I am hoping this will show properly. This is my new adventure. Implanted the day before Valentine’s Day February 13 and will be connected on Monday, 27 February. I am hoping it works and I truly get a second chance at life.🙏🏻 According to my EP, if it all continues as the first part did, I could find this life-changing for me. I pray others get the same opportunity. He told me just a couple of years ago what they had for a pacemaker would not work for me, and I would continue in heart failure, which usually ends up meaning a transplant. If a person is lucky. They are working every day to find new ways to give us quality of life. 😊
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DawnTX
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hi hon thank you so much. I don’t know if anyone might be interested, but I am lucky enough to be given the chance with it because the other pacemakers would not work for me. I have no doubt there are others I would here just like me. I met the tech who will help my doctor when I was in the hospital on the 13th. I will also see him again on the third. I think it is with my doctor again to fine-tune things. I am starting to get excited I’m just afraid to be excited in case it doesn’t work right like my cardioversion. 😞 it had not crossed my mind that I wouldn’t get some type of relief from that so when they told me it failed, I was really upset. These are things we all need to be aware of as far as things don’t always work. My doctor has been very positive and upbeat, however I always get that little something from him knowing he can’t promise anything. It’s better to know that then be crushed if it fails.
but I think I see a light at the end of the tunnel. Hopefully it’s not a train lol.
Hi Dawn - it has been available for a few years now and it’s the algorithm which is unique.
I’m curious as to why it was not connected immediately? Mine was connected and programmed to restrict my HR to 70 and then adjusted 6 weeks later. I was in AF when PM was implanted - which stopped as soon as it was switched on. I have a slightly earlier version without all the bells and whistles but it certainly gave me a new lease of life and sincerely hope it works as well for you.
hello CD. Could you clarify a bit please. I thought a pacemaker didn’t stop the atria fibrillating but provided regularly heartbeats from the ventricles. Did all your symptoms disappear when it was turned on?
Interesting but I always was told that no kind of 'pacemaker' device would work with AF as it was not a case of ensuring there is a beat but stopping the arrhythmia and tachycardia. We certainly need to know far more about such a device and how it works, especially if it can help just a small proportion of people.
Sending prayers up for you to have a new lease on life! Let us know how you are doing. Your posts have been so helpful to a newbie like me and I wish you well.
All the very best Dawn in your last step to having a far better quality of life. I have both the pacemaker and an AV node ablation and life has changed immeasurably for the better! The AF is still there but you don’t feel it as the pacemaker is in charge of the main heartbeat. It is the main heartbeat! I have had only one problem and that was with ectopics. My superb cardiologist upped the pacing to 80 bpm and I felt nothing more. I have a “Merlin” transmitter sitting by my bed which can track what is going on with the pacemaker and download the information to the hospital. My next checkup is merely a download from the pacemaker in a year and then another appointment the following year which will be in person. In theory, I believe the pacing team could make tweaks to the pacemaker without you having to physically attend the hospital but that this is never done as it would be totally unethical. You will find your quality of life improvement a real gift so much so that I wondered why I hadn’t had the procedures years earlier! Of course you will have to stop playing rugby and other contact sports now Dawn!! AnneL
where in Tx did you have your ablations? Curious as I came from Minnesota to Austin after I had three in Minnesota. After two years of NSR began to have funky beats only at night. But calmed down to now intermittent af and hr jumps from 70-130 back and forth. Yes I’m in contact with Tx Dr who says no pacemaker. Here in Minnesota trying to seek care from MHI my previous Drs - on meds that are playing havoc
Originally MHI -(after my 2019 third ablation)wanted to do a pacemaker but said I would still feel the af and still be in at
Headaches from med so terrible. Trying all my previous (from 2014 first af encounter) techniques/ breath, yoga, magnesium baths lotion
It feels so depressing and hard to have hr jump around/ been in the ER , talk with nurses
Finding gratitude each day for this column and my faith
I went through this procedure last year and had a Medtronic Azure pacemaker put in. I suffered many years with Tachy/Brady PAF and had very extensive symptoms which affected my QOL. Now 6 months since I can honestly say it was the best procedure I have done. It is slightly worrying that it is not reversible and somewhat of a last resort and although the AF is still there my pacemaker keeps my ventricles nice and steady while my atria are dancing and I feel virtually nothing. Best of all I can sleep well!! 🤩 Good luck with your procedures and you'll be dancing in the aisles in no time. xx
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