SVT Ablation to cure all arrhythmias??

[Kellyjelly]

The EP told me that he thinks SVT is my trigger for PAF and Paroxysmal Atrial flutter because I never have PAF or AFL without the precursor of SVT. He believes that ablating theSVT should put a stop to all 3. Has this been the case for anyone or would you say that you eventually need further ablations to deal with the other arrhythmias which become stand alone problems?

[Hidden]

Kelly, is this really the time to speculate about possible scenarios which may not even arise when you have not even had your first ablation? I have the sense that you will find the next three weeks very stressful if you can’t stop ruminating on things that you don’t need to worry about.

In other circumstances I would suggest a glass of chilled Chardonnay, but I don’t know your triggers.🙂 Perhaps more useful would be to try not to check in to the forum too often just now, to reduce the anxiety you are naturally feeling.

[Kellyjelly in reply to Hidden]

I think you misunderstand, I’m really not worrying and speculating I’m just working through the questions that were thrown up yesterday and wondered if anyone had been through a similar scenario and what their experience had been. I had no idea that svt can be a trigger for afib and afl and had never imagined that taking out svt could eradicate the others.

[Kellyjelly in reply to Hidden]

I have to say that having just found this forum after so long of really struggling and sharing my story it makes me feel really sad that you have made heavy reference to anxiety and suggested I don’t check in as often.

[Maureens46]

Kelly,

I'm not sure if you will find the reply from Oyster very helpful. My comment would be let Oyster enjoy his glass of whatever and you continue to post on here and ask as many questions as you feel the need to. As you know that what this forum is all about. I'm sorry I can't answer your query but hopefully someone will offer positive advice, meantime best wishes whichever path you choose and keep us posted on your journey.

Mo

[Kellyjelly in reply to Maureens46]

Thank you, I really appreciate your reply. I’m just asking questions that have arisen from my really positive and helpful meeting yesterday, not because I’m anxious or wish to sit worrying for the next 3 weeks. I just wanted to know if anyone had been through a similar experience.

[Finvola]

I’ve not (yet) gone down the ablation route but in your position, I would be asking exactly the questions which you have asked. The good side of the answer is that your EP feels that clearing the SVT may solve the problem.

I would have thought too that the EP study will pinpoint the focus/foci more exactly and produce a lot of answers. We always say on this forum that knowledge is power - especially Bob - I’m sure there are ablatees who will have some personal experience to add.

[Kellyjelly in reply to Finvola]

Thank you so much for your lovely reply. I’ve agreed to ablation because he seemed so confident that SVT is my trigger and he could really help. I was really just wondering if this has been the experience of anyone else.

[Enjoy]

Wishing you a successful ablation Kellyjelly. I am just coming up to 3 years AF free.... just very very minor reminders I have a heart now and again.

[Kellyjelly in reply to Enjoy]

Thank you so much and what a lovely positive reply. Every success story makes me feel more hopeful 😊

[Redders]

Best of luck Kellyjelly with your ablation and please let us know how you get on. I had my third ablation on 12th September last year and still have the odd AF attack but feel much better.

[Kellyjelly in reply to Redders]

Thank you so much for your lovely reply. I’m so glad you feel better. Were any of your ablations for SVT?

[irene75359]

No experience to help you with but wish you the best of luck that your procedure will sort out everything.

[Kellyjelly in reply to irene75359]

Thank you so much, me too. I’m very hopeful, the EP seemed very confident.

[Bmwpaul1971]

From what I have read, I think ablations for SVT are highly successful but who knows if it will stop the other stuff. Take this step first and see. Dont expect it to cure the other stuff and if it does then thats a brilliant bonus. Just go in wanting it to stop the SVT and go from there.

I did not read anything in yr post being about anxiety? So someones reply confused me??? You asked a good question and maybe someone has had a similiar experience as a by product of the ablation can help you?

Sorry you feel let down by an answer. This is a brilliant forum. Keep asking. That is what forum support is for 👍

[Kellyjelly in reply to Bmwpaul1971]

I honestly am not expecting it to cure anything, I have very little expectation and a lot of hope 😊 I just wondered if anyone had had the same experience as me.

I have spent a very long time dealing with misdiagnosis of anxiety and I have very openly shared that here as a way of letting go and in the hope that it may help someone else if they are feeling how I have felt. It’s very sad that my openness regarding all that has meant that I have been judged yet again by a complete stranger. However I will not dwell on that because I have had so much lovely support from people like you and the other helpful and knowledgeable members of this forum. Thank you for your helpful and caring reply, this really is a great place!

[BobD Volunteer]

Sorry I've been away for a dinner last night (shame Flapjack couldn't join me but he couldn't bothered to come back from Portugal). I'm afraid that you question is impossible to answer because we are all so very different and arrhythmias in general are so individual. There may be a few similarities in symptoms but to my view the problem is that as no two hearts are the same, how arrhythmias progress or not is so random.

Trust your EP and relax. Maybe not open a bottle of Chardonnay (i prefer Pinot Grigio) but do think positively.

[Kellyjelly in reply to BobD]

Thank you for your helpful reply. I really don’t expect the outcome for me to mirror anyone else’s, or my heart to react in the same way as another persons.

Up until Friday I had no idea of the concept that SVT could infact be the match that lights up the other arrhythmias. I also understand that the EP won’t know that for sure until he goes in and even if it is the case I also understand that it doesn’t mean I won’t have further arrhythmias in the future.

I was just interested to know if anyone else had been in this situation and what the outcome had been after ablation. As far as I can see that’s what 90% of the questions/ posters here are, people wondering if someone out there has had a similar experience to them and how it turned out??? The question in no way reflects how relaxed or anxious I am and really doesn’t need suggestions that a drink and abstinence from a place I found so much supportmay help me to relax.

I think if you read my other posts you will see that it is not a question of not trusting my EP and I am feeling more relaxed now than I have for years due to a combination of a very positive meeting with him and lots of help and support from this forum.

[lovetogarden in reply to Kellyjelly]

Really interesting to hear your EPs idea that the SVT is triggering the other symptoms. Exciting to think that eliminating that might fix the rest. And wonderful that you had a good meeting with him that has built trust, what a difference that makes while traveling though these confusing waters.

My experience was a bit different, but similar symptoms. I’ve had 2 ablations for afib and flutter and am still left with PSVT symptoms that I’ve had all along and that my former EP seemed disinclined to address.

Not surprisingly, I’ve switched to a new EP. He’s been wonderful about explaining things accurately and treating me as a partner in my healthcare, the last one just saw me as one more medical problem to be solved. We may go ahead with another ablation to try to find that stubborn PSVT. Maybe, like you, that was my problem all along? Interesting.

And like you, I’ve been a bit put-off by unnecessary ‘stop worrying’ responses here when someone wasn’t expressing worry, just asking questions. I realize that those words were coming from a place of helpfulness, everyone here is caring and supportive in their own way. But if someone really is worried, it comes across as a dismissal of one’s feelings and concerns.

Wishing you good luck with the ablation! Will be very eager to hear how it goes!

[Kellyjelly in reply to lovetogarden]

What an interesting and very thoughtful reply, thank you so much.

Only time will tell if my EPs hunch is right 🙏

It’s really interesting that you have been treated almost the opposite to me in terms of ablation, afib and flutter first and possibly SVT last. I may have the same journey ahead just in a different order.

I’m so happy that you have gone from feeling like a person that wasn’t listened to, to feeling involved and consulted about the journey you are taking with your healthcare provider. It really makes an enormous difference. hopefully this will result in an eradication of your symptoms once and for all 🤞

It’s very hard sometimes to communicate effectively with well meaning strangers who are or have been looking for answers themselves. Like you I believe that everyone is coming from a place of care and compassion and like you I can feel hurt and dismissed when told I’m worrying unnecessarily. I have learned over the last few weeks though that the value of the collective compassion, knowledge and care of this forum far outweighs any off the cuff responses.

I wish you all the best and I can’t wait to hear what happens in your journey too. Take care 😊

[Amy2805]

Hi Kelly,

I don’t know the answer to your question but I can tell you what happened with me as it was similar.

I was diagnosed with SVT and AF. I decided to have the Cryoblation and the EP told

Me after the procedure that he thinks the AF was the trigger of my SVT. I think he may have been right. I had my Ablation 31.10.18 and I have been so much better since.

Don’t get me wrong I have a few blips here and there but mainly just slightly tachycardia and eptopics, nothing as bad as it was before though.

Hope this helps in some way x

[Kellyjelly in reply to Amy2805]

It really does, thank you so much. I’m so glad you are feeling better.