

Do you think that your ablation has worked?

Nantoone profile image
Nantoone in reply tojeanjeannie50

I think so yes. I seem to get a lot of ectopics but the fast heart rate seems to have disappeared. So far so good. Thank you for your response. I will look up.

ForensicFairy profile image
ForensicFairy in reply toNantoone

AF can happen at slow rates. The fastest I have even experienced AF is about 80bpm. The slowest in the 60s.

Nantoone profile image
Nantoone in reply toForensicFairy

My fastest was 225. Never experienced low ones just high.

Buffafly profile image
Buffafly

I doubt if Edoxaban is the culprit, at least not directly. You really need to be checked out to eliminate other causes of tiredness eg anaemia.

Khatpi profile image
Khatpi

Hi Nantoone, I am on Eliquis or Apixaban and I too have a dull ache in my left breast occasionally. I figured it was lying too long on my left side but now I wonder if it could be the doac. The ache will continue on through the day for a day or two generally and then it's gone. Tanks for bringing this up. It's a relief we are not alone with the same pain. Luckily it is not frequent. We have enough to be concerned about. All the best to you. Sarah from San Diego

Nantoone profile image
Nantoone in reply toKhatpi

Thank you Sarah for your reply. It’s horrible not knowing whether this is linked or not and “am I the only one.” Exactly that. It can be there for a few days then disappear then come back a few days later. Have you had an ablation too?

Auriculaire profile image
Auriculaire

The reduced doses of anticoagulants like Apixaban , Pradaxa were shown to work to reduce stroke in their clinical trials. They just did not reduce the risk as much as the full dose. I have not read the clinical trial for Edoxaban but I expect it would be similar. The only way you can be sure that Edoxaban is the culprit is by taking the risk of the reduced coverage and seeing if your exhaustion goes away and then comes back again when you restart the full dose. If Edoxaban is the culprit you could ask to try a different anticoagulant.

Nantoone profile image
Nantoone in reply toAuriculaire

Thank you. I will discuss with EP and see if I can hive that a try. It’s a really good suggestion. Thank you Caroline

ForensicFairy profile image
ForensicFairy

I’d speak to your doctor and wouldn’t assume it’s a side affect of any drug. As an example, I recently began to feel chest pressure in the centre of my chest at the top. I had for probably a year or more also experienced pin point pain at various points around the bottom left of my left breast. The pin point pain I had always assumed was just muscular. When I did an experience the chest pressure I noted my left bundle branch block was evident on ecg. Again I wrongly assumed it was the LBBB causing the pressure.

My cardiologist thought differently and said I might have been having microvascular or artery spasms which was causing the pin point pain, pressure and the ventricle to react to the lack of blood flow caused by the spasming, resulting in the LBBB.

He was correct. I was sent for an angiogram and had 70% stenosis during a spasm! No blockages and healthy arteries - except for them squeezing almost completely closed!

Have a chat to your doctor and see what they think.

Nantoone profile image
Nantoone in reply toForensicFairy

I have an echo booked for the end of the month. Would this show on the echo ?

ForensicFairy profile image
ForensicFairy in reply toNantoone

No, it won’t. The only testing which will confirm it is what is commonly called a ‘provocative’ angiogram. They will and should do other tests to rule out or discover other issues so these should also be done. But the only test which shows the arteries or microvascular system spasming is the provocative angiogram.

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