Off grid. : HI all, I'm off grid till... - Atrial Fibrillati...

Atrial Fibrillation Support

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Off grid.

BobD profile image
BobDVolunteer
15 Replies

HI all, I'm off grid till Friday if anybody it interested. Off to London for various meetings etc regarding the AF Association Tenth Anniversary and Global AF Awareness Week which in case you didn't know is now.

Keep plugging on and spreading the word.

Bob

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BobD profile image
BobD
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15 Replies
CaroleF profile image
CaroleF

Hope it's interesting. Do report back.

dedeottie profile image
dedeottie

Enjoy Bob. X

Hennerton profile image
Hennerton

As a matter of general interest, who funds AF Association? Is it several Pharmaceutical companies or a charity?

BobD profile image
BobDVolunteer in reply toHennerton

AF Association is a charity funded by donations and grants. If you had any idea of the rules and regulations involved you would not even think that there could be any commercial interest. It would be great to have more money but not at any cost. The independence of the association is paramount and all information available and published by AF Association has to be vetted and approved by NHS as well as the various medical trustees.

I do hope that re-assures you.

Bob

Hennerton profile image
Hennerton in reply toBobD

Thank you, Bob. Yes, it has reassured me and I have to admit to feeling much more positive about the site. What has puzzled me has been the rock hard view of anti-coagulation. I know I am probably being overly cautious but I find the CHADS VASC 2 scoring system very limited. I wish our general health and weight, nutrition and lifestyle could be taken into account. Does anyone feel like this?

BobD profile image
BobDVolunteer in reply toHennerton

It ain't perfect but for now it is the best we have. Just remember that every 15 minutes somebody in UK has an AF related stroke. To me that is enough persuasion.

Send us a card.....

Frances123 profile image
Frances123

And bring us a stick of rock too please 😂xxx

sirey profile image
sirey

Bob is our rock here!

Andyt36 profile image
Andyt36

Hey Bob I am abroad quite often, what's the best way to find out about these events.

BobD profile image
BobDVolunteer in reply toAndyt36

If you are a Friend of AF Association you should get all invitations.

Andyt36 profile image
Andyt36 in reply toBobD

Am I being dim - do u mean a member of this forum?

Andyt36 profile image
Andyt36 in reply toAndyt36

Ah got it ok

Keep safe

Di

BobD profile image
BobDVolunteer

Well I'm back home as you will have guessed. A heck of a lot of travelling. A lot of "networking". A lot of drinking bottled water and nibbling biscuits whilst discussing the future and very nice to meet some new faces and not so new (Hi CarolF). I can't believe it is ten years since AF Association was formed and the amazing progress we have made in that time but there is still much to do and we are the best people to do much of it. Keep fighting your corners!

Bob

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