vertigo

[Costello99]

Hi I’m 24 yrs old I’ve had vertigo for 6 months and can’t get rid of it I do my stretches in the morning and throughout the day and take beta histamine I tried stemtil which worked for a month but wore off soon after I’m waiting for an ent but that will be awhile and I’m booked in for physio it’s horrible to deal with this day to day

[jeanjeannie50]

Have you tried the Epley manoeuvre? If not Google it. It can rebalance the crystals in your ear that have moved.

Jean

[Costello99 in reply to jeanjeannie50]

I’ve been trying this now for a week

[jeanjeannie50 in reply to Costello99]

Bless you, you've done your best then, time to seek expert advice. It must be an awful feeling - feel for you.

BobD has made a good suggestion.

Jean

[jeanjeannie50 in reply to Costello99]

You've probably found these messages re vertigo already. If you haven't here is the link:

healthunlocked.com/search/p...

[BobD Volunteer]

I see you onot joined us today. Why not try searching Healthnlocked for a vertigo forum. This one is for people with atrial fibrillation and whilst we are sympathetic may not have the knowledged others do.

[Docretd6]

You're young so it isn't likely to be a stroke, or to do with the heart and arteries, - and vertigo diagnosis is usually split between ear nose and throat surgery, and Neurology. Balance and hearing go together, as you know, because the 'sensors' for them as you might say, are so close together. But a comprehensive testing would be for all your 12 cranial nerves, not just for the 8th hearing nerve. Any history of head injury would be important. I'm saying I think your whole brain neurology needs checking, ideally, not just the ears. The hearing nerve on each side, runs right into the brain. But usually the problem is at the ear end of the nerve. You need to have an ear infection which has spread to the balance mechanism, ruled out, and a benign tumour of the hearing nerve itself (acoustic neuroma), ruled out. I'm struggling a bit to say anything more useful. It would be important whether your hearing in each ear, is normal. Do you have tinnitus (ringing in the ears) ? If the vertigo has been steady and not increasing, not worsening, for 6 months, - then that is against a drastic infection or a drastic nerve growth. An acoustic neuroma could be unchanged and constant over this length of time.

[Costello99 in reply to Docretd6]

I’ve had an MRI and CT scan to rule out tumour and there is also no problem with the ear as shown by the scan

[Docretd6 in reply to Costello99]

Thank you, I see. Well that is very reassuring so far as it goes. It should still be possible to pin the vertigo down a bit more clinically, - whether you have nystagmus, or can have nystagmus induced?? I guess "caloric testing" is probably a bit passé these days. Your account that Stemetil initially controlled the problem, makes me wonder whether an _increased_ dose of Stemetil might not help?? - at least meantime. I'm guessing that the final diagnosis may turn out to be, vestibulitis.

[Costello99 in reply to Docretd6]

When I went to the hospital I was just told I had vertigo not a certain type ? The CT scan and MRI were both clear with the ear canal being okay and the brain being okay no tumour but yet here I am still dizzy! with stemtil my doctor only recommended I stay on this for a month anyway I’m losing hope at this stage with both the ear and the brain being okay what else could be causing me to be dizzy

[Docretd6 in reply to Costello99]

Sorry, I should have been more specific. Vestibulitis is an inflammation of the balance-canals in the inner ear, on one or on both sides. Which side is affected, right or left ear, or both, controls how the vertigo works in practice. Yes, the scans are negative but that doesn't mean that everything is working normally, - clearly it isn't.

Vestibulitis and vertigo are usually associated with jerky eye movements, when you look to one side or the other (just with your eyes). What happens is that the sideways eye tends to drift back centrally, then suddenly snaps-back out sideways again. Which way the snapping-back occurs, tells you which balance-canals have the problem.

Another way of telling where there the problem is, is called "caloric testing." The balance canals work through having fluid inside them, and like all fluids they rise up and sink back when they are warmed or cooled. Warming and cooling the outer ears, often shows where the problem is.

[Costello99 in reply to Docretd6]

That is why I am waiting to see ant ENT but it’s going to be a long wait I’ve also booked myself in for physio

[jeanjeannie50]

I know this is a silly little thing to say, but have you tried sitting on the side of the bed for 5 minutes before getting up. I had a few spells of vertigo a few years ago and discovered this helped to cure mine.

[Costello99 in reply to jeanjeannie50]

I get up very slow in the morning and do my exercise with the neck but still nothing

[Blearyeyed]

Have you had the Epley Manoeuvre done by a trained professional? It may be worth asking for your GP to arrange an appointment for this , or explaining the situation via phone to your Physiotherapist and requesting if you could get a referral to have that done before you begin a new physio course , as the Vertigo , if it is BPPV , is not going to help you to successfully do your therapy.

Some physios are actually trained in doing the Epley on patients so they may have someone there who would see you for this instead of you doing your exercises on the day that your a physio appointment is due.

If it doesn't turn out to be a crystal problem there are various other things that the GP or ENT can do to work out the cause.

Including other medications.

In the meantime try to move from one position to another more slowly, it's better not to bend forwards too far or to turn your head too quickly.

[Costello99 in reply to Blearyeyed]

Thank you I appreciate the advice

[foxglove1]

Hi I had this. In certain positions ie looking upwards, or turning in bed on waking with the room spinning. Its horrible. Mine was diagnosed as BPPV and all to do with the crystals in the ear. I had a neuro nurse specialist who got the crystal back in position after 10 minutes!

[Costello99 in reply to foxglove1]

Hey how are you but the environment for me is not spinning it’s just more in my head is dizzy

[foxglove1 in reply to Costello99]

thanks I am well today. have you asked your GP about BPPV (forget what it stands for) but sounds like the crystals in the ear as someone else also mentioned. Good luck

[Costello99 in reply to foxglove1]

My GP don’t really know what to do with me anymore

[Costello99]

The doctors are calling it vertigo so I’ve been to the hospital where an MRI was done and CT scan was done which came back all clear. ECG of the heart was all good also my blood pressure dropped when I stood up I also had my eyes tested and they were fine. all that’s left is the ear which I’m hoping is the problem so hopefully I will see the ENT soon

[C2sam in reply to Costello99]

Hey I think I'm having something similar to you. The last few weeks been getting vertigo especially when walking, it's like being on a boat or being drunk everything around me is moving. Saw a doc and they said eyes and ears are fine and said "maybe it's your arrhythmia" which didn't help. I've had ventricular bigeminy for months now but this vertigo has just started in the last 2-3 weeks. Do you also get loss of appetite, nausea and dyspnea? Other symptoms I've been getting in case you're having it too. Driving me insane so interested to hear what you find, please let me know if you manage to pin it down on something in particular 🙏

[Costello99 in reply to C2sam]

See that’s the thing with my condition the environment isn’t spinning it’s just inside my head I’ve had it for 7 months now I’ve had CT and MRI scans and they are all clear I recently seen a vestibular physio who done a series of tests to tests my balance and reactions which are all okay she ruled out bbv and vestibular neuritis so I’ve to wait for an ENT appointment now I am doing everything I feel what you’re going through