New dosage

[Vonnegut]

It’s a few days since I’ve reduced my first Flecainide to 50mg keeping the evening one at 100mg and my heart is behaving well. Hope it continues to do so.

[Cavalierrubie]

Why have you reduced your dosage, or have you been advised to do so? Hope it goes ok for you and wishing you well.

[Vonnegut in reply to Cavalierrubie]

I did it because when I forgot to take the first dose of the day and my heart was fine, I put it to a doc at my surgery that perhaps I could try reducing my dose and he agreed to let me try. I’m not keen on the side effects - it seems to add to my fatigue and problems with my digestion that I never had before ( they are listed as “rare side effects”). It seems to be going well so far and feel the evening dose is more important as I didn’t like my sleep disturbed by episodes. Of course, if things fail to continue as well as they have been the last few days, I’ll return to taking the previous dose.

[Cavalierrubie in reply to Vonnegut]

Oh l see V. Hope it all goes well for you. Side effects can be horrible with some drugs. It’s worth a try if you are having problems. Xxx

[Vonnegut in reply to Cavalierrubie]

Thanks, it’s encouraging to find that Tracy “liked” my post too, though it might have been because she was pleased I’d finally realised how I could post things as I’d only replied to others since I joined!

[Singwell in reply to Vonnegut]

I'm sure it isn't that! I found that I could take lower dose in the evening when I was on Flecainide. The dosage is only a guide and I think it's up to individuals to find their sweet spot re management. Provided of course that highest dose is never exceeded. Fingers crossed it works well for you!

[Vonnegut in reply to Singwell]

Thank you.

[secondtry]

Good initiative! Personally if I get the courage to do the same, I would probably use a pill cutter and do 75gm am & pm because it is less erratic for the heart.

I would also do the first step down for around 6 months before considering any further reduction, as I have been on 200mgs for 11 years.

[Vonnegut in reply to secondtry]

As the pills are so small I don’t think my pill cutter could manage splitting them in half and the 50mg and 100 mg seem to be around the same size which is why I always check which strip I have very carefully!

[Tapanac]

glad for you xx

[Budken]

I too had my dosage reduced, after stopping it entirely did now work. After two months of not taking it, I had an episode that PIP did not stop. It did resolve on its own however. The my GP ( not my Cardiologist ) suggested I start taking it again, but at the lowest dosage. So far so good, it had been over a year now.

[Vonnegut]

So are you taking 50mg twice daily then? When I was on that several years ago I still had breakthrough episodes so though they could be stopped in a few hours with 100mg, I was happy to take 100mg twice daily to stop episodes (except from the one that came around the time I must have been infected with covid with no other symptoms but a positive test result!) As I didn’t have a breakthrough episode when I forgot the first pill of the day, it was my idea to try the lower dose first ( and a doc at the surgery agreed and it’s been going fine so far. Off course, I’ll return to 2x 100 mg if this new regime doesn’t work. I just wanted to get rid of or reduce the “rare side effects”!!