Cheesed off

[sotolol]

No AF for 5 months just gone into an episode.

Deep breathing watching tv PIP and telling my self it WILL F lip off.

Still I’m not complaining.

Really. 😩👵🏻

[Lilypocket]

Well I suppose that's what makes it so annoying - it's Paroxysmal! But 5 months without is good going. I was on Sotalol before but started having more breakthrough episodes that started to get longer so changed meds. I have more episodes but they don't last longer than 2-4 hours and the ectopics have gone ( the ones I could really feel that is)

Hope it resolves quickly. I didn't know Sotalol was also used as a PIP.

Take care!

X

[sotolol in reply to Lilypocket]

I use it after advice years ago by cardiologist. I’m due to see one couple weeks but cancelled to May. Now cancelled again. I have so many questions to ask. Especially PIP. Still I hope it works this time. I normally get woken up with it. First time in the day. But thanks for reply.

[sotolol in reply to sotolol]

Hello by the way xx

[Singwell in reply to sotolol]

Could you request a phone consultation? My appt with cardiologist has been switched to phone. If you have a named consultant write a letter c/o his/her secretary and give them a short update. I find writing letters especially if cc'd to patient liaison, gets good results.

[sotolol in reply to Singwell]

Do you know what ? That’s a brilliant idea. How dense am I. ?! Tomorrow that is the first thing I’ll do. The heart has still not settled although BP OK. THANK YOU. How are you doing. ??

[Snowdrops_17 in reply to sotolol]

Yes please try phone consultation.

He might be on WhatsApp and you could do a video call to your cardiologist? But bear in mind! He most likely is very busy in the hospital now with all the COVID-19 Cases experiencing heart problems on top of being afflicted with this virus! I will keep you in my prayers Sotolol 🙏💜🙏

[sotolol in reply to Snowdrops_17]

I need them. Thank you. X

[Singwell in reply to sotolol]

You're welcome! My AFib switched off with a double dose of Flecenaide on Friday evening after a 14 hour haul.

[sotolol in reply to Singwell]

Mine is 28 hours !! Just had 8 pm sotalol im going to try to ring as you suggested.

I’m so glad your heart jumped back to how it should be. Lovely feeling when it does. Well done. Happy days. Bet you feel good now. Well done sitting it out. 👍🏻👍🏻👍🏻👍🏻

[Singwell in reply to sotolol]

Fingers crossed. This too will pass ...remind me next time! 👍🙏

[sotolol in reply to Singwell]

Got a cardiologist call me today. Prescribing bisoprolol my daughter will pick up Thursday for me. Bless you.

[Snowdrops_17]

Hope you will be alright soon! 😊

[Bagrat]

You are right it will flip back. Still a bugger though!

[sotolol in reply to Bagrat]

Yes Bagrat a pain in the ... chest. 💕hope you ok x

[Bagrat in reply to sotolol]

Am practising smiling. Fake it till you make it. Yes all good although never did get iffy tooth pulled in time. Trying not to think abscess antibiotics rinse and repeat!!

[sotolol in reply to Bagrat]

Good plan. All sent to try us. Must be horrible. Bless ya

[jeanjeannie50]

Thinking of you and hoping you soon return to normal sinus rhythm. Let us know when you do please.

Jean

[sotolol in reply to jeanjeannie50]

Will do x

[sotolol in reply to jeanjeannie50]

Hi well .... BP ok ish. But heart rate goes from 89 to 101 then normal. Called my cardiologist suggested by Singwell spoke to her secretary will call me back mmmmm not sure on that one. Getting dizzy but better than Sunday. Bored now.

[jeanjeannie50 in reply to sotolol]

I've been in AF since late last November, you get used to it after a while. I've just got over having a few days where it made me feel really tired. Would have rang my AF nurse at the hospital, but don't want to with all that's going on. I did speak to her in November and she said they probably wouldn't offer me yet another CV, but perhaps try different tablets. Can't think of much that's left for me to try to be honest.

Hope you soon go back to normal sinus rhythm.

[sotolol in reply to jeanjeannie50]

Bless you. What do you feel like when you always in it. Like heart banging. ??

[jeanjeannie50 in reply to sotolol]

Not too aware of my heart rate most of the time, but have periods when I do and that causes worry. Notice it if I try to do anything that requires effort, it makes me feel lethargic and very odd at times if I move too fast.

Today I went into my garden to dig up dandelions from the lawn. Not something that requires a lot of stamina, but it wore me out.

[sotolol in reply to jeanjeannie50]

Wow. Horrible. My BP 108/83 HR 99. So it’s coming down it’s normally 60. It must be horrible. Even this since Saturday sucks. But what you go through it must be so frustrating for you. My HR last time was 130 in November. Didn’t hear from cardiologist. But I’m not surprised. Just had last Sotalol for today. Bless you. I’m probably on the way to persistent.

[Jalia in reply to jeanjeannie50]

Dandelions ARE my lawn Jean ( saves a bit of work ...) 😁😃

[jeanjeannie50 in reply to Jalia]

Well the bees will love you for leaving them. I do feel guilty for depriving them of the dandelions, but more pop up up each day and there are other plants now which they love just as much. One of my near neighbours has actually got a weed free lawn. I asked how they kept it like that and they had bought something called Lawn Magic off the internet. I intend getting some of that myself this year.

[jeanjeannie50 in reply to sotolol]

How are you now?

[sotolol]

Still here still alive still in Af. BP Nose diving now. Blooming Sotalol. 😟😀👵🏻

[Singwell]

I know how you feel. I sat out my third episode for the first time at home on Friday. It can feel endless especially when you don't want to go to A and E. One of the members here told me to watch what I was eating - not to overload the system. Check out the thread on 'ways to distract during an AF episode' from Friday 3. Lots of good tips there and a few laughs.

[sotolol in reply to Singwell]

Always laughs on here. Bless you. X

[CDreamer in reply to Singwell]

I would just add - Audiobooks - that’s all I could do in the early days - listen to audiobooks for distraction as I couldn’t even sit up when in AF otherwise my HR went ballistic. And that is still my - go to.

[sotolol in reply to CDreamer]

Thank you.

[CDreamer]

Commiserations- hope by the time you read this you are in NSR.

[sotolol in reply to CDreamer]

Sadly no 🙄👍🏻

[CDreamer in reply to sotolol]

Ahhhh...... sorry to hear that - take care 😘

[sotolol in reply to CDreamer]

Hope you are ok. ? !!

[CDreamer in reply to sotolol]

Yes - really good at the moment thank you. Had a lot going on a few weeks ago with family but that has settled now & just finished latest course of anti-virals so I always feel good for a couple of weeks after that!

The immune suppression I take mean I get multiple infections which take weeks to get over leaving me with chronic fatigue so isolation is actually working for me! It’s an odd world!

[sotolol in reply to CDreamer]

I think of you a lot. How you keep helping everybody when you have a lot of problems. Lovely lady. 💕

[Flyer2820]

Hang on in there sotolol, it can be very difficult in this isolation period. It's not worrying me though. Yesterday I had a heated argument with the electric fire a conversation with the freezer that left me cold and spoke to the iron that left me steaming. It didn't help much when The washing machine piped up and left me in a spin and when the microwave started on me that gave me a shock. Other than that I am perfectly ok, just waiting for the black van to arrive to take me away.

Stay safe. Hope you get right soon.

Regards Flyer.

[sotolol in reply to Flyer2820]

I have a black van with men in white coats. Enjoyed your post.

[Hidden]

I hope you are doing well today. I too had a rough evening last night.

Let's try to stay positive and hope for the best.

[sotolol in reply to Hidden]

Will reply. Just been rubbish. Yes must be positive. Keep going ✅

[T1tone]

Sorry but what is PIP?

[Flyer2820 in reply to T1tone]

Hi T1tone. I know it's difficult to be up to scratch with all the abbreviations, so don't apologise for asking. PEP stands for pill in the pocket. Some people just take a pill when they feel a afib coming on and it pulls them out of it.

Hope this explains it to you.

Keep safe.

Regards Flyer.

[T1tone in reply to Flyer2820]

Thanks Flyer I would never have got that! In my world PIP means Personal Independence Payment so you might understand why I was confused - stay safe!

[sotolol in reply to T1tone]

👍🏻funny

[sotolol in reply to T1tone]

Pill in pocket. So when you get an episode you take to get you back in sinus rhythm. Hopefully.

[colinjeffs]

lots of fluids dhydration brings my af on

[EngMac]

When you say you have AF when you wake, in my experience means you may have a back issue where the nerves that communicate with the brain get compromised. Hardly anyone believes this is a factor but you may wish to pay attention and you may find it is for you.

[sotolol in reply to EngMac]

I have a spinal injury since 1985 !!!

[EngMac]

You may wish to look at some of my recent posts. Any spinal injury can impact any parts of the spine. With AF, it is difficult to know what really is the cause so any possibility, in my view, is worth exploring.

[sotolol in reply to EngMac]

It is anything. Cheers. Will look.