Its been some time since I last posted on here. Everything has been ticking along ok (pardon the pun). General health as usual has been a bit up and down. I was diagnosed with depression in August due to bullying and harassment at work. Consequently I left the job, I don’t miss the 75mile round trip each day
In December I developed a chest infection and ended up spending 10 days in hospital. Like a lot of us I had a couple of days off but went back to work. Christmas came and went didn’t feel brilliant but kept going Christmas is an important time to me. Second week in January started to feel worse peak flow was down and I was coughing which is unusual for me. So trip up to the dr. Another chest infection or maybe didn’t get over the first one. Steroids and antibiotics. A few days later and I’m worse not better, back to dr’s. I get admitted to hospital this time I’m in 3 weeks. Didn’t expect that one.
When I look on my discharge letter it states that I have had pneumonia. Whilst in hospital after numerous tests they decide that my heart problem may beaffecting my slow recovery. I’m now on the waiting list for a Mibi test it’s around 10 weeks.
I was not surprised that the heart was playing a role in this as I have not been feeling right for some time. Nothing I could put my finger on but was complaining of severe tiredness amongst other non specific things. I should point out here that I have multiple medical conditions and I have had several reactions and serious side effects including anaphylaxis from some of my medications.
What has surprised me is how I have reacted and dealt with the potential decline in my heart function. I’m not sure if I have seen my diagnosis written down before or if I’ve only noticed it this time. I have Idiopathic dilated Cardiomyopathy. As you do I have started to look through the Internet for information. I started seeing the words life expectancy and “ is Idiopathic dilated Cardiomyopathy terminal” now I’m freaking out. Can’t talk to the family as they are all worrying. I almost feel like I’m being diagnosed for the first time. I’m not sure nice I said this but was first diagnosed with Left bundle branch followed by total heart failure resulting in a pacemaker being inserted about 8 years ago.
I am feeling pretty low after the pneumonia the drs are saying my recovery could be 3 months. ,!! I just don’t know how to feel or think. I’m normally a positive person. I hate to admit this but I’m scared.
One thing I have decided to do as I’m currently between jobs and can’t work is look at ESA and see if PIP is a possibility. I also have 3 damaged discs in my spine.
Sorry for the long post