Now 9 days post ablation : Well, am... - Atrial Fibrillati...

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Now 9 days post ablation

dh1120 profile image
23 Replies

Well, am feeling better every day but my extra beats are back. I know it is super early in the healing process but so discouraging all the same. I pray that they subside over time. Patience is definitely not my thing lol.

Hoping everyone is well.

Dona

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dh1120 profile image
dh1120
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23 Replies
Jajarunner profile image
Jajarunner

No extra beats, but cannot walk fkr more than a few minutes (ie 2-3) without feeling like,e my battery has gone flat. All energy just goes. I was the same after last ablation too, it took me months to get back to normal...

Hope your heart settles soon xx

dh1120 profile image
dh1120 in reply to Jajarunner

I have been very non mobile lol since I over did it over the weekend. Mostly sitting in my recliner . Time will tell because I am really getting cabin fever lol . But will definitely be taking it slow ! Hope you feel better soon!

Jajarunner profile image
Jajarunner in reply to dh1120

Like you, I'm not a very patient patient 🤣😂🤣😂

dh1120 profile image
dh1120 in reply to Jajarunner

😂😂

Padayn01 profile image
Padayn01

Please don’t be discouraged it took me 13 months to see normality after my abalation

dh1120 profile image
dh1120 in reply to Padayn01

That’s encouraging. Thank you 😊

meadfoot profile image
meadfoot

Keep this in mind every day - “a little progress is still progress” and “one day this all will be just a memory”.

I saw these hand written pieces on a piece of A4 paper stuck on the side of an electric junction box in central London when i was downhearted and walking from my hotel room in Waterloo to see my cardiac consultant one day. I have held on to their truth so many times since. Good luck with your recovery.

CDreamer profile image
CDreamer in reply to meadfoot

Love that ......

dh1120 profile image
dh1120 in reply to meadfoot

That is amazing! Thank you!

Singwell profile image
Singwell

I had masses of ectopics - which I think is what you mean - in my week 2 post ablation. They started calming down in week 3 and I had hardly any this last week. Just a couple this week. It's hard when you start to feel OK not to overdo it. Inside your heart isn't OK. This is a good time to learn to be kind to ourselves and enjoy lazing about. Trust me - have to remind myself of this daily - but it gives us our best chance of healing. 🤞

dh1120 profile image
dh1120 in reply to Singwell

Thank you, and yes I do mean the ectopics. Before the ablation , while on anti arrhythmic medication, I would have over 4000 a day along with a few SVTs. While not taking medication it was double or triple the amount. And I feel them all. The first 4 days after the ablation I didn’t feel anything , after years , and it was AMAZING! For them to be back 😞 definitely is discouraging. But I am just gonna go with the flow. Take it easy and day by day. Thank you for your experience because it does truly help my spirits and look towards a better day. 😊

Singwell profile image
Singwell in reply to dh1120

What CDreamer says about the remodeling is very important I think. Notice that your heart is trying out new behaviour - give it space and kindness to learn that behaviour. I had such a horrible first 8 days that I was in despair but when I allowed myself to just 'give in' I noticed that the episodes were starting to go away in their own and without extra meds. That was the beginning of change for me.

dh1120 profile image
dh1120 in reply to Singwell

That is basically what I told my husband this evening. That I was just gonna let it run it’s course and try to stop worrying ( sometimes easier said than done). Thank you for your experience and the encouraging words. This group has truly been a blessing to me!

Singwell profile image
Singwell in reply to dh1120

You're total welcome. This forum has been a lifeline for me since my diagnosis in December 2019

CDreamer profile image
CDreamer

I had problems with ectopics after ablation, seems a common thing, always after exercise and they lessened over a few months and disappeared after 6. I always took as a positive sign that my heart wanted to go into AF but was remodelling.

Very early but important days so hold on and look on this enforced rest period as a blessing, I have found that there are life lessons to be learned during these periods, maybe not asked for but essential learning all the same.

dh1120 profile image
dh1120 in reply to CDreamer

Thank you so much!

Singwell profile image
Singwell in reply to CDreamer

You are SO right about this and I'm grateful for the advice you gave me early on. It helped me change my mindset. It is a time of healing and not just in the heart.

Bennera513 profile image
Bennera513

I've not had an ablation for my PAF just yet but am in the midst of trying to make the decision to proceed or switch Flecainide to full time. One thing that has held me back is the prospect of even more ectopics. To date, these longstanding ectopics have been more concerning and symptomatic to me than the 5 bouts of AF I've experienced,....this, despite what everyone says about the benign nature of the PVC's/PAC's. Easy to see a future where the AF becomes much more of a nuisance, justifying a procedure that could increase ectopics.

I feel every ounce of your struggle and will be following with care and interest. Please keep us updated. I'm sure the ectopics are due to an angry heart that will settle in the coming weeks. Easy for me to say from my armchair. But, consider that you are much further along the recovery timeline than I, and hopefully, closer to a comfortable remission.

dh1120 profile image
dh1120 in reply to Bennera513

Thank you. I will be posting updates. I agree with what you say about PACs/PVCs. Benign or not when you can feel them ( as many as I do or you) it puts a huge damper on your quality of life. In my case I didn’t hesitate. I was told it could case them to show it in a different spot but as many as I have what could be worse? I pray you get the relief you need. I was wakened by them at 1am and couldn’t sleep for a few hours but at this moment am doing good. A little progress each day is a win in my book. Stay well.

rof182 profile image
rof182

Hi Dona, all

I am at the end of week 2 after my ablation. During this week I have developed ectopics and feel all of them. It worries my quite a bit (I understand it shouldn’t), so reading that I am not the only one already helps.

My ablation turned out to be quite a job, in a way it has been mind blowing. When I woke up my surgeon explained to me that he treated me both for af and flutter, firing away 107 times, showing me details on a 3D image of my heart.

In the first week after ablation my heart went like clock work, but I was worried about unusual high blood pressure and heart rate. Both are on the way back to normal, now it’s the ectopics that make me feel uncomfortable.

All in all I completely underestimated the impact of the intervention, and I probably would have delayed it a bit, knowing what I know today.

At the same time I feel quite reflective on the stress levels in my life during the past years... so this is an intervention that probably had to happen...

Take care

Rob

dh1120 profile image
dh1120 in reply to rof182

Hello Rob, you are definitely not alone. The last two days things have shifted for me. I was having ectopics non stop and could feel them . They were even waking me up at night. Then I stopped feeling in my throat like I always have. Just the thud in my chest. My chest feels different, not painful, not tight just different. When I checked my pulse I could feel them or when I did a cardia reading so I know I was having them but I just wasn’t feeling them like I normally do. I actually slept all night! I am taking it as a good sign and that is progress. Today has been a good day! It was beautiful here (85-90 degrees) so I ventured out in the back yard and sat on the swing while my husband did some yard work. I still can tell I am having them but not like before or as strong. I pray you start to feel better.

Dona

rof182 profile image
rof182

Hi DonaReally happy to read that you are doing better. And thanks for your thoughts I will keep you posted:)

Rob

bassets profile image
bassets

Hope you feel better soon and everything calms down 👍

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