Alunduric acid and timing of AF meds, any advice?

[wilsond]

Morning all!

I recently mentioned I had a dexa scan,at which the radiographer told me ,unofficially, that I had osteoporosis in my left hip ( but not spine) she gave me some leaflets to read while awaiting report from consultant to GP.

Yesterday I had a rather off hand call from a Clinical Pharmacist informing me of the above, and saying the meducation required was alunduric acid,plus calcium and vit d tablets. He repeated what I'd read,acid first thing,with glass full of tap water. Sit or stand 30 mins. Once a week.

I said what was the t score" 3.1 left hip 3.0 spine" so obviously radiographer had been mistaken.

I was a bit surprised at that and forgot to ask about taking my morning AF and other drugs on the day I take the acid. How long for food and these meds

I can check at surgery I expect but I thought to ask on here meantime if anyone has the same ? I think CD has some knowledge of this?

I have osteoarthritis in the 5 lumbar vertebrae too

Any comments appreciated as ever

Hope you all have a nice and 'settled' weekend 💗 💛 💓

[CDreamer]

Hi - please qualify your T score - do you mean -3.1?

I’ll pm you tomorrow, many people now have concerns about taking Calcium D3, I wouldn’t take it with heart condition. I posted links on Bone Health forum recently about this but plenty of studies showing not helpful and can harm.

Before you even start AA - ensure you have dental exam and have any work done before you start taking it as taking AA can make having dental work done somewhat risky. Jaw bone necrosis is very rare but can happen as risk rises as we age. My dentist was not happy I took AA as I had implant. As it happens I am experiencing some bone loss which my dentist is monitoring carefully.

I took AA for about 6 months only - about 2-3 years ago. I took on a Sunday and got up at 6.00 am so I could take well away from other meds which I then took after eating breakfast. I didn’t experience any stomach upsets but I was very careful and ensured I stayed upright.

I now have gone down the Lifestyle route with supplements. ROS has really good info - it’s worth joining to get access to members area where they suggest nutrition, have recipes and food with calcium recommendations. Also Live Stream Q&A on subjects such as various pros and cons of DXA scans & REMS analysis.

I now take a Bone supplement recommended by Dr Nick Birch who I saw privately.

If you look at my posts on the Bone Health forum I received some great replies which I found very helpful. There are a few AFers there who also post.

For specific exercises look up Margaret Martin - Canadian physio - ROS also have some basic routines on their site - you need to do weight bearing exercises to build bone. Exercising is the best thing you can do to build bone, DXA only scans for bone density not bone strength which is also important.

Like AF it’s a steep learning curve and you learn as much from the forum members, if not more, than you get from the medics. The meds for Osteo are really horrible and I decided best avoided - my scores are between -2 - -2.5 but REMs had me at low to medium risk of fragility fractures.

Hope that helps.