Hadn’t had an AFib episode in 5 months so tapered off Flecainide. AFib returned so I’m using Flecainide as a PIP instead.
I’m about to get the newest “pulsed field” ablation so hope to not have to take Flecainide again I’m concerned about the toxic side affects
Been taking Flecainide for over 30 years. It clearly keeps AF at bay so have no intentions of stopping any time soon.
Pete
Thanks. I’m about to take my first Flec and amnervous about it…hair loss, heart rate increasing. That’s what I’m reading in this forum. You seem to have positive things to say. Last night I would have done anything to end the episode, now I have misgivings. I will do it. I hope no negative results. 🙏🏼
I have never had any side effects.
Without Flecainide I know that the last 30 years my quality of life would be significantly worse than it has been.
Try to relax I am sure all will be fine.
Pete
Thank you. I will ❤️
I think a day of reckoning may come with Flecainide but to date after 7 yrs taking 200mgs daily, which has kept me (with Lifestyle changes) almost entirely AF free, I can't attribute with confidence any downside issues.
No downsides? I hope not. I’m taking my first dose tonight. Will take 50 mg twice a day. That’s when I get the episodes. I also take Eliquis 5 mg twice daily and metoprolol 25 mg in morning and 12.5 mg at night. I count on being positive.
My cardiologist favours regular daily flecainide rather than just when episodes occur. I wanted to take it as a PIP due to its strength and potential side effects but it is an old tried and tested drug and I have to say he has been right as I have had no problems.
So far, taking Flecainide 50 mg twice a day and metropolol, as well as Eliquis has been miraculous. I started this regimen two days ago with the added Flec. No episodes yet, not a single off blip. I’m reading more about it and that seems to be the recommended combination. I’ll see the EP In 3 days to an EKG. Feeling fine and I hope it reads that way too. Thanks for the support.
Please keep us posted on how pulse field ablation goes for you. Lots of positive press on it, and I know a number of people on this board who are trying to hold out until that is widely used. Good luck!
Hi Jmbrph 
love to hear how you get on with the Pulsed Field ablation please let us know.
Having it Tuesday, August 24. Will report shortly after.
Hopefully things went well yesterday, and home recovering. Looking forward to your experience when things get back to normal for you. Rest up!
Just discharged from hospital after pulsed field ablation. Doctors showed pix of before and after. Amazing results, hopefully clinical trials will definitely show FDA this is the future of EP. It will change the entire field of ablation.
Hi Jmbrph that is good news . I wish you a AF free future,,,
I’m so glad I am in this clinical trial for pulsed field ablation. Flecainide for 2 more months only. Not sure about Xarelto.
Great to hear your enthusiasm! How has your recovery been? Much chest pain from the procedure? Which hospital/doc did you use?
NO chest pain at all. Only pain was from the 2 groin puncture wounds and that was minimal. Amazing how they can STITCH a vein afterward. Since this is a clinical trial, I better not disclose the location but one of the major hospitals in this pulsed field ablation trial.
Great to hear. Looking forward to hearing how the recovery goes in a few weeks. Was your study one that you were blind on whether they were doing Pulse Field or RF? Or not able to say? I have read about that one being done at a place local to me.
Hi JM, what is Pulse field ablation?
Google it and you’ll find out all you’ll need. It’s the newest method of electoporation (ablation) that will be changing the entire field of electrophysiology.
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