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Permanent AF

Gertsen profile image
13 Replies

I have PAF now they seem to last between 17 and 20 hours bpm from 99 to 150. When you are in permanent AF is it always fast? When it is slow I am not very aware of it but sometimes get sweaty and a bit dizzy when fast. I am on apaxipan and bisoprolol.

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Gertsen profile image
Gertsen
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13 Replies
rosyG profile image
rosyG

I’m not sure but lots of people in permanent AF have fairly low heart rates. Mine tends to be 120-150 when in AF

R1100S1 profile image
R1100S1 in reply torosyG

Been permanently in AF for I few years HR ave is 92 but often see 120 or so.

Bagrat profile image
Bagrat

My husband has permanent AF and his pulse is not high. He says he really doesn't notice it any more and has no symptoms from it. He has other heart issues so takes various meds so nothing extra for AF.

Octaviascout profile image
Octaviascout

I’m in PAF ... I know this as I check everyday using my Kardia. My RHR averages around 85. This will rise to 120 or so if I’m out walking the dog but returns to 85 quite quickly. It is my understanding that AF results in an irregular HR, a high HR can often be a side effect of this, hence the bisoprolol. I’m on a daily dose of 7.5mg, having reduced it from 10 with no noticeable effect.

in reply toOctaviascout

Goodness! How different we all are- I had to stop taking the lowest dose of 1.25mg of bisoprolol daily as it brought my heart rate down dangerously low- the doctor hadn't bothered to check with me to see how it was affecting me but the pharmacist had, so I checked with him after three days of feeling tired and was told to stop taking it immediately - one of the doctors agreed but nothing else was suggested instead so I had to go privately to get flecainide to take as a PIP which I do when AF episodes occur and by taking that they never last much more than 2 hours. Episodes are occurring more frequently now though so I'm looking around here to pick up ideas of how to prevent them altogether. AF is a fast irregular heart rate as I'm sure your Kardia will tell you. I found that if I walked up hill which increased my heart rate it sometimes slipped into AF so I make sure I rest often when walking up hill now!

RoyM profile image
RoyM

I have been in Permenent AF for three years now. My resting HR is in the mid sixties. I regularly swim, cycle and chase my very active 6 year old grandaughter around with no issues my heart rate on exercise will quickly raise to 120 ish. Fortunately, it returns to the resting rate quickly. I take Apixiban and 1.25 Bisoporol daily. I am lucky I don't suffer any symptoms from my AF.

in reply toRoyM

How lucky that you are one of the people the regime works for but then I see you are a bloke and drug dosages are based on the average male so you are at an advantage but it is good that it works for you!

RickyM profile image
RickyM

My heart rate varies in accordance with what I am doing at the time like anybody else. I have permanent AF.

Resting my rate is around 62-65 overnight, 70-90 when resting but when exercising it can and does exceed 160 at times.

Bear in mind that measuring heart rate when I AF is notoriously difficult.

Hope this helps

Thomas45 profile image
Thomas45

I've had permanent AF for over 3 years. My resting HR fluctuates between 70 and 110. I can't feel it, but not clear what the causes of my symptoms are as I have other long term ailments - asthma, lymphoedema in my lower legs, enlarged prostate, and chronic urticaria, the latter triggered by a beta blocker. A side effect of the urticaria is food intolerances, foods I've loved to eat for over 65 years now cause painful rashes so I avoid eating them.

I take no medication for AF, warfarin to reduce chances of having a stroke, strong asthma inhalers, made to measure knee length compression socks, a statin, doxazosin primarily to relax the prostate, antihistamines, nasal spray and Calceos.

I am relatively fit. I have no appetite. I drive too much and walk too little. I enjoy gardening but always on cloudy days

Wightbaby profile image
Wightbaby

I have been in PAF for about 4 years now, so no longer have episodes as such.

I don't use any gadgets to check my heart rate. Had to change from Metoprolol to Bisoprolol (1.25) a few months ago. Feel much better on this...GP wanted to up dose because my heart rate was 80, but I asked if we could wait and see if settled down.

Had echocardiogram 2 weeks ago and it was between 67 and 75 hbm and my leaky mitral valve has not got any worse.

Sometimes at night it seems to lurch and lump a bit but other than that, it fels Ok most of the time. I walk and cycle to keep fit.

Gertsen profile image
Gertsen in reply toWightbaby

Do you mean permanent AF? PAF is what I have it comes and goes🙄

Sutty50 profile image
Sutty50

Mine's in permanent af but the correct term is persistent af. My resting heart rate's around 80-90 with 2.5mg bisoprolol, when I'm in sinus it's around 50. I'm permanently tired and hills and stairs really slow me down!

Ianc2 profile image
Ianc2

Good Morning one and all. Just checked the obituary column and pleased to see I have failed to be mentioned yet again. I have permanent/persistent AF, with a resting rate of about 49 bpm over the last month, rising to 54 when I was out in Spain last week. Good to be back as I am looking forward to getting out walking.

I try to get out for a good 6 mile walk at least 3 times a week and I find that over the last few years my fitness seems to have Improved.

I have been wheat intolerant for some time and of late find that milk has set off bloating and belching, so lactose free has become the new 'normal' and the symptoms have gone

Over the past few years I have become more and more interested in the role of processed sugar in food and it's link to heart problems and altzheimers, a never ending story I fear.

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