I just need a bit of reassurance really. I was ‘diagnosed’ with paroxysmal Afib in early July in a&e, with an EKG monitor, but when I went to the doctor to discuss, he didn’t believe that I have it. Is it possible that the a&e doctor got it wrong?
I have had a echo and everything looked normal as well as a 24 hour holter monitor which also came back within normal limits. I have a cardiologist appointment at the end of the month but I seem to, at least once a week, randomly have a heart rate of around 100-130bpms. I’ve been given propranolol as a pill in pocket, which definitely seems to work and I haven’t had any side effects from.
It’s really starting to get me down as I’m only 22 and there just doesn’t seem to be a reason for me having afib. I’m terrified that something bad is going to happen to me as a result of this afib.
I’d love some reassurance if anyone has any, just need some rational thinking, and would love to hear from people who have been diagnosed with AF in their 20s.
Thank you!
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Hi pinkbottle1, I think it's highly unlikely that the A&E doctor was wrong. Although it's more likely to have Afib from your 50s onwards, there are plenty of sufferers under that age including some in their teens and 20s!My Afib started in old age but at the same time that I was looking for a diagnosis, my friend's daughter of 19 started to suffer something remarkably like it. When we compared notes, we both had the same problems in getting medics to take us seriously. We both waited for literally years, and in the end she had to have an implanted device to flag up what was happening. It's the paroxysmal element that causes the problem. With its coming and going, it's a lottery to get it at a time when you are being monitored. Don't allow yourself to get put off, or offended by doctors who seem sceptical. Persist! It's good that you have a cardiology appointment booked already.
Generally speaking, Afib isn't a killer. Not even life threatening for most people. But one of its side effects can be, and that's an increased risk of strokes. But even the threat from those is reduced in a young person with no comorbidities (two or more conditions occurring at the same time. That's much more common in older people, especially cardiovascular conditions.)
So I'd say, "don't panic, but persist in seeking a second opinion." A & E doctors won't dish out diagnoses unless they have seen evidence.
The trouble with GPs is that they are GENERAL practitioners and often knw little about AF. Yes it is unusual for one so young to present with AF unless brought on by binge drinking but it is not unknown.
You had me confised with the American EKG terminology by the way as in UK we say ECG and I am guessing this was just wearing one whilst in A and E . Atrial fibrillation is very easy to see on ECG so I very much doubt that the doctor there was wrong. Your problem now will be getting repeat results if you are paroxysmal (it comes and goes) . I would susggest that you ask to have a consultation with a cardiolgist as is your right and if possble an electophysiologist. These are electricans of the cardiac world and experts on arrhythmias.
Af is a scary diagnosis so the more you understand it the less fightening it is so go to AF Association main website and read all you can as knowledge is power. Ask us questions and we will try to help.
Hi pinkbottle! Are you an endurance athlete by any chance? There is a set of younger people who develop afib in conjunction to being an endurance athlete of some sort. But there can be other reasons too.
I would expect the A&E doctor to be correct on interpreting the EKG reading. Since it is paroxysmal, you could wear a holter monitor many times and never see evidence of it. That happened to me. I knew I had a long-standing problem with periodic irregular rhythm that I thought was probably afib but holter monitor never caught it. I had to go into ER (here in Canada) to get an EKG while it was happening. And that confirmed Afib.
Also, have you experienced prolonged anemia? Because that can definitely instigate afib and did in my case. I was older when that happened. But persistent anemia at any age could instigate afib. Have you looked at your recent blood work? What is your hemoglobin level?
I had periodic (paroxysmal) afib from 2015-2021 caused first by anemia and then perpetuated by a drug i was taking to manage the condition causing the anemia, Crikey!
I chose to not take any drugs for the afib. Upon reading, I decided in my situation I was better off with out them. (Everyone is different.)
And then to my astonishment and delight, the afib seems to have (mostly) disappeared in Feb 2021, after I began an ivermectin protocol for something else entirely. I have had 2 afib episodes since february, each lasting 2 or 3 days, and each during an extreme heat wave here in Nanaimo, BC. Prior to that I was having an afib epsiode once every 2-3 weeks. So this is huge progress!
I am not advising anyone else to try this ivermectin approach, which does sound far-fetched and may not have any connection to why my afib stopped. But there are several logical reasons why ivermectin could have played a role in ending afib: 1) it's anti-inflammatory properties; 2) it kills h. pylori, and h. pylori has been linked to some afib cases; 3) maybe it eliminated a gut parasite that somehow contributed to ongoing afib through inflammation, toxins, etc.
It's all conjecture on my part, and may have no connection whatsoever to why my afib of 6 years stopped. But I wrote an earlier post in this forum about it: healthunlocked.com/afassoci...
Good luck! I have looked into ivermectin a lot. and as far as I can tell, it is an extremely safe drug - used on humans for 35 years, some 3.7 billion doses administered worldwide, very good safety profile. Which is reassuring because at least you won't hurt yourself if you try it. and it might have some benefit. It's primary usage is an an anti-parasitic drug in humans and animals. But it also has anti-viral, anti-bacterial, and anti-inflammatory properties that are resulting in it being used (or considered) more widely.
I don't think you should be recommending this at all. You might have access to it in Canada for some reason, but the UK would take a very dim view of it being taken without medical input.
This recent news article from the trusted Guardian newspaper is worth a read. It's about the study rather than the drug as such, but the study was badly handled and withdrawn because of it.
Steady on! Ivermectin is a horse de-wormer. It's not for human consumption and only came to prominence because the lunatic Trump banged on about it for Covid. I would most definitely NOT recommend that. Ask a vet for their take on it.
Thank you, FancyPants54. I appreciate how we look after each other on this forum and promise not follow any thread without medical confirmation from a health expert. Thanks again and wishing us all freedom from AFib.
Hi fancypants in America ivermectin is approved for human ingestion for certain parasitic worms I'm sure D Trump had advice from some top doctors or such just saying
Ivermectin has many uses - mainly human. Its discoverers won the Nobel prize for ivermectin in 2015 because of ivermectin's benefit to humans. Nearly all common antibiotics that are prescribed to humans will also be prescribed to pets and livestock - even aquarium fish - when needed. So is your position that we must stop using antibiotics because animals also are treated with them? Ivermectin is an approved drug in nearly all countries and has been for years. Off-label use of drugs is very common practice among physicians everywhere. It's also considered oneof the safest drugs in the world. Maybe you need to do a little more research? Ivermectin was never recommended by Donald Trump, by the way. You're thinking of something else.
Totally agree with PlanetaryKim. I had anemia and stomach issues, which resulted in a hiatal hernia diagnosis. Then, 2 years later, suddenly woke up in AF. All checks done and no heart issues or problems found. I was 58, fit, healthy and of normal weight. Read up afterwards and it seems that the vagus nerve can stimulate AF due to the hiatal hernia/acid reflux. No cardiologist suggested that: I was just told that they couldn't find a cause for it. Had a cardioversion last year and now back in NSR. Still taking Bisoprolol but now down to 7 5 mgs and will reduce again, though have had higher BP in the past, which is the reason for taking them. I refused to return to blood thinners as I have an eye condition that is affected by taking them. On no other meds. So yes, anemia and stomach issues do seem to link with a random AF diagnosis.
Thanks, qp3usavk. I agree. I've posted before how my stomach and bowels affect my AFib episodes with some links to articles.I was not aware that anaemia may be a contributory factor !
I am controlling my AFib by not over-exerting and trying to stay calm and avoid coffee and alcohol. All the best.
Yes,my son is an extreme athlete, canoeing, white water rafting, mountain biking, off road motor biking, and he was not diagnosed until he was a bit older (35) by a fellow canoeist who is cardiologist. As we live in a province in South Africa where there are no EPs he went to Cape Town for an ablation. He is now 51, still keeps up most of his sports - regular exams are clear, no medication. I have the condition as does my 4 sisters, my father and a nephew (that I know of) so the familial relationship is evident, but we were not diagnosed until our sixties and 70s ( sixty being my youngest sister, the first diagnosed ) as we are symptomless. My cardiologist told me he second largest group of patients after oldies are extreme athletes of all ages,
I actually never had an h. pylori diagnosis, and i don't know if I did indeed have h. pylori. i was taking ivermectin for something else (Covid prophylaxis), and my afib disappeared and has never come back (except during heat wave). One possible explanantion could be that the ivermectin removed a mild h. pylori burden I didn't know I had. I am sure there are ways to test for h. pylori... but i don't know how exactly. Stool test perhaps?
You can drive yerself stir crazy with researching AF, BUT, it is wise to do so as the more knowledge you have of the condition and the greater your understanding of it becomes the more calm and accepting you'll become (hopefully). One thing though, talking of rational thinking - have a look at your family history, on either side, any generation that you know of that has a history of strokes and/or cardiac conditions.
Quite a few of us have a distinct genetic link with AF which may explain why it has appeared in your young life.
My daughter was diagnosed with it in her early 30's, but only in her two pregnancies. She is now late 30's and is a gym junkie and messes around with Thai Kick boxing too and resembles a stick insect. No more AF. Whether it returns when she is in her 60's we'll have to wait and see ( but I won't be around).
My paternal grandfather died from a series of strokes in the mid 1960's, assumedly some evidence of AF must be there. My paternal second cousin (we are both now well into our 70's) was diagnosed with it. ( interestingly his grandfather and mine were brothers).
And I have it - paroxysmal AF.
So, if you have a particular gene in your gene pool it may explain why you have been 'gifted' it so young.
Now, nothing bad is gonna happen to you. I was 65 when I was diagnosed and I'm 77 at the end of September. True it may be necessary to learn to remanage your life which may require to look at your diet and lifestyle either now or as the years go on. I am still active and control my AF with a mix of diet and medication. I also drive buses for 30 hours a week and manage to pass my annual DVLA inspired medical.
Do you own a car? If so I assume its insured in which case whichever medical professional is treating you should advise you on whether you need to report this to DVLA or your insurers. Maybe an idea to go on DVLA website, Medical Services Section, and look for AF and read what it says.
So - I think thats your dose of rational thinking you requested, for now anyway.
Thank you - alot of people helped me in the early days when this forum was hosted by Yahoo so its payback time.
No Andy, my daughter isn't on any meds at all.
When she stopped breeding the AF stopped. The childbearing process was the cause - pure and simple. I understand this is rare but not entirely unknown.
As I said her only medication these days is being a gym junkie and Thai Kick boxing which keeps her like a stick insect.
🙂 Not a life style that appeals to me even if I were in my 30's
Hi I'm surprised nobody has recommended the kardia device to track your episodes.It wasn't around when I developed paroxamal A/fib took a few years to catch it on an ECG by then it was much harder to treat.
A friend's daughter had these same episodes picked up on the kardia and within weeks had a cryablation and she has never had a problem since so catch it early save yourself
I have the Kardia Mobile device and use it when I go into AF. I bought it as I couldn't manage to capture what was going on with the NHS monitor as the episodes are few and far between. When I finally got to see the cardiologist, I showed him the recordings. He did give me another device that I had for a month and I managed to capture an episode on the final day luckily. There was talk of the Kardia device being available on the NHS but I don't think it's happened yet.
I’ve had PAF since my early 20’s and I’m now early 50’s
I had several drs tell me it was panic attacks before being diagnosed properly.
Unfortunately you can get it at any age, like many of us here I’ve learnt to live with it by changing my life style as in what I eat and drink and my job as I’m a builder. I know my limits now as where before I just use to push myself and then most days have an AFIB episode. I take flecanide and Tildiem daily which most days keeps it under control, it’s scary at first as like you I didn’t want to do anything or go out incase something bad happened but once you can adjust to living with it you’ll see it’s not that bad. Wishing you all the best.
I would try to get a specialist. A 24 hr monitor is't always long enough to capture PAF.
Life style, excessive endurance exercise, and heredity are all causes.
I think I got my from very high levels of Vitamin D. I misheard my wife and took daily doses of what she suggested we take weekly. I would go into arrhythmiafor 3 days at a time until I finally got it out of my system. The A-fib progressed, as is its way, from yearly to monthly. Then I took the rhythm control drug Flecainide. Been clear for 5 years.
If you can get a copy of your EKG print out it would be very easy for any doctor to see if you had Afib.
There is also a 14 day stick on "Patch" EKG monitor that can capture considerably more events than the 24hr clunky Holter. Zio makes one that I have used twice. Never caught AFib but did catch tachycardia. It was a daily episode lasting LT 9 sec that I have learned to recognize as a rumbling in my chest.
If your doctor is being uncooperative you can buy a Kardia portable EKG for $100 from Amazon. It is a 4 finger EKG and would show various arrhythmia including AFIB. You could then save it and e-mail it to whom ever.
Research Afib so you can be your own advocate. If you know you are in Afib you will be able to recognize the regular irregular beat. Mine is a couple of beats, a skip, then a big BEAT... repeat.
This board has a wealth of information.
Try not to worry. Treatments are getting better and it won't kill you.
I received the same diagnosis at 34 years old, I have no other underlying conditions and lead a healthy lifestyle. My echo was also normal. My GP also did not believe me or my symptoms since I did not have them at the time I entered their office and because of my age/lifestyle. I agree with the others that the EKG surely detected an arrhythmia, although in my case an electrophysiologist needed to analyze the reading from my A&E visit as well as a holter monitor to realize that I had another type of arrhythmia even though the EKG machine diagnosed it is as Afib while I was in the A&E. So it is really important that you push your cardiologist or electrophysiologist for answers and a dialogue with them about what you are experiencing. I have also met a few people that were diagnosed with Afib in their 20s (without any obvious cause) since starting to talk to people about my arrhythmia, so you are not alone! Good luck and take care!
Just buy a Kardia device. They cost about $100. When your heart is racing put your fingers on the device for 30 seconds and it will tell you with good certainty if you have Afib. You can email the results (EKG)to your physician.
Believe me, everyone apart from one or two exceptions gets depressed when they learn they have af. But please try not to worry as this is something you can live with. Look up lifestyle changes for dealing with this pest as they do help loads, and follow the advice on seeing an EP or cardiologist as soon as you can. Keep your chin up and best wishes
I was only 33 when I was diagnosed 2.5 years ago and went through exactly the same process with my gp. When it comes to AF diagnosis gps are generally useless.
I had the best part of a year trying to convince them that something was wrong and that I wasn’t anxious like they kept telling me. You need to jump over them as soon as possible and get to a cardiologist, preferably an electrophysiologist and get the ball rolling. I went private for a consultation and things moved extremely quickly after that. Best £250 I’ve ever spent.
In terms of what caused it this is a question that’s almost impossible to answer. My af just came out the blue for virtually no reason. Some people will say it was caused by my kickboxing training but im not personally convinced about this. There are plenty of athletes out there who do not suffer from af and only a few famous documented ones that do, so I don’t personally believe this theory but could easily be wrong. I think there is some other underlying cause that we are currently unaware of.
It is scary at first no doubt and you can feel like your life is over especially at such a young age but you will get through it and start to learn to live with it. Making progress with my diagnosis helped me massively and soaking up all the great info on this forum help me greatly as well.
Good luck and try not too worry too much. Easier said than done I know. 👍
+1 for the Kardia device. If you like tech, especially. Some people here will tell you that it will just increase your anxiety, but TBH I think knowledge is power and knowing what your heart is getting up to can only help. Showing your ECG trace to your GP will also serve to convince him. Research it a lot before buying though, there's lots about it in posts on this forum.
Be warned also, hospital staff in the emergency department know little about AF and often disregard it entirely. After all, it won't kill you outright. General Cardiologists also tend to have varied views on AF and seem much more interested in the tubes and valves carrying the blood than the electrics of it's pump (the heart). The specialist for that is called an Electrophysiologist, or EP.
Hi pink bottle,I have had paroxysmal AF since I was a child (I am now 70). My consultant electrophysiologist told me that I was likely to have been born with it. I used to feel my heart occasionally skipping about from about the age of 9, but didn’t think anything of it. At about the same time, I began having episodes of fainting along with occasional visual disturbances and severe dizziness (much later diagnosed as TIAs in a stroke clinic). I was taken to the family doctor who prescribed a tonic. The AF only occurred infrequently so was hard to ‘catch’ it. The first time a problem was identified formally was when I attended hospital antenatal appointments in my late twenties. I started medication then. The AF became more frequent and severe as I got older. I bought a hand held Omron ECG device which was a godsend as I could record the episodes and send to the hospital. My heart rate would often get to175 and the rhythm would be very irregular. In my fifties I had my first ablation procedure which didn’t resolve the problem. I had several more and the last one, which was about 7 years ago was successful and I have been free of AF since then. In the last procedure, as well as ablating the pulmonary vessels, the superior vena cava was also ablated. I am so grateful to the electrophysiologist who did not give up on me. I now only take anticoagulants and statins. The AF Association has been a great support. Their website and annual conferences are excellent.
When AF cropped up for me some years’ ago, I had various times of wearing monitors to detect it but as it was paroxysmal it didn’t necessarily occur at the time so the consultant I saw suggested that if I knew I was having an episode, I should go to my local surgery and ask them to do an ECG there and then. I thought this was a most unlikely scenario given even then, how hard it was to get an appointment. However, I did just that one day which led to me being packed of to A&E by ambulance. I recommend Kardia as have several people on here and also suggest you might like to read ‘The AFiB CURE’ by John D Day, MD and T. Jared Bunch, MD. They are both Cardiologists in the US so different medical system from the UK if that is where you are (and I am). It gives a lot of info about AF, what questions to ask and lifestyle changes. Good luck!
I was in my 40s when the AF onslaught began. It's been a bit of a rollercoaster but it is what it is. It will drive you mad looking for a cause, if there's nothing obvious that triggers it. As others have said, it would be unlikely that the A&E dr called it wrong........... having said that, I did ask a nurse after an ECG if I was in AF to be told "I think so" I asked to look at the ECG and pointed out the lack of P wave and she just shrugged 🤣🤣🤣. As Uncle BobD has said many times on here, knowledge is power. Search this site and BHF for information and always ask questions of your drs, not matter how insignificant you think they are. You can also phone the BHF and they are excellent at explaining things. Easy to say but try not to worry.😊.
My experience is that things can get in a muddle with the health service so it would be good if you can get a cardiologist to confirm one way or the other whether you have AFib, based on the ECG readings taken when you were in the hospital. The A&E doctor was most likely not a cardiology specialist and neither would your general doctor be either.
My muddle arose because the paramedics who took me to hospital told me I had AFib, based on their tape. When I was admitted to the hospital for observations I was told no, not Afib but sinus tachycardia. It turned out the hospital completely ignored the paramedic's ECG but looked at a later one taken in A&E when I had gone back into sinus rhythm.
Hi pinkbottle. My sympathies are with you - but I also echo others advice not to worry too much (however difficult that is!). I first had paroxysmal AF when I was 27, and I'm now 70. In the meantime, I have led a very full and active life. I used to think nothing of cycling 12 miles to work, putting in an 8 hour day in the office, and then running 10 miles home. I was a pretty good orienteer, spent a lot of time in the Lake District and Scotland either scrambling or doing long hill walks, and ran 2 marathons in the year I was 50. I was also a sports diver.
When it first happened, I thought I was going to die & it took a long time to realise that it wasn't likely to kill me. After a (long) while, I found it more of a nuisance, because I couldn't do much until I returned to normal sinus rhythm - but when I did I was perfectly OK again pretty quickly. You'll get much better advice and treatment than I did back then - oh, and don't try taking anything without your cardiologist's agreement! I'd also recommend the Kardia device if you've got the spare cash - I've got one and it has been useful to be able to e-mail traces to cardiology on occasion.
Finally, I would say watch your lifestyle. Unfortunately, 2 years ago I developed persistent AF, which has not responded very well to cardioversion and might now be permanent. Try to establish your triggers, and avoid as far as possible. Mine were alcohol, except in quite moderate amounts, tiredness and stress. My lapse into persistent AF was basically through pushing myself way too hard (I was starting the process of building a house on the Isle of Skye, when serious problems developed with my wife's family in Manchester. Like an idiot, I tried to sort both problems in parallel and ran myself into the ground)
My first episode was in 1963, when I was 19. It was very scary, as no one seemed to know much about it back then. At first, episodes were years apart, then eventually months and finally days. I had an ablation 3 years ago, and probably should have had it sooner. I still have occasional mild episodes, but they're usually months apart, and I just relax and let them pass. I'm now pushing 78, so no early demise in my case.
Hi, I was lots older than 22 when I was diagnosed with AFIB, which turned out to be paroxysmal. It was very scary at first but mine seems to self correct and I came to realize that I wasn't going to die. You will be OK, it won't kill you. You might ask your doctor about and anticoagulant to avoid stroke - that was my biggest fear.
I am a little puzzled by a 'diagnosis' of atrial fibrillation - I was given the same diagnosis by a cardioligist. When I suggested that AF might be a symptom caused by an actual condition, rather than being a disease in iteself, I was dismissed. This, in spite of the fact that the doctor explained that the two instnaces of AF that I have experienced were casued by a viral infection. Viral infections also have other symptoms, but I haven't been 'diagnosed' with any of those as conditions requiring life-long medication.Obviously, it's different if your heart is permanently arrhythmic, but if you occasionally experience AF and the underlying cause is identified, do you have a condition or a symptom?
I'm sure suggesting such a thing here will be dismissed as dangerously conspiratorial.
I was diagnosed (and I say diagnosed because I realised afterwards that there had been episodes in my 30s that were not caught ect) in my early 40s.
Because the Holter was a short evaluation and the week one the Holter battery died, ergo caught no episodes even though I was having them, I also had a cardiologist query whether A&E got it right. 280 plus heartbeat and a cardioversion weren't sufficient I guess. My tests showed an otherwise healthy heart.
I actually asked for the A&E documentation (Freedom of Information - right to see your own medical records) from the hospital to access the EkG of the event.
Then when I proved it - it was we need to catch others before you can get an ablation. 'Sigh'. I have a Kardia and an Iwatch to keep track.
I was put on a beta blocker and pill in pocket. No blood thinner because low risk, as you probably have been assessed as.
Once you get your head around it and learn your triggers and not to let it rule your life it will be easier.
I am 29 and I went through a very similar experience earlier this year that I want to share with you.
I was starting to get chest pain (I believed was muscular) and pushed my gp for an ecg to rule out anything scary since I have had pvc’s for as long as I can remember. She approved and called me to say I was in AFIB and needed to get to a&e immediately.
I arrive at a&e where all of my tests come back normal. I go on to have an echo and wear a 7 day holter and meet with multiple cardiologists all of whom are adamant I don’t have AFIB.
They told me something very interesting. ALOT of the time when ecg’s are recorded they run through a computer generated system - this will automatically label your ecg with the closest arrhythmia it can. For me I have a fear of the ‘white coat’ and anything health related really so on hospital my heart goes NUTS! it turns out that my ecg showed no p waves and a high heart rate - so out came the computer generated AFIB diagnosis - now because GP’s and other health authorities aren’t always as clued up on reading these as actual cardiologists, more often than not they simply rely on the information presented to them.
Upon investigation (my 7 day holter) I was told I had a junctional rhythm which can come as a result of anxiety but mostly is there because I have sinus arrhythmia meaning my heart rate increases when I breathe in and decreases when I breathe out rather than staying steady - when my heart slows when I breathe out my hearts natural back up pacemaker says “hold up!” And chucks out some premature beats which puts me in junctional rhythm - the biggest characteristic of junctional rhythm NO P WAVES! So it’s interesting! I’m not here to put doubt in your mind or try to confuse you further but for me every heart professional I see is adamant I don’t have paroxysmal afib despite this being what I was originally termed with, its extremely rare at our age for people with healthy hearts - I like you was thinking WHY me?! I was petrified I had some form of heart disease or undiagnosed heart condition. Yes as comments above show young adults can receive this accurate diagnosis but I would definitely push for long term monitoring if I was you. I bought an Apple Watch immediately when I was told I could have AFIB and have worn this solidly since Feb, it has not once flagged AFIB to me even when I have carried out my own ECG’s when my pvc’s and bigeminy have flared. Push further!
I can't guarantee the same results for you, but after two ablations, the first one for permanent AFib, when I started getting more irregular beats again last year, I began take the full suggested dose of liquid COQ10 daily, and it backed right off. I find now that if I miss a day for one reason or another, it picks up again, (realizing the missed dose in retrospect when I begin to be aware of the errant beats...so not psychological). Anyway, worth a try.
Good Morning - welcome to the Forum. If you would like any support, advice or information about AF - please do contact the patient services team on info@afa.org.uk we will be able to help you? You would also benefit from registering for the HRC2021 A F Association Patients Day event taking place virtually from Sunday 3rd October heartrhythmalliance.org/afa... Take care, and we look forward to hearing from you shortly.
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