There are experimental treatments that help better control afib or even cure it, like gene therapy. But information is scarce.
From what I understand, there isn't much interest from big pharma to create a pill that cures afib.
Cath labs and drugs like DOAC are like the golden goose for the pharma industry and medical professionals. It would be a bad business for them to cure the afib with just one pill.
I fear that the journey to cure afib is not a difficult one but they make it difficult in order to get more money from patients.
Does anyone have any information about experimental trials or even more, someone here who was part of clinical trials or who managed to fix their afib with less conventional methods like stem cells treatment ?
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snak3eyes
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I wish I had youe hope, but after twenty years in the game I wouldn't hold my breath. We know what AF is but not why AF is. In order to "cure" it one needs to know why it happens and that is the $64,000 question.(sorry showing my age there).
we don't need to know why AF is in order to cure it. there are many things that we don't know but that hasn't stopped scientists to make outstanding innovations. take electricity for example. it's still a mystery. yes, we know that electricity is the flow of electrons from a positive charge to a negative charge (conventional current) but we don't know how is it possible that electrons "know" about each other and we don't know the force that makes them want to move in order to balance the charge, and how do they know exactly how many to move to be just right, no more, no less but just right to achieve perfect balance. we have no clue what happens at the quantum level.
yet we managed to exploit this physical phenomena and build so many applications.
I don't think there is someone who has the cure for afib and keeps it in a locked box.
But I think that some group of people have a strong lead about a potential cure but they don't pursue it because that isn't going to generate too much money for them
There isn't a magic pill to cure AFib altogether because there are so many potential reasons , some in combination in one individual , which can cause people to develop AFib.Unless , you had AFib temporarily as a severe symptom of another illness or infection , AFib can be corrected with treatments , it can be managed with treatments , you could be very lucky and your self care and medical treatment could leave you AFib event free , but you would still have the potential to have your AFib triggered.
Even if you are AFib Event free and everything is being successfully managed most people would still need long term preventative treatments ( either as Self Care or as essential medication )to reduce their risk of other health issues.
Having AFib isn't just a matter of a one pill deal , one pill would not fit all.
Trust me , if Big Pharma could find the pill that could be the " cure" they'd make it and market it , and make a fortune off it, just as they do for other new treatments.
Yes, there isn't a magic pill that cures afib. But does big pharma really want to make one ?I don't think they would make it. They run the numbers and see that is a better profitability to keep us sick.
At first I thought is Thyroid Cancer caused AF which caused my stroke so reversing medical issue thyroid cancer surgically removed AF would go away.
Why only rapid H/Rate day as my normal H/rate avge is 47bpm.? But my AF is persistent as it was diagnosed. Symptoms discussed prior to stroke could have been ponting at AF then - sweating and resting during exertion.
But calcification of 2 lymphs and another area in that vicinity, could be cancer still there. Hospital surgeon investigating. Another CT scan with contrast in May. Papillary cancer grows 1mm year. If still got cancer another chance of AF disappearing.
Yeah ... well, good luck with that. I addressed and researched my own AF misfortunes. In doing so I found my paternal side ( genetically speaking) seemed predisposed to AF and its assorted associates in crime and also food.
I decided I couldn't do much about genetics but I could about food. Trigger identified .. trigger sorted all helped by medication for life = one AF event every four or five years. At 80 now that'll do me. TBH and selfish, I don't care about the wider world, just care about me ............ dun me own thing - got me own results. Sorted !
Our own investigations into our unique food/chemicals/allergies/intolerances and the inflammation they cause in our bodies is the best place to start. Some triggers are common and most here know to avoid caffeine/alcohol/artificial sweeteners/sugar etc but I rarely see people really try to work on themselves or be willing to accept lifestyle can be the cause. Eating adulterated denatured ultra processed food and drink that disrupts our gut microbiome and endocrine system is a good place to start. Why wouldn’t you spread the word on your findings to help others though?
My mum and both of her sisters had AF - my mum from her mid30s as did their mother. So def genetic in my case.
The only trigger I’ve identified is MSG. I recall between 2005 and 2008 I had 3 episodes ALL after Chinese t/a food - I only had 3 Chinese t/a meals in that time period. I’ve avoided MSG since but as AF is progressive I hadn’t found my cure and still carried on get AF increasingly often until needing/choosing ablations in 2018 and 2023. One short nocturnal episode (Sept 24) since Jan 23. After….. inadvertently consuming MSG.
This last month I’ve tried avoiding free glutamate (no tomatoes, no fermented or pickled foods etc.) but haven’t noticed much in the way of reduction in single or short runs of ectopics.
I did get intracellular elec testing in 2010 which showed below range Mg and way above range Ca. This, I believe, is my genetic problem. Even 12 weekly IM injections of MgSO4 and oral Mg supp didn’t/wouldn’t rebalance this. In fact I actually found that Mg supps made ectopics worse.
Not only that! "People made sick (by vaccines) = a bunch of new customers!"
This time not talking about COV vaccines but mmr-vaccines for the kids. In my country, in 1980., we had 1 autistic child in 1000 children. Nowadays, we have 1 in 57 (my wife says to have found the information of 1 autistic child in 7 children).
Just look around you, in UK, and at the people in the USA. Both populations have 67% of overweight and obese people. Coincidence!? I wouldn't say... There is a group of the people in this planet, I call them "greediest of the greedy", who live for the money and power, and who do not price other people's lives at all. Would you expect them to find and distribute the cure for AF!?! Of course, not.
the autistic and adhd etc diagnosis jump is easily explained by the open availability of diagnosis now . In the 80s only the most errant children got any attention from child psychiatrists. Look how many undiagnosed dyslexics there were.
And obesity is entirely explained by junk processed food and lack of exercise in modern western lifestyles.
We also have an increase of fat children number. At about 1980, we had 1 fat child in 100 children, nowadays, we have 1 in 3 children. We also have very high percentage of children with diabetes2, what was not known before etc.
I agree very much about "big food". In an attempt to attract customers, restaurants (at least in my country) offer very big meals. My wife and me always share one portion and are not able to finish even half of the portion. The food at restaurant, being of excellent quality and being paid for, has to be eaten to the end (by many). So, whoever feeds at restaurants, is in danger of getting fat with the time. I would restrict, by law, the portions of the food and thus preserve the health of the people.
Another reason people get fat is "being bored", meaning not having what to do (in a flat, usually). Whatever you try, whatever you do, you always bump into fridge and open it... So, during the whole day, we eat because there is a stupid program in the TV, because we are angry with the neighbor, because we have nothing better of to do, because we want to have something giving us the pleasure...
It took me years to get a diagnosis for my son. I disagree it’s the awareness that explains the rise in numbers. Autism traits are very specific and I don’t remember one child throughout my school years with those very odd presentations. Now, everyone knows or is related to someone or several people with autism.
This is true but it is also the case that what is called Autism now is wider than what was called Autism then. The evolution of Asperger's into Autism is one example. Sadly I remember quite a few children in my school years that got no help when it is obvious now with hindsight that what they had then was Autism.
If life was only that simple. If there was such a magical cure which could be invented, you don't think governments might like to know? The mafia? The mob? The wealthiest on the world? You think ‘big pharma’ are so clever they can hide it? That all scientists are part of that conspiracy?
An Australian scientist discovered a wonder vaccine which prevents cervical cancer. If he followed your conspiratorial thinking, the vaccine wouldn’t exist. Australia is on track to have eliminated cervical cancer by 2035.
There is no conspiracy. While big pharma might control some things through greed, there is a CEO of that big pharma held accountable. If anyone is holding the world to ransom it’s people like Elon Musk and Mark Zuckerberg, not greedy pharmaceutical company CEOs.
"The mafia? The mob? The wealthiest on the world?" - The corporate actually.
You can ask anyone who works in a corporate, that basically their main goal is how to increase their revenue year over year. At the end it comes down to just that: money.
Oh dear … a site for sensible discussions - around d a medical issue - always gets overtaken by the conspiracy theorists / anti big pharma, who pile in with their facebook ‘facts’ or data supplied by their friend Maureen, a school dinner lady , who knows someone who’s sister had a heart attack three weeks after being vaccinated. What you always find is that if you actually drill down into their claims , they are made up or actually wrong . What’s so sad is that this started with Andrew Wakefield over a quarter of a century ago with MMR . He was proved completely wrong and yet even now he is out there with a following of disciples. All not medically trained.
No conspiracy theorist here. I'm only searching for data on experimental trials.
Like data on xenotransplants trials, they work on it for 20 years or so but data it was unavailable. It just now made the news that they successfully made a kidney transplant from a genetically modified pig to a human.
Last year they did a pig heart transplant to a human. The pacient lived for 2 months but died because the pig heart had a virus that they missed during screening. The team said they learned a lot from that and they are more confident now than never that they can successfully develop heart pigs compatible with humans.
All eyes are now on the kidney trial transplant patient. If she lives and has a normal life, this might become mainstream and could soon be a "cure" for many terminal patients: pig organs.
Sorry no info about new trials. I think the best chance of finding a'cure' to help the majority is likely to come from the 33K members here.
In my case, I believe stress in all its forms as part of life today is the principal root of my AF. My AF is vagally mediated and is closely linked to what's going on in my mind first and gut second.
However, acting effectively on this hypothesis is not easy. I am working on ways to either reduce stress or cancel it out with another activity. In the meantime, I have to contribute to Big Pharma's profits (with begrudging gratitude) by taking Flecainide 😁.
Meds to influence the vagal nerve, with its all-important effect on AF would almost certainly bring a lasting cure.
But this path is not researched, because ablations are the cash cow of the cathlab. It’s as simple as that.
Companies like Boston Scientific, who design and produce catheters spend fortunes on seminars, videos, trips, and wining and dining of cardiologists to promote their equipment.
My friend cardiologist is a subscriber to their promotional messages. Fun fact: in these messages they admit that there is a 2,1 % risk of ‘serious events’ and also that there is a considerable risk for narrowing of the pulmonary vein.
Moreover, they admit that in the best case scenario, the succes rate is only around 75%. (Much less in practice) . One fourth of the procedures thus will yield no solution at all.
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